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The helpful information provided by Dr. Kenji Sato

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Today, I’m very happy to be able to announce the great information for Topical Steroid Withdrawal provided by Dr. Kenji Sato.

A lot of patients who are suffering from TSW know Dr. Sato by name because of his theory and great method called No Moisturizing Treatment (NMT)’for TSW.

 

He is the leader against Topical Steroids and Protopic to use for Atopic Dermatitis in Japan.  He has been taking care of many inpatients/outpatients from all over Japan/foreign countries for a long time and achieves great results for TSW.  His eminent ability to diagnose patients’ symptoms and clear and appropriate advice make us surprise all the time because they can be the shortcut for healing. 

 

And I’m the testimony who got over TSW in a short period with his methodWithout applying any ointment or cream or oil or moisturizer, the very severe symptoms disappeared 90 days later.  It blew my mind.

 

He sometimes gives comments in the comment column on my blog and this time, mentions about reasons why TSW takes for a long time and can be severe.  So I am pretty sure that this information will help out a lot of patients suffered from TSW and must be helpfull for many people for understandings of TSW

I’m very proud of that he is one of readers of my blog. 

 

Dr. Kenji Sato’s message is as follows;

 

          ******************************

 

*snip*

[sic] 

I think it is worth informing to people.

From my experience, the causes which make TSW symptoms long and severe are the followings;

1. long term and/or stronger steroid use

2. use of tacrolimus

3. use of moisturisers after stopping topical steroids

4. frequent and long bath and/or shower

5. drinking of large amount of liquid, drinking liquid during night

6. wash out exudate and/or scrape off crust

7. insufficient intake of protein and lipid

8. bed rest during the day time

9. insufficient amount of exercise

10. be told not to scratch

11. poor management of psychological stress

12. Subjective assessment of signs (itch, pain etc.) and no objective assessment of symptoms (erosion, red, brown, white, exudate, crust, etc. )

 

Kenji Sato

 

          ******************************

Edited:  Subjective – when you feel you are getting better or worse – but an impression only on progress of NMT. Objective is when photos are taken of skin changes, counts of flares, documentation of urine color and water restriction, intensity of itch, accurate assessment of flaking, color of skin eruptions and oozing, etc. In hospitals, doctors make a subjective assessment of how sick one is and then blood tests, blood pressure, etc. for objective assessment.   – This explanation is made by Ms. Marlene Diana Bell who is one of admins of ‘NMT (No Moisturizing Treatment) Education Group’: The intensive learning site on Facebook

 

No Moisturizing Treatment (NMT), that was developed by Dr. Sato based on his many experiences for a long time with TSW patients has been showing clearly defined outcome in Japan.

People who have tried NMT can make a definitive statement that it is the best method for your prompt recovery from TSW.  However, you need to understand one thing.

Once you started it, your symptom might look as if it got worse because your skin dries more but it is the process of healing.

As long as I know, healing tends to happen at the last minute of the entire process, meaning, I saw it was accelerated right before inpatients were discharged from hospital 45 to 90 days later.  So I recommend that you don’t give up at the early stage.  If your doctor diagnosed that your symptom is not dangerous, just keep drying your skin and follow the method precisely if you are trying NMT. 

Hang in there….for a while.  Things take time all the time.

 

Shrewed choice and insight are the point for your prompt recovery.

Healing will happen to you!  Take good care of yourself!

 

          ******************************

 

There are comments from fellow sufferers of TSW who had tried NMT to see my blog introducing Dr. Sato’s method in the below topic.  If you are interested in it,

👇 Click below site! 👇

It works! – No Moisturizing Treatment – For Topical Steroid Withdrawal Fellow Sufferers

 

If you haven’t heard NMT and would like to know it more or to see pictures of my symptoms,

👇 Click below site! 👇

How to get over Topical Steroid Withdrawal asap!

 

If you’d like to see the pictures of children’s cure, click the site below.  They are in the video.

👇 Click Here! 👇

https://www.dovepress.com/a-prospective-study-of-atopic-dermatitis-managed-without-topical-corti-peer-reviewed-fulltext-article-CCID

 

 

 

 

 

***If you’d like to initiate NMT, this video that Dr. Kenji Sato has reviewed is a must-see to get correct protocol and to not prolong the symptoms.

Your strong determination, tremendous efforts to master NMT and perseverance are required to get expecte results (faster healing) with NMT.

 

 

 

 

#NMT  #nomoisturizingtreatment  #TSW  #topicalsteroidwithdrawal  #TSA  #topicalsteroidaddiction  #drkenjisato  #drmitsukosatou  #drshigekifujisawa  #drsatokominaguchi  #atopicdermatitis  #eczema  #tokuko’sroomtofeeluplifted  #アトピー #ステロイド副作用 #脱ステ #脱保湿 #湿疹 #ステロイド危険 #ステロイド安全 #スキンケア #リバウンド #保湿剤 #保湿クリーム #drsachiesumida  #阪南中央病院 #子供の脱ステ

It works! – No Moisturizing Treatment – For Topical Steroid Withdrawal Fellow Sufferers

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Topical Steroid Withdrawal Fellow Sufferers,

 

I sometimes share helpful information to get over Topical Steroid Withdrawal and Red Skin Syndrome in my blog because I am the one who got over ‘ultrasevere TSW in a short period with a great method that is called No Moisturizing Treatment (NMT)”

 

I had been using the strongest Topical Steroids of the times for more than 52 years since I was 6 months old so my TSW symptoms were inconceivable.

 

After being discharged from a hospital to get the wonderful treatment, having a miraculous recovery of course, I began to feel like helping out other patients who were suffering from TSW with bedrest at home with disseminating the great method……because there aren’t many hospitals that can take care of inpatients for TSW or are not many well experienced dermatologists for that in Japan. 

I’m also the one who had experienced bedrest at home without having any good method while I got the first and the second TSW.  

Although my symptom was VERY severe and I barely got to hospitals, my request not to use TS was rejected at any hospitals and I wasn’t able to be admitted to any ones after all.  I had no choice but to endure the long and hard struggle at home then.

 

                    ********************************

 

Since Topical Steroids are designated as the Standard Treatment of Atopic Dermatitis in Japan, most of dermatologists prescribe them usually or I could say ‘mainly’.  And due to the situation above, all I could do was have a bedrest only at home for severe TSW until I know the NMT.

 

Having RSS on the entire body like severe burn as if I was broiled, running much ooze coming out all over my body, completely closed eyes due to swollen face, feeling shivering cold in my warm house, swollen thighs to 2 times bigger diameter, losing 80% of hair, having crusts on the entire body like fish or new scaled creature, cracks, flakes, sleep disturbance, etc….etc…….my symptoms were desperate and not to be funny but I didn’t look like a human being at that time.

However, again, I wasn’t able to find out any hospitals that can accept TSW without using TS as inpatients at one of the biggest downtowns in the world, I mean, in Tokyo. 

My family also had no choice except seeing and cleaning scattered crusts all over the house.

 

I fully knew how tough to get it over alone at home due to my experiences in the past. 

 

Most of patients are wondering what to do or are worrying when they will be released from the anguish.  They are wandering from hospital to hospital like refugees or are trying folk therapies or are looking for someone to help them out mentally, and so on…..The symptoms are too tough but there’s no distinct clue to resolve the problem usually.

 

My symptom reached human body’s limit finally and it was the thrid acute aggravation.  I went to Dr. Shigeki Fujisawa‘s clinic for the first time because he is a well known dermatologist against TS in Japan.  To see my horrible symptom, he diagnosed that it was not the level to stay at home and introduced Dr. Kenji Sato who is the leader against TS in Japan.  Dr. Sato is the expert to see TSW patients and takes care of his inpatients/outpatients of TSW with his method, meaning, NMT.

 

The experience in the hospital resulted in meeting many inpatients who are healed from TSW miraculously within a few months with his method (NMT)

 

Before I knew the method, TSW symptoms took VERY long time to get better for me and even after being better, the symptom relapsed again and again and the bad or better symptoms repeated back and forth, back and forth…..for years. 

 

However, his method was amazingly great not only for me but everyone.  I knew that everybody who had tried it realized that the treatment was the best in their life and the Original symptom that we were diagnosed as Atopic Dermatitis also turned to be way too good for us. 

Of course, there’s no perfect treatment for atopic dermatitis on the earth and repeating TSW is unpredictable for anyone but still, our condition turned to be very good.

That’s why I made a decision to start this blog to disseminate the helpful information. 

 

After a while, I knew that the situation in the world also was almost the same with Japan, meaning, so many people have been struggling against TSW without having good methods or experienced dermatologists.  And even worse, I realized that the major treatment for Atopic Dermatitis had been Topical Corticosteroids all over the world.

 

I noticed that it was urgent to post topics in English too for people who need good information/method in the world because I know the hardship of home remedy for TSW very well.  Most of patients can’t come to Japan easily but there is a great treatment here!!!!

English is not my native language so it was kind of challenge for me but I felt a calling so tried to explain detailed information about his treatment in English on the site.

 

Finally, 6 months ago, I posted How to get over Topical Steroid Withdrawal asap introducing Dr. Kenji Sato‘s method in English, meaning,No Steroidal and No Moisturizing Treatment (NMT)’in this blog.  

I believed that I could be a true testimony even in the world because I am the one who experienced one of the worst TSW symptoms all over the world as one of the longest TS users

 

However, it was more than I expected.

 

The topic was read by tens of thousands of people being shared one after another in the world.  The white world map on the data page of my blog was filled with colors everywhere, meaning, it was distributed to all over the world finally.  It included countries’ names that I have never heard. 

 

It was a huge surprise for me that the treatment was a sensation for people in foreign countries and I knew that it gave a far greater influence on TSW patients than I might imagine

 

I saw that patients’ demand is outstripping supply with my very own eyes.  TSW is the serious issue in the world now but there aren’t many well experienced doctors or hospitals to take care of its sufferers without TS.

 

Dr. Sato’s treatment is a little different from MW (Moisturizer Withdrawal) but more than that and his long term research with tons of TSW patients let him produce the great method to cure from TSW.  It promotes and encourage healing the fastest…..

 

If you haven’t read the topic, Click the site below! 

        Tokuko’s Room to feel uplifted (=Genki ga deru Tokuko no heya)

How to get over Topical Steroid Withdrawal asap!

 

With his method, Inpatients are usually cured in 45 to 90 days.  His treatment is to use natural healing ability of human beings effectively.  It starts to heal spontaneously and results in rapid healing.

 

Approximately 2 months later from the posted day, I started to receive messages about its results little by little and then it increased as time proceeds….

3 months later, I received enthusiastic responses from MANY people via my blog, SNSs, TSW support group pages and so on.  It was worldwide reverberation.  I got SO many messages with appreciation reporting their symptoms were improved.

 

I finally realized that a lot of people in the world had tried Dr. Sato’s NMT precisely to read my blog by themselves and they recovered from horrible TSW in a short term!!!

 

Today, let me introduce some comments to me and a message from one of my readers.

 

The comments are reporting how it worked for them and the message is mentioning how she made a miraculous recovery with ‘No Topical Steroids and No Moisturizing Treatment‘.  (***Some people are calling NMT as MW in them but they tried Dr. Sato’s NMT.)

 

I believe the experiencers’ report will be your hope and encourage you more than anything.

See below reports!

 

                 ************************************************

     COMMENTS

 

Healing DID happen within 90 days. 

My hands look almost normal.  I never thought the days would come. 

So happy I found your blog. It’s life changing.

 

Thank you for your insight!

NMT helped my son, too. I’m so happy to see your advice has helped others! Thank you for sharing.

 

Yes, it was the best decision for me. 

I understand it doesn’t work for everyone but it sure worked for me.

 

Thanks for sharing.

We tried No Moisturizing Treatment for my daughter and it helped her immensely with the itch.

 

Thank you for sharing your experience with others.  It’s really helped me make a dent in my healing

 

My daughter has been improved a lot once without moisturizing.

 

Had a bump in the road when pollen season hit but the skin cleared the fastest I have ever seen it.

Thanks again for your info. It has changed my life for the better.

 

Did you see her post?  (**People recommend this blog on a website very often.)

She has a blog and goes into detail about healing faster by avoiding things that moisturize the skin.

 

it is so fast and amazing to heal within 3 months!

 

the skin cleared the fastest I have ever seen it.

Thanks again for your info. It has changed my life for the better.

 

Thank you so much for your posts.

I have been struggling now for 39 mos tsw and started implementing these methods in mid January

and this is the best I have felt and best my skin has been.

 

etc….

                 ************************************************* 

 

                 A MESSAGE FROM A READER

<Received in this spring>

[sic]

Hi Tokuko san, hope you are doing well!

I am so happy to share with you that after two months of moisturiser withdrawal, 90% of my face skin is nice like egg white, in even better condition than when I used to apply a lot of moisturiser. It is very miraculous! (And reading my comment two months ago saying I had difficulty opening my mouth because of dry skin, it is so encouraging what can happen in two months when nothing is done!)

Though I still have other eczema wounds on my body, I now have even greater faith and belief that I am now on the right track and will get over it some day.

Just sharing here hopefully to encourage others in the same difficult situation.

And thank you Tokuko san again for your such detailed sharing, I find it’s almost life-changing… have a great day and enjoy the beautiful spring in Japan

 

                  *************************************************

 

Thanks for the messagges, everyone! 

And sorry for people whose messages that I couldn’t add in this page.  Still, I read everything and appreciate it so much! 

 

Of course, we always need the support of medical profession and I definitely recommend it but in the current situation all over the world, since the demand is outstripping supply, most of us have to accomplish home remedy.  It is very sad so I’m writing for such people.  

 

Well, the topic has been shared every day in the world even now so many people might try NMT at home in the future.  For such TSW fellow sufferors, let me say something.

 

Once you started it, your skin would look like as if it was getting worse but skin needs to be dried before healing so it is the process that you have to get over

 

If you added your original way like putting oils or some other moisturizers or taking so and so bath additives, etc….it won’t be NMT and takes longer for healing.

 

At the same time, I’ll let you know that it is REALLY tough having pain during the process of NMT because you are drying your dry skin.  However, I recommend you not to give up in a short period at the beginning.  Just hang in there. 

Before you give up, please remember this. 

Healing happens only for people who got over the symptom patiently and it tends to happen at the end

 

Again, I saw amazing healing effects at the hospital and knew that it was the best and the fastest way to evacuate from the horrible symptoms of TSW

Ahem…As you see, I’m not selling expensive items or anything to you at least…lol  You know what I mean?  I don’t need to exaggerate.  No need to advertise so I can tell you the truth only.

From my action, I hope you understand that I spend my time just to help fellow sufferes.  I know how tough TSW is but was convinced that the treatment would help you out from the anguish.

Hope you utilize your insight to tell what information is good among billion of methods

 

Some people admired me mentioning ‘The experiencer of the worst symptom in the world’ jokingly…., however, even such a person was able to get well with this method.

Hope you’ll make a sound choice for your prompt cure.

 

Healing will happen to you in the near future!

Good luck!!!!!

 

 

EDIT:  Dr. Kenji Sato gave us a comment in the comment column below

It is VERY helpful for usDon’t miss it!

 

 

P.S.  English topics in this blog are available from the site below.

★MENU★【POSTS IN ENGLISH】

 

 

Copyright © 2018 Tokuko Abfab All Rights Reserved.

 

 

 

How to add your comments  on “Tokuko’s room to feel uplifted”

Dear readers,

 

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It takes time to be approved by the administrator for your first comment.

 

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Also, please understand that this blog is administered to encourage and inspire each other to share good information.

Before you send a message, please make sure if your comment is along the uplifting policy of “Tokuko’s room to feel uplifed“.

 

Thank you very much for reading and sending comments to encourage people!

 

Tokuko Abfab

 

 

#Tokuko’s Room to Feel Uplifted    #tokuko’sroomtofeeluplifted

Is your symptom Atopic Dermatitis or Dermatopathy Induced by Topical Steroids?

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Topical Steroid Withdrawal Warriors,

How are you doing?  Hope your symptom is getting better!

Fortunately, I receive so many messages every day via SNSs or on my blog site from readers who like this site, ” Tokuko’s Room” to feel uplifted all over the world.  I’m really happy to know how you are making improvement from your horrible symptoms with the messages and would like to acknowledge in writing here on this site.  Thank you very much, everyone!

 

Well, as for such messages, some are appreciation about what I shared and some are inquiries like what would happen to their originalAtopic Dermatitis‘ and ‘Itches‘ after they got over TSWSo let me answer it via this post today so that it might be a big help for more understandings of your current symptoms and you might aware more about dangerousness of Topical Steroids at the same time.

 

Below is the one of responses for a question from me to one of readers of my blog regarding a topicHow to get over Topical Steroids Withdrawal asap!’

(See the second site from the bottom if you haven’t read it.)  

Wishing you would see the silver lining in the dark cloud. 

 

     ************************************************************

 

Hello XXXXXX,

 

Thank you very much for the nice comment!  I really appreciate it!

Well, as you see, it is How to get over TSW asapbut not how to cure Eczema/Atopic Dermatitis There are many treatments for them in the world but human beings still can’t find the perfect way to heal them because we found out only one etiology for Atopic Dermatitis, meaning, ‘filaggrin gene‘.

 

Although the symptom of TSW might be different from your Eczema/Atopic Dermatitis, it is worse than them usually, you’ll see some of your original symptoms were side-effects of Topical Steroids though they were diagnosed as Eczema/Atopic Dermatitis, after you are healed from TSW. 

 

Let me tell you the reasons why from experiences of mine and other patients who accomplished the same treatment, Dr. Kenji Sato‘s method.  It is called No Steroidal and No Moisturizing Treatment if I translated it directly and is a little different from Moisurizer Withdrawal (MW) but more than that

The therapy is not only avoinding moisturizers but anything that moisturize your body if I explain it precisely.  You can call it NMT for short if you prefer. 

 

 (Dr. Kenji Sato’s method is different from MW that is advocated by some other doctors who are not performing at clinical sites or are writing with desk theory only.  He has been seeing tons of TSW patients from all over Japan and foreign countries for a long time, day in, day out…..until late night to help us, actually.  He is the leader against TS in Japan, has been taking care of TSW inpatients and his clinical results for TSW are amazing!  That is why I don’t call it MW.)

           

**Things above moisturize your body!  (Bandages, thick clothes, hot springs, thick comforters, shampoo and conditioners, frequent showers, etc…..)

 

Even if you finished current TSW, you ‘might’ have TSW again in the future or ‘might not’.  As for the part, nobody knows how often or how bad your next TSW would happen or would not happen because there’s no data in the world.  However, After you finished TSW, you can tell your skin is getting stronger little by little.  I can let you know that your original dermatitis is getting much better every time you finished TSW and everything is going to be extremely better than while you were using Topical Steroids!

 

The thing is, some or many parts of your skin problems that were diagnosed as Eczema/Atopic Dermatitis were not them but might have been Side-effects of Topical Steroids.  This means, Topical Steroids induce various kinds of skin problems/dermatopathy while you are using it.  It is highly addictive and they make your dermatitis intractable

(**Every time you stopped TS, you realized that your symptom got worse later after all, and then, once you used it again, it got well, didn’t it?  You repeated this over and over in your life, didn’t you?)

 

As for me, it passed almost 5 yrs after stopping Topical Steroids, and my skin became stronger amazingly though my TSW had been one of the severest symptoms in the world, I guess.  

For example, while I was using TS, my fingers looked like as if I had very thin cellophane on raw skin but currently, they look strong like ordinary people’s ones and have started to shine lately, meaning, I see they are moisturized gradually though I have ultra dry skin originally.  This improvement is the first experience in my life. 

 

I sometimes have opportunities to see people who have suffered from TSW.  All of patients who were discharged from the hospital mention about the same kind of improvement and we can say that this method, No Topical Steroids and No Moisturizing Treatment, (NMT) is the best way to get over TSW so far on the globe.  We got over TSW miracurously with the treatment in a few months and at the same time, realized that many symptoms had been induced by Topical Steroids because our original dermatitis also is getting much better after all.

So our current symptom is very good or much better than while we were using TS.  This means, the itches also are much better than the time using TS.  (Our original Atopic Dermatitis and Eczema are not healed perfectly because there is no perfect treatment in the world but you’ll see it is not such bad as it was after completion of TSW.)

 

TS shouldn’t have been prescribed except life threatning situation but no one didn’t know the side-effects long time ago.  However, we knew the fact now so each of us should initiate to say No!’ for the world wide misstepsYou can be one of the pioneers for that.

I believe, someday, someone will invent a perfect treatment to heal Atopic Dermatitis/Eczema but until the day, the treatment will help you out the fastest and your skin will be much much better and stronger than before.

 

Hope this explanation would be help for you and wish your symptom will be fine soon!
Good luck!

Tokuko

 

                   ************************************************************

 

Additionally, the reader who I sent the response above got miraculous recovery from TSW with No Topical Steroids and No Moisturizing Treatment (NMT) within 2 months after she started it to read a topic in my blog.  (See the site below if you haven’t read it.)  She accomplished it by herself reading it carefully.

I have been hearing a lot of good results from my readers but can’t announce them if they were sent to me as personal messages but since the correspondence above is done on my blog site, I posted it for you.  (Added some explanation for your more understandings.) 

Will post the report about her miraculous recovery on this site soon.

I hope this information is going to be the awareness of medications, especially Topical Steroids for people in the world and help your understandings of TSW.

 

Good luck warriors. 

You’ll be healed soon!

 

 

       👇 Click below if you haven’t read it!   👇

                                                        Tokuko’s Room to feel uplifted    

How to get over Topical Steroid Withdrawal asap!

 

   👇 Below site explains details about my explanation above.   👇

                                                        Tokuko’s Room to feel uplifted

What would happen after you recovered from TSW? How your Atopic Dermatitis/Eczema would heal?

 

 

 

Cherry blossoms at Chidorigafuchi, Chiyoda-ku,Tokyo

 

 

#Tokuko’s Room to Feel Uplifted    #tokuko’sroomtofeeluplifted

What would happen after you recovered from TSW? How your Atopic Dermatitis/Eczema would heal?

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Topical Steroid Withdrawal warriors,

The other day, I postedHow to get over Topical Steroid Withdrawal asap!’ on my blog and shared it on Facebook and some other SNSs.

So many people shared it and the action encouraged other shares one after another and finally, several tens of thousands of people read it all over the world within a few weeks as long as I know.  I would like to express my gratitude to everyone who has been supporting me to disseminate important information.  Thank you very much!

Also, I have received more than 500 messages with appreciation and encouragement from people in the world in one week.  This experience taught me a renewed recognition of the necessity of spreading the fact.  Thanks again for your kindness!

If you haven’t read it, please CLICK below site;  👇

     👇  👇  👇 Click here 👇  👇  👇  

How to get over Topical Steroid Withdrawal asap!

Tokuko’s roomto feel uplifted = Genki ga deru Tokuko no heya

 

At the same time, I received tons of Questions for details via SNSs.  I have been trying to respond to everyone but as for two common important questions subjected above, I realized it must be better to post as a new topic.

Hope you read the below topics to clear your questions/problems.

 

How many times your TSW would happen?

 

Even if you recovered from your current Topical Steroid Withdrawal, nobody knows what would happen next or how often or how bad you might or might not have the same symptoms in the future because there’s no data in the world.

As you know, skin problems are really difficult to form data.  It is hard to do comparison with others in the first place and even if you think back your medical history, you usually don’t have records like what day or what kind of steroids or how much or how often or how strong or what part of your body or how many days you applied them…….precisely.  Thinking about yourself only, you can imagine that it is impossible to have concrete data.  Even if well-experienced doctors could guess it, still it will be just a guess.

I also had experienced acute aggravation 4 times after I stopped using Topical Steroids including the first TSW within 3 years.  This means, even after you are recovered from TSW, you might have the same kind of unexpected aggravation in the future. 

Longer periods of application and more potent strength of TS tend to lead severe symptoms but even mothers who applied TS on a child’s back can have the same TSW on the entire body.  Or it can spread from one eczematic finger to the entire body.  That’s why we can say, ‘Nobody knows.’

Of course, I would like to believe that it won’t happen to you and me anymore for good….but there’s no guarantee.  We are the first patients who suffered from Topical Steroid Withdrawal/Side-effects on the globe so we’ll see it in the future.

 

Then, there’s no hope?

However, after you finished TSW, you can tell your skin is getting stronger little by little.

I can let you know that the symptom like TSW is getting much better than the first TSW each time even if it happened again and your skin condition is going to be extremely better than the one while you were using TS.

(Yes, it sounds crazy that the condition ‘not using’ Topical Steroids is better than ‘using’ but it’s true…Did we pay money for that?  It was ridiculous!…..lol)
 

As for me, though it passed almost 5 yrs after stopped using it, my skin became stronger amazingly.

For example, while I was using TS, my fingers looked like having very thin cellophane on raw skin but currently, they look strong like ordinary people’s ones o(^o^)o  and have started to shine lately, meaning, I see they are moisturized though I have ultra-dry skin originally.

All of my friends who accomplished No Steroidal and No Moisturizing Treatment (=NMT)‘ feel the same improvements at least.  Their skins also are getting stronger even when they have problems on some parts partially, and the entire condition is much better than before.  This is the amazing fact of No Steroidal and No Moisturizing Treatment.

 

How does an original skin problem heal?

 

Patients who are prescribed Topical Steroids by dermatologists usually have Atopic Dermatitis/Eczema or other skin problems originally.

There are many treatments for eczema/atopic dermatitis in the world but unfortunately, human beings still can’t find out the perfect way to heal them because we found out only one etiology, meaning the filaggrin gene

So, you must be wondering what would happen to your original skin problems even if you got over TSW after achieving No Steroidal and No Moisturizing Treatment (NMT)going through the horrible symptoms.

 

Well, to go straight to the bottom line, even if you got over TSW, your Atopic Dermatitis and Eczema (Original skin problems) would remain. 

However, you’ll see the Big difference before and after No Steroidal and No Moisturizing Treatment (NMT).

You might have been diagnosed that you had Atopic Dermatitis or Eczema or something and applied Topical Steroids first, but remember their side effects below;

 

  • Topical Steroids are highly addictive.
  • Topical Steroids induce various kinds of skin problems.
  • Topical Steroids make your dermatopathy intractable.

 

So, your original skin problems might not have been such bad without Topical Steroids and the medication might have developed them or induced a myriad of symptoms. 

 

The thing is, many parts of your eczema that were diagnosed as eczema or atopic dermatitis might not have been them but were side-effects of Topical Steroids.

I mean, you’ll see some symptoms were side-effects of Topical Steroids but not your original skin problems after you accomplished ‘No Moisturizing Treatment’.

As I mentioned, I have had atopic dermatitis since I was 6 months old but after I recovered from TSW, I realized that atopic dermatitis was not such a horrible skin problem to use immunosuppressants= Steroids/Protopic/Neoral.

And as long as I know, all of us who accomplished ‘NMT’ were convinced that our skin condition became very well or much better than before.

So, I’d like to say to you guys who are worrying about your original skin problems that everything is going to be much better than when you were applying TS and what is more, your skin is going to be stronger like healthy skin even if you still have original dermatopathy or some skin problems partially. 

 

Per Dr. Kenji Sato who is the leader against Topical Steroids in Japan, Steroids are exhausted from your body approximately 1 month after you stopped using Topical Steroids in theory

So if you have skin problems like TSW over and over after you exhausted Steroids, I guess the symptom might not be your original skin problems but the remaining side-effect of Topical Steroids.  Your skin itself remembers that you used to use steroids.  This is going to be proof of their inducement and refractory nature.

 

Is our future hopeful?

 

I believe, someday, someone will invent a perfect treatment to heal eczema/atopic dermatitis…Let’s look and hope in the future! (^o^)b  However, until the day, your skin will be better than before because you chose to stop using Topical Steroids.  Immunosuppressants shouldn’t be used for skin problems but for life-threatening cases only.

Some of you are struggling to get over your horrible symptoms of TSW now but still, it won’t be forever.
Now you know the best way to get rid of your symptoms asap, meaning, No Steroidal and No Moisturizing Treatment (NMT)‘ so just hang in there for a while.   

It might not be perfect but you’ll see the amazing improvement in the near future.  Even if the side effect happened again, you know how to take care of it….Scratch and dry, then scratch and dry and then scratch and dry….your skin is going to be stronger in the long run.

Sleep tight during the prime time, work out if possible…and keep on Smiling!

You are not alone and will be healed soon. 

For awareness of this worldwide misstep of Topical Steroids and supporting you, I’ll keep disseminating this information to the world. (^_~)b

 

Thanks again for your support.

 

Hugs,

Tokuko

Copyright © 2018 Tokuko Abfab All Rights Reserved.

Mt. Fuji

 

 

***If you’d like to initiate NMT, this video that Dr. Kenji Sato has reviewed is a must-see to get correct protocol and to not prolong the symptoms.

Your strong determination, tremendous efforts to master NMT and perseverance are required to get expecte results (faster healing) with NMT.

 

 

 

 

#NMT  #nomoisturizingtreatment  #TSW  #topicalsteroidwithdrawal  #TSA  #topicalsteroidaddiction  #drkenjisato  #drmitsukosatou  #drshigekifujisawa  #drsatokominaguchi  #atopicdermatitis  #eczema  #tokuko’sroomtofeeluplifted  #アトピー #ステロイド副作用 #脱ステ #脱保湿 #湿疹 #ステロイド危険 #ステロイド安全 #スキンケア #リバウンド #保湿剤 #保湿クリーム #drsachiesumida  #阪南中央病院 #子供の脱ステ

How to get over Topical Steroid Withdrawal asap!

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Topical Steroid Withdrawal warriors,

I see so many people are suffering from Topical Steroids Withdrawal (TSW) all over the world nowadays.  Although patients are struggling to get it over, the majority of dermatologists prescribe Topical Steroids mainly for atopic dermatitis and other skin problems even now.  I believe the time has come that the world should realize the medication cannot heal all but can be toxic for the skin. 

See the pictures at the very bottom of this page if you are ready to know how horrible the side effects of Topical Steroids are.  Since they are hard to see, viewer discretion advised, I placed them at the end on purpose for people who don’t want to see.

 

                                   **************************************************************

 

Well, fellows who saw the pictures……I’m so sorry for showing these ugly pics of mine below but you saw the obvious improvement on the third one of pictures of my lower leg, didn’t you?  It must be hard to believe but I didn’t use any topical products like ointments or creams to get cured.  So I’d like to explain the best way in my life to get away from TSW hell for people who are suffering it.  I fully understand how tough it is so really want to encourage you guys to help out!

 

I had been using the strongest Topical Steroids all the time due to severe atopic dermatitis for more than 50 years since I was 6 months old.  I had never healed with them but wasn’t able to have ordinary life without them because they pull in inflammation barely, meaning, temporarily. However, the medication loses effectiveness gradually over time and had stopped working finally.

After I stopped using it, experienced horrible withdrawals/side effects as you saw below 4 times in the past 5 years.  It developed all over my body actually and I looked like a monster losing hair twice, lost weight 27 lb, 12 kg, in one week due to fluid oozing from the surface of the skin, and so on… 

Sometimes I looked completely red (Red Skin Syndrome) as if the entire body suffered extensive burns, then got crusts all over my body like fish then became red again with oozing fluid like a severe burn then got crusts again and then…..the symptom repeated over and over.

I had such bad side effects due to long-term use of Topical Steroids but most dermatologists still diagnose it as ‘atopic dermatitis’.  Do you also think so to see my pictures? 

No, it’s NOT atopic dermatitis.

We might not be doctors but even non-professionals can say, ‘It is abnormal!’ once seeing pictures below and anyone can tell the medication showed its fangs as a highly toxic substance.  It is an obvious side effect.  Topical Steroids should no longer be used for skin problems. 

 

Downtown Tokyo with the tallest tower ‘Sky Tree’ in the middle

Even if you need to be hospitalized, there aren’t many hospitals to accept TSW in the world and the situation is the same in Japan too.  Patients are like denied refugees looking for hospitals with severely diseased body and I also wasn’t able to find even one at the biggest downtown Tokyo in Japan.  However, fortunately, I was introduced to a hospital by a famous Japanese dermatologist (Dr. Fujisawa) and was administered after the third attempt with acute aggravation of the skin at Hannan Chuo Hospital in Osaka, Japan.

And I finally found the best treatment in my life there…….that is,

No Steroidal and No Moisturizing Treatment (NMT) .

(This is different from Moisture Withdrawal (MW) but more than that.)

It must sound impossible to attempt ‘No moisturizing Treatment’ for people who have super dry skin like atopic dermatitis patients and I also thought the same but a miracle happened with the treatment.  Although it didn’t work very well while I just stopped using Topical Steroids but once I stopped using any moisturizers and did more than Moisture Withdrawal at the same time, my symptom got well miraculously in a short period!!

The 1st pic of the first three (the left lower leg) was taken on Oct 29th, the 2nd one was on Nov 18th and the 3rd one was on Dec 17th in 2015.

Now, you are a witness.  Even if the symptom is this bad, it is cured after approximate 2 months of treatment, in other words, with ‘No Treatment’.

 

I got this miraculous recovery with Dr. Kenji Sato‘s treatment at Osaka, Japan as an inpatient for 3 months.  He is the leader against Topical Corticosteroids here in Japan. 

Osaka, Japan

He doesn’t prescribe Topical Steroids or Protopic (Tacrolimus) or Neoral (Ciclosporin) definitely, almost no medications or no topical products while you are hospitalized actually.  (Except sleeping pills in need, anti-itch medicine per inpatients’ request, and so on…)

 

Well then, what do you do there?  Why it can be cured like this?

 

I’d like to tell you what we do and what we learn at Hannan chuo hospital.

          ****** If you wonder medications above would work, click below site! ******

          The fact that you definitely have to know – For Fellows with TSW

 

At the hospital, inpatients just maintain a regular bedtime, sleep tight, eat well, and work out to increase in metabolism for generating healthy skin.

      

 

To sleep tight during the prime time of the skin, meaning, from 10:00 p.m. to 02:00 a.m., is really important.  You should arrange your daily life to fall asleep at 09:30 p.m. every day.  Don’t be a night owl. 
(Growth hormone that accelerates metabolism is generated from 10 pm to 2 am.  It makes new skin.)  You’ll see a big difference if you can make it.

 

Carve out time for exercise

To work out every day is necessary to boost your metabolism and it accelerates the regeneration of the skin. 

If possible, take more than 1 hour for jogging or wogging or fast walking.

Doctors suggest doing it until getting sweat a little at least.

However, even if you weren’t able to make it, please don’t pick on yourself.

Although this is my own opinion, your state of mind affects your skin condition. 

Keep being peaceful mentally and it is important to gain an early recovery.  There is tomorrow!

 

Dr. Sato does not recommend taking a shower/bath very often

It removes moisture (normal bacterial flora also) from your skin.  The shower washes it away and it runs in the bathtub.  While the symptom is very bad, you shouldn’t take it.  I didn’t know it when I was at home and was taking a bath every day because of oozing liquid from the entire body.  Sometimes crusts covered all over my body peeled off in the bathtub and water turned to be white in a short time.  I was losing a lot of proteins then.  It was very dangerous.

I wasn’t allowed to take a shower for a while, then got approval once 3 or 4 days in the hospital.   It always should be done in a short time.  If you can finish it within a few minutes, it will be good enough but for as short a time as possible anyway.

The main reason to take a bath/shower for us is to avoid infectious diseases diminishing bacteria on your skin.

The warm temperature brings on an intense itch so either way, you should finish it quickly.

Hot springs also can be moisturizers.

 

People tend to wash too much nowadays being swayed by prevailing trends with CM and advertisements but we don’t need to use soap or shampoo when you take a shower since dry skin is a little more difficult to get dirty than normal skin.  If you really want to use it, use soap bars but not liquid body soap.  To make it liquid, they have to use a surface-active agent, which is a petrochemical product.  It is obvious that is not good for your skin.  Liquid soap remains ‘in’ your skin even if you believe you washed it away.  Use a soap bar instead of shampoo if you really want to do it.

 

Once you stopped using Topical Steroids, Not to Moisturize at the same time is VERY important.  You have to do it thoroughly.

Do not wear too many clothes.  It also can be moisturizer.  Even if you got disorders of thermoregulation like freezing cold sensation due to TSW, try to wear less clothing.  I used to wear cotton loose-fitting T-shirts and thin cotton short pants that doctors recommend in the hospital.

Thick top covers/comforters also can be a moisturizer.

No skin cream or lotion or natural oils to moisturize.  You have to hydrate your skin with your natural ability, otherwise,  you need to use them forever and your skin doesn’t work for that awaiting something to be applied from outside all the time. 

(I didn’t put any topical products while I was in the hospital and even now also.)

 

When you scratched, I know it gets worse but just air-dry the part. No need to put ointments or creams. 

Skin recovers the fastest if you just dried it.  (I didn’t know this amazing fact until I meet Dr. Sato.)

If you get oozing fluid from the surface of the skin too much, just apply a piece of clean gauze with the same size as the affected part.  It should be washed and dried in advance with water to diminish the stimulation to the skin.  It is applied instead of a scab on the part so should be 1 piece only but not 2 or more definitely.   If it peeled off partially after a while, cut off the peeled part only and keep remaining the clinging part.   When you take a shower, leave it as is and then dry as is.  You can leave the same gauze for 1 week at the longest.  Don’t remove it on purpose.

 

After you scratched the skin, ooze tends to seep out.  It happens because you might have too much water.  We had a strict restraint for drinking water in the hospital. 

I was allowed 1000 ml total amount of intaking water a day first then 2 months later, 1200 ml including fruits, jelly, yogurt, etc….(This is in my case.)  It was very tough for me because a lot of oozes were seeping out so fast and rolling down from my raw skin all over my body.  I was craving water as if a dying person in a desert….lol 

As I explained above, I lost 12 kg (26.5 lb) in the first 7 days due to continuous running ooze (Ahem….it must be retained for the record at the hospital….lol) but the restriction stopped the ooze that runs from all over my body completely and diminished it coming out after scratch obviously.  If I didn’t have this direction, I would put my life in danger because I was losing proteins from my body until reaching a critical limit due to hypoalbuminemia.  The ooze contains a lot of proteins so letting it run one after another makes you lose the important nutrient factor out of your body.  (Falling a lot of crusts also contain proteins!)

However, I believe this requires medical supervision.  (For example, you can’t find hypernatremia, hypoproteinemia, hypoalbuminemia, and so on by yourself.  Or they might have to prescribe laxative for constipation in case necessary, etc…etc…)  Please keep in mind.  Only medical professions can diagnose dangerous symptoms.

Even after discharge from the hospital, I try not to drink too much water. 

***Dr. Sato’s water restriction method is a safe level for humans that has been carefully considered from a scientific perspective.  Type ‘water restriction’ in the search bar and read everything before doing it.  I highly recommend you watch my YouTube and read posts on NMT Education Group on Facebook too.

 

When you go outside, please don’t forget to wear a hat or use a sun umbrella to shield the skin from UV rays.  Since you don’t put on sunscreen (sunblock/cream/lotion or SPF), always have to have one of them.

                                                    

 

As for food, You can eat anything basically but do not take or eat or apply Liquorice (Licorice), Glycyrrhizin (Glycyrrhiza/Glycyrrhizae Radix) if you saw them in the ingredients.  Names are different but they are the same one and it is included in food, Chinese medicines (TCM)cosmetics, bath additives, etc…  Once you use/have it, your brain would misunderstand as if you began to use Topical Steroids again.

Oh, also, eating any food is ok but please try to avoid salty food.  That makes you feel thirsty and you will have more water.  I didn’t know it first and bought a soy sauce in the hospital but Dr. Sato found it at one glance.  He asked me, ‘What is it?’…….I answered, ‘It is a decoration of my room.’ jokingly….lol

Needless to say, eating well-balanced meals is very important.  Especially, since proteins generate your skin, try to have them consciously.

 

Well, this is all we do in the hospital and with this simple procedure for a few months, all of the inpatients can improve their symptoms very well.  It was an amazing fact for me. 

I had been applying Topical Steroids on affected parts always for more than 50 years for my atopic dermatitis and they had never cured my symptoms but without putting any ointments or creams, my skin improved SO much for the first time in my life.  I fully realized that Topical Steroids are highly addictive and make atopic dermatitis or other skin problems obstinate.

However, the most intense and unrelenting itch known to man is still uncontrollable usually.   When you have such a strong itch as if an attack starts, you scratch the part like mad and it is breath-stopping.  Yes, I know you feel like hollowing the part until reaching to the bones or internal organs and think you’d like to tear the body part off if possible during ‘the attack’.  And even worse, after you scratched, you always feel regret and the part pains…….but it can’t be helped because no one can stop the itch.  It is our big problem.  I guess you try to use ice packs or take anti-itch medicines to diminish it and we do it in the hospital too but they don’t work perfectly as you know. 

 

Dr. Sato says, Don’t worry about scratching.  It is ok to scratch because it is such an itchy sickness.  Once doctors warned not to scratch it to patients, the relationship of mutual trust will be ruined at that moment.  Itch is the major symptom of this sickness so it is ok.  Scratch, and then dry it.  And scratch, and then dry it.  Repeating this same pattern, your skin is getting stronger little by little.  However, please don’t forget that the last scratch should be tender.”

 

….I was moved so much to hear this and knew he was the real doctor.  Everybody had been saying ‘Don’t scratch.’ to me kindly in my whole life history but I know it is an uncontrollable level for human beings.   I can make a definitive statement that no human beings can stop this intense itch, but all of you must have been said, ‘Don’t scratch.’ by doctors, your family, friends, etc…in your life so I believe you also are encouraged by his lines above.  It must be such a relief to hear for patients.  It is ok to scratchPlease don’t feel bad about yourself.

 

I just followed Dr. Sato’s direction in an authentic way in the hospital.  Actually, I couldn’t help repeating to scratch but dried my skin after that every time.  In case I got fluid oozing a lot, applied a piece of gauze and dried it.  As you see in the pictures below, I used to have brown thick crusts on both of my legs and scratched even such parts until all of them fall off……but just dried later in that case too.  I repeated it over and over, again and again……then my skin was getting stronger little by little and finally, I got a miraculous recovery within 3 months.  The third picture below is the result.  (The pictures show only for 2 months result though I was in the hospital for 3 months.)  It was amazing because the treatment was as if ‘No Treatment’ after all. 

Most of the inpatients also get very well with the treatment when they are discharged and they look like having healthy skins.  Additionally, my scratched skin looks stronger obviously now

I would like to declare that you also can get over TSW with ‘No Steroidal and No Moisturizing Treatment (NMT)’.

I knew that we didn’t need to apply Topical Steroids from the beginning

 

Topical Steroids have a strong potential for addiction and make your skin problems be refractory.  And the side effects and withdrawal are horrible.  It is a sound choice you stopped using Topical Steroids for your skin problems!

 

I fully understand how tough Topical Steroid Withdrawal is because I’m the experiencer and if I may say so, I might have experienced one of the severest TSW symptoms in the world.  I’m one of them who used the strongest Topical Steroids the longest globally or worldwide or space wide…..lol 

So, I really would like to disseminate the worldwide misstep of Topical Steroids.

Steroids should be used only for life-threatening situations.  Immunosuppressants shouldn’t be used for skin problems like Atopic Dermatitis.

 

I’m afraid to say this but, it is a long journey to get over TSW, however, once it happened on your body, ‘you’ have to get it over anyway and you are the only one to make it.  You just need to understand that it takes time.  I’m sure you know it but we tend to forget it. 

If it is sure that you won’t get complete heal tomorrow, it’s better to enjoy today’s life finding blessings.  There are grateful things here and there around you!  Even if you cried over, or even if laughed a lot, the next day’s symptom is the same so it is a waste of time to spend your time feeling sad.  Time is your life. 

 

For the fastest recovery,  I recommend the therapy above.  As long as I know, all of the other patients who challenged the treatment won’t see doctors who prescribe Topical Steroids forever and will take the learned therapy ‘No Steroidal and No Moisturizing Treatment (NMT)’ in case they got flare again.

 

Trust your body’s natural healing ability You will be ok without medications.   I’m not scared anymore even if I got the same symptom again in the future because I learned the most effective way above.

 

Try to stay positive in any situation!  Mental health status is very important for fast recovery. 

   

It doesn’t need to be perfect.  If you found 1 tiny good part, bless it!  

When you say, ‘This finger is really bad….’ to someone else, you are missing something. 

Bless other 9 fingers.

 

Smile first, then you can be happy.  It brings you happiness.  Smiling is not the thing to do after you became happy.  The order is important to make your life wonderful.

 

You’ll be ok soon.  Hang in there!

Hugs,

Tokuko

 

  ***I recommend you try the therapy with a doctor who you can rely on because sometimes you might get infections that spread, hypernatremia due to extreme water restriction, hypoproteinemia and hypoalbuminemia due to losing too much protein and some other sicknesses that might happen secondary.  I used to see dermatologists often even while I was taking bed rest at home.  It doesn’t matter if the derm can take care of TSW or not.  Only medical professions can diagnose dangerous symptoms.  ***

***Before you initiate NMT, please try to read other articles regarding TSW from the ‘POSTS IN ENGLISH’ tub.  Don’t miss a thing to accomplish it and get the fastest results.

 

☟ Viewer discretion advised Severe Dermatitis Pictures below

 

 

 閲覧注意(皮膚炎の写真があります)

 

 

 

☟   Viewer discretion advisedSevere Dermatitis Pictures below

 

 

☟   閲覧注意(皮膚炎の写真があります)

 

 

☟   Viewer discretion advisedSevere Dermatitis Pictures below

 

 

☟ 閲覧注意(皮膚炎の写真があります)

 

 

<<<My left lower leg >>> 

From Oct 29 to Dec 17, 2015 at Hannan Chuo Hospital in Osaka, Japan

Oct 29, 2015  (Day 25)

Nov 18, 2015  (Day 43)

Dec 17, 2015 (Day 73)

 

 

 

<<<My left ring finger>>>

I did no treatment during the period below.  Just dried even after I scratched.

Scratch and dry and scratch and dry and scratch….I didn’t put any topical products or bandages too.  Even if it was bleeding, I just dried.

And finally…..see the last picture!  The skin became way too strong!  It is amazing!

 

 

 

 

 

 

          ********If you are brave and would like to see more pictures of my symptoms and improvements, go to another  

      page below.  It is written in Japanese but pictures are at the very bottom of the page.

 

               ☟ Click here. ☟

                The 4th Happy Anniversary after stopped using Topical Steroids - 脱ステ4年記念日に - ステロイドをやめて変わったこと                 

脱ステ4年記念日に - ステロイドをやめて変わったこと

 

 

            *******You can see kids’ improved pictures in a study below.

 

    ☟ Click here. ☟

             A prospective study of atopic dermatitis managed without topical corticosteroids for a 6-month period 

 

You can manage Atopic Dermatits without Topical Corticosteroids!

Copyright © 2017  Tokuko Abfab All Rights Reserved.

 

Downtown Tokyo from the sky

 

 

Spanish Version

Cómo superar el rebote de esteroides tópicos lo antes posible

Arabic Version

خلص من أعراض الانسحاب من الاستوريد الموضعي (الكورتيزون الموضعي) بأسرع وقت ممكن

Dutch Version

Hoe je zo snel mogelijk geneest van TSW of Topical Steroid Withdrawal!

Chinese Version

怎樣儘快從「類固醇反彈」康復

 

Serbian Version

Kako što pre prevazići sindrom odvikavanja kože od topikalnih steroida (TSW)

Japanese Version

脱ステのリバウンドから最短で脱出する方法 - 徳子編

 

 

Getting the knowledge in the below articles is essential for NMT!

English Version

What can be Moisturizers? – For fellows launching ‘No Moisturizing Treatment (NMT)’

Russian Version

Что может являться увлажнением? – Для пациентов, начинающих «Безводную терапию» (на англ. No Moisturizing Treatment – NMT)

 

Please read all articles in the RECOMMENDED POSTS columns to accomplish NMT.

Make your personal notebook by yourself to learn everything.  Your knowledge will help you!

 

*************************************

 

Bilingual readers,

A lot of readers all over the world are waiting for your support to translate this blog.  Please let me know if you can help them with your ability!

Thank you!

 

**************************************

How To Learn NMT (No Moisturizing Treatment)

Currently, there are no NMT books except in Japanese.  (Due to various social circumstances, it is extremely difficult to publish translated versions.)  However, for TSW sufferers who don’t have any effective solution and have been struggling in agony all over the world, I started to share NMT protocol in English getting approval from Dr. Kenji Sato because it has been showing great results for more than 3 decades in Japan.  He has been assisting me to not provide incorrect NMT info thinking about sufferers in the world. 

This blog spread all over the world very rapidly and actually, a lot of sufferers learned NMT from this blog healed/improved very fast.  Then they started to share it spontaneously through SNS, their own blogs, YouTube, etc…It is great to pay it forward, however, there are a lot of incorrect NMT info that prolongs your symptoms on SNS too.  Unfortunately, due to this fast worldwide dissemination, I can’t catch up with everything to request correction. (Even the name, ‘No Moisturizing Treatment’, is incorrect very often.)
Since this is the medical information, it should be the correct/accurate for sufferers’ faster healing.  Learn NMT from the source below first to not prolong your symptoms with incorrect info.  Dr. Kenji Sato reviews them below as much as possible thinking about sufferers in the world so you can get correct information only from them.  (All NMT doctors have been reading this blog!) 
Again, getting the correct knowledge accurately is the key to your faster healing!  Learn the protocol seriously making your personal note (Do not use others’ ones.  None of the personal notes have been approved by Dr. Sato yet.) and revisit below info regularly because you don’t have NMT doctors there.  Be a master of NMT!

 

<<< Non-Profit Organizations>>>

Tokuko’s Room★ (YouTube)

(YouTube:  To learn the NMT protocol.  I add both Japanese/English subtitles as much as possible when I have time and the status is at the bottom of video in the explanation column.  Many of them are translated into Spanish.  There are web translations in other languages.) 
NMT super pediatrician Dr. Mitsuko Satou‘s videos also are in this channel.

YouTube 【Tokuko’s Room】

Must-see:  How to Get Over TSW ASAP! (YouTube version)

●Must-see:  The Mix List of NMT Pediatrician Dr. Mitsuko Satou’s YouTube 

●Must-see:  Kids’ and Babies’ NMT Journeys

 

  (JAPANESE)搔かせても大丈夫!  

  (ENGLISH)It’s Ok to Let Your Child or Baby Scratch Freely  

  (español)Está Bien Dejar Que Su Bebé O Niño Se Rasque Libremente   

 

Tokuko’s Room To Feel Uplifted★ (This blog)

(English Version: To learn NMT basic protocol.  Read all articles in the ‘RECOMMENDED POSTS IN ENGLISH’ corner at least.)

http://tokuko.chu.jp/tokukonoheya/menu%e3%80%90posts-in-english%e3%80%91/

(There are Spanish version, Arabic, Chinese, Russian, Dutch, Serbian, Vietnamese, etc…for better understandings.) 

 

Tokuko’s 365 Days of Pep Talk for NMT★ (The other blog in English)

(Tokuko’s advice for sufferers to learn NMT.)

http://tokukospeptalk.blog.jp/

 

NMT Education Group★ (Facebook)

(NMT official Group: This is designed for self-studying of NMT instead of NMT books)

*Please answer 3 questions to join.  To protect group members, we need your agreement.

https://www.facebook.com/groups/NMTeducationGP

 

The NMT Healed Club★ (Facebook)

(NMT official Group: This is for encouragement and learning the healing process visually with before and after pictures.)

*Please answer 3 questions to join. We have to protect group members.  Without your agreement, admins need to disapprove your request.

https://www.facebook.com/groups/NMTHealedClub

 

For Children/Babies

Please don’t miss these articles below too.
Healing Happens to Kids and Babies with NMT

Healing Happens to Kids and Babies with NMT

The Key Tips Of NMT For Babies And Children

The Key Tips Of NMT For Babies And Children

☟These 2 videos below also are must-sees for parents!☟

The Mix List (Playlist) of Dr. Mitsuko Satou’s YouTube
It’s Ok To Let Your Child or Baby Scratch Freely!

 

Tokuko’s Room To Feel Uplifted – Facebook★ (Facebook)

(Facebook ‘Read Only’ page including lecture meetings’ info)

https://www.facebook.com/TokukosRoom/?ref=page_internal

 

***Learn NMT from the source above first. 

 

◆The Guidance◆ 

Where is the Guidance of NMT?

◆The Guidance for Parents◆

NOTICE to ALL Parents Who Try NMT for Children and Babies

 

 

 

For the awareness of TSW, please read my article on the online news from Australia.

Tokuko’s article on ‘NORTHERN COMMUNITY NEWS’ (Australia)

https://www.northerncommunitynews.com.au/topical-steroid-withdrawal-nmt-no-moisturising-treatment/

 

***************************************************

 

IMPORTANT:  

When you share the info of NMT, please use the correct name, No Moisturizing Treatment’, so that sufferers can reach the source.   (‘moisture‘, ‘moisturizer‘ ‘therapy‘, etc…are incorrect and sufferers in the world take a longer time to reach the source.  It is a big problem currently.)

Also, when you share NMT knowledge, please clarify if it is your own experience if you add your experience too. 

Since your own experience also tends to be regarded as NMT protocol, clarifying it is essential.  We receive tons of questions from all over the world regarding things that NMT doctors or I have never said, and spending time to correct them prolongs the dissemination.  NMT doctors and I really want to disseminate the correct NMT for your healing. 

Thank you.

 

Video Version of ’How to Get Over Topical Steroid Withdrawal ASAP!  ★

 

 

 

 

#NMT  #nomoisturizingtreatment  #tokuko’sroomtofeeluplifted  #atopicdermatitis  #eczema  #hannanchuohospital  #kenjisato  #mitsukosatou  #shigekifujisawa  #satokominaguchi  #nmteducationgroup  #thenmthealedclub

情けは人の為ならず - All expenses paid 30 years ago

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心温まる、海外の感動のビデオをご紹介します。

先に日本語訳を入れましたので、まず、読んでみてください。

そして、その続きは下のビデオをクリックしてご覧くださいね。

 

・・・この父娘の行方は、どうなるのでしょう・・・・・?

 

     *************************

 

場面は、商店から万引きをしようとした少年を責める女性の怒鳴り声から始まります。

 

「こっちに来な!この泥棒が!!」 Come out here, thief!

 

「見せな!何を盗んだんだ?」 Let me see! What did you steal?

(少年の盗んだ薬品を見る。)

 

「これで何しようっていうんだい?答えな!」 What are you going to do with this? Answer me!

 

少年「・・・ママに、あげたいんだ・・・。」 Give it to my mom…

 

食堂店主「ちょっと待った!」Wait a second.

(一部始終を見ていた近所の食堂店主の男が少年を怒鳴る女をたしなめながら出てくる)

 

食堂店主「君のお母さんは病気なのかい?」 Is your mom sick?

(下を向いてうなずく少年の前で、黙って盗んだ薬代を怒鳴っていた女に支払う食堂店主)
 

「もう、二度とやるんじゃないよ!!!」 And don’t do it again!

(お金を食堂店主から受け取り、去っていく)

 (食堂店主は店を手伝う幼い娘にむかって言う)

食堂店主「かわい子ちゃん、野菜スープも持ってきてくれ。」 Sweetie! Veggie soup.

 

(食堂店主は娘の持ってきた野菜スープと買った薬を袋に入れ、

黙って一度ゆっくりとうなずきながら少年を見つめ、袋を渡す)

(少年はその袋と、目の前の食堂店主の顔をじっと見た直後、ひったくるように袋を取り、走ってその場を去る)

 

 

(30年の時が流れ、店主は自分の食堂で変わらぬ日常を送っている)30 years later.

 

 

食堂店主「いらっしゃい。中でおかけください。」 Have a seat.

(調理しながら客を案内する。)

 

「お父さん!」 Dad!

(娘は、物乞いに来た男が一人、店の前にいることを父親に知らせる)

 

(食堂店主は黙って料理を袋に入れて、物乞いの男にあげる。)

食堂店主「はい、どうぞ。」 Here you go.
  
 
食堂店主「さあ、いいよ。次の注文は?」 Ok, next order.

 

(そう言った直後、めまいを感じた店主はその場に倒れる。駆け寄る娘)

 

(場面は変わり、病院にて酸素マスクをしてベッドに横たわる食堂店主と、

その傍らに立って記録を取りながら患者を見下ろす医師)

 

(廊下で看護師と話した後、請求書を受け取る娘)

 

『医療費の明細・請求額792,000バーツ』 Summary of medical expenses.  Total: 792,000 Baht

(請求書の数字を見て愕然とする娘。)

 

(とても支払えそうにない高額の請求書を見つめ、一人自宅で泣く娘。

父と二人でずっとやってきた休業中の食堂の厨房が、悲しさに拍車をかける)

 

(場面は変わり、診察室にて、医師から父親の病状の説明を聞き、黙ってうなづく娘)

 

(場面はまた変わり、長年父娘で営業してきた食堂の前に

『緊急 売却』の文字と連絡先電話番号の張り紙) “Urgent! For sale 0846661325”

 

     *************************

 

・・・父親の医療費を支払うために、父娘で細々と経営してきた食堂を売却する決心をした娘。

そして、何も知らずに眠っている病床の優しい父親・・・。

この二人の行方は?

ビデオで続きをご覧ください。

 

 

 

さて、ご覧になっていかがでしたでしょうか?

上の訳の続きです。

 

父親の病床でうたた寝をしてしまった娘が目覚めると、手元になぜか手紙が。

不審に思いながらその紙を見ると・・・

 

『医療費の明細・請求書』 Summary of medical expenses.

 

『総額 0バーツ』(残額ゼロ) Total: 0 Baht

 

 

「すべての支払いは、30年前に支払われました。」 All expenses paid 30 years ago.
 

「3パックの痛み止めと・・・・」 With 3 packs of painkillers.

 

「一袋の野菜スープで。」 And a bag of veggie soup.
 

「敬具 ドクター・プラジャク・アランソン」 Best regards, Dr. Prajak Arunthong

 

 

“与えること、それは最高のコミュニケーションである。”  “Giving Is The Best Communication” 

        “All expenses paid 30 years ago”

           Licensed by YouTube

 

そう、なんと、父親を担当して助けてくれた医師は、

あの時の、母親の為に万引きをした少年の成長した姿だったのです!

そして、巡り巡って、今度は助ける側として彼らの運命の中に登場したのです・・・。

 

     *************************

 

こういう話を見聞きすると、

情けは人の為ならず

という言葉を思い出します。

 

“人に情けをかけることは、相手の為にならない” という解釈をする方も多いですが(H22文化庁調査では45.7%)

そうではなく、実はこれは、他人に情けをかけることは、巡り巡って自分に戻ってくるものですよ

という意味なのです。

 

スピリチュアルな考え方でもありますが、

出したものが返ってくる。

出したものしか返ってこない

・・・私はそう思っています。

 

決して、返ってくることを期待して行動するわけではありませんが、

目に見えない電波がそこいらじゅうに飛び交っているのを、チャンネルのリモコンでキャッチするように、

あるいは、ラジオのチューナーを合わせるように、

自分が8チャンネルを選べば、8チャンネルをキャッチします。

選んだのは自分です。選んだから、その映像や音が目の前で展開するのです

 

怒りや憎しみ、不平不満などを心に抱えて生きていると、

同じ波動の物をゆくゆくは受けとります。

一方、感謝と愛情で日々を過ごすと、その出したものと同じ波動を受け取る日がいつかやってきます。

 

つまりは、人生を切り開くのは自分

 

いやなことをしてきた相手を恨むのは簡単ですが、

それでも、恨まないこと(違うチャンネルを選ぶこと)は可能なのです。

いい勉強になった、と、自己を見つめる方を選ぶのも自分の意思、心に愛のある方の選択です。

 

「お金持ちになりたい!」と神がかり的に拝んでも実現しない、(笑)

あるいは、働いても働いてもお金がない、と、愚痴を言っているよりも、

それでも結局、今日も食べ物を食べれたことにありがたく感謝し、

心が幸せに満たされる選択をすることは可能です。

地球上で毎日4万人の餓死者がいると言われているのに、

太り過ぎを悩みながら、お腹まで出っ張らせて、

「お金が足りない。」とまだ私たちは不平不満を言っています。

食べられただけでも幸せなのですから、不平不満よりも幸せの方にチャンネルを合わせられるはずです。

 

温かい思いをいつも心に抱いて、

心に愛のある選択を続けていけたなら、

いつかその思いは、何らかの形であなたのところに返って来ます。

 

池に投げた石の波紋はゆっくりと外に広がって行きますが、またゆっくりと内側へ戻ってきます。

あなたの投げた情けや温かい思いは、波紋のように、ゆっくりと時間をかけてあなたのところに戻ってきます

一人ひとりの心にキャンドルの火をともすように、愛で心を満たして生きていけたらステキだな・・・・。

そんな風に思う私です。

 

今日も素晴らしい一日を!!

 

 

 

The fact that you definitely have to know – For Fellows with TSW

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It looks like a lot of fellows who have been suffering from Topical Steroid Withdrawal are wondering if they can use other medications other than Topical Corticosteroids.

Dr. Kenji Sato who is the leader against Topical Corticosteroids in Japan and the advocate of NMT (No Moisturizing Treatment) warns that we shouldn’t use both Protopic and Neoral = Cyclosporin besides Topical Steroids.

They act like the same with Topical Steroids, meaning, you would have horrible withdrawal.

 

Please remember these 3 names below.

Topical Corticosteroids (Topical Steroids)

Protopic (Tacrolimus)

Neoral (Cyclosporine=Ciclosporin)

 

Per his book, although a lot of people expected a completed cure from Eczema/Atopic Dermatitis with Topical Steroids in the past, they didn’t work as expected after all, so pharmaceutical companies started to sell ‘Protopic‘. 

However, it also didn’t work very much. 

And even worse, since both of them didn’t show good results, they had to include ‘Neoral‘ = ‘Cyclosporin‘, immunosupplessant for organ transplants, as the thrid curative medicine.

They are used to prevent the rejection of organ transplants and bone marrow transplants by suppressing the immune system.

 

Do you think we have to use immunosupplessants that was made for organ transplants just for Eczema/Atopic Dermatitis? 

The answer should be ‘No’.

 

They might look as if they cured your symptom first but you’d have bad withdrawal as well as Topical Steroids.

 

Before you use/take medications, please make sure if you are not prescribed such ones above because they may be available under multiple brand names or in several different forms usually.

 

Also, sometimes Chinese medicine (TCM)has something that acts in the same way as Topical Steroids in ingredients.

 

Below is the one but it has several different names and is included in food, Chinese medicine, cosmetics, etc… 

I listed its names below.  Please do not take/use them as follows;

 

  • Liquorice
  • Licorice
  • Liquorice root
  • Glycyrrhiza
  • Glycyrrhizae Radix
  • Glycyrhiza glabra
  • Glucyrrhiza uralensis
  • Glycyrrhizin
  • Amakusa
  • Amaki
  • Kanzo
  • 甘草

 

Especially, Glycyrrhizin is included in many cosmetics.

Even if you got over the withdrawal, if you used/took it later without knowing, you ‘might’ have to begin all over again.  I didn’t know it and was taking licorice in Chinese medicine before.  Every time I stopped taking it, I got acute aggravation and realized that it was true afterward.

 

It should be acknowledged that Topical Steroid Withdrawal was a very real condition by all dermatologists all over the world.

The medical profession shouldn’t have its eyes closed to this anymore and should stop prescribing Topical Steroid for skin problems.

 

I just hope no one else would have to go through this agony that is artificially generated by human beings….forever! (^o^)o

Wishing your healing happens in the near future!

 

Sending Big Hugs,

Tokuko

 

 

Copyright © 2017 Tokuko Abfab All Rights Reserved.

 

***If you’d like to learn NMT, this video that Dr. Kenji Sato has reviewed is a must-see to get correct protocol and to not prolong the symptoms.

Your strong determination, tremendous efforts to master NMT and perseverance are required to get expecte results (faster healing) with NMT.

 

 

 

#nmt  #nomoisturizingtreatment  #tsw  #topicalsteroidwithdrawal  #TSA   #tokuko’sroomtofeeluplifted

A Healthy Immune System

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(How to avoid calling in sick)

When we fall ill or “catch a cold”, we often try to remember that co-worker that came to the office coughing.

We want to believe it was “they” who transferred and spread germs that caused others to get sick.

But it’s simply not true. 99.9% of the time, it’s your fault when you get sick.

 

The invisible microbes and germs that cause colds are constantly all around us.

It’s possible to breathe them in at anytime and anywhere.

If you catch a cold, it doesn’t necessarily mean you caught it from an ill co-worker.

So exactly “how” do we catch a cold?

 

When your immune system, body’s natural defence, is imbalanced or weaken, you will be more susceptible to germs and viruses.

Germs and viruses will cause to you fall ill—catch a cold.

No matter how healthy you are, it’s still possible to catch a cold.

Healthier people are less susceptible to germs and viruses than people who do not lead a healthy life-style.

 

Having a healthy immune system enables you to recover from sickness very quickly.

The human body is designed to fight germs and recover naturally.

Let me explain our body’s natural healing abilities.

 

How a Cold Heals

When you have a cold, you always feel tired and exhausted.

This is because your body is using all its energy to fight off the virus.

When you have a runny nose, it means your nasal membranes are damaged.

Your nose begins to run trying to wash away the virus.

Then you feel cold (the chills) along with having a fever.

Part of your body’s response to infection is to create a fever by raising body temperature.

Chills are caused by rapid contraction and relaxation of the muscles to increase body temperature.

A fever can help to kill infectious pathogens or prevent their spread because most pathogens that cause infection survive best at a normal body temperature.

 

How Wounds Heal

The moment you cut or tear a blood vessel, the body’s healing properties spring into action.

This is how it works.

Blood vessels leading to the wound tighten to reduce the flow of blood to the injured area and at the same time, the blood wash away germs.

Platelets rush to the scene.

These sticky blood cells clump to each other and then adhere to the sides of the torn blood vessel, making a plug.

The plug blocks air and bacteria and will eventually fall off or will be reabsorbed into the body once healing is complete.

 

The Autonomous Nervous System

Autonomic nervous system performs the function of carrying information between the central nervous system of the body and various organs of the body which function automatically without conscious efforts of individual.

This included automatic functions of the body like beating of the heart, breathing, and digestive system.

The autonomic nervous system is further divided in sympathetic system and parasympathetic systems.

The sympathetic system facilitates increased rate of body activities during period of awakening.

Usually, during the day time, while you are working, getting angry, being irritated, feeling tense, or watching computer screens, being under a lot of stress, it swings to the sympathetic nerve side.

 

As it were the ancient time, it is like when a man is fighting to get a game, the sympathetic nerve functions then.

While it is at the sympathetic nerve side, a lot of granulocytes are generated in white blood cell.

They kill germs, protect against infection and work to recover from injuries when you bleed.

As if it were in ancient times, when a man had to hunt & fight wild animals for his food, this is when the sympathetic nerve would function.  Running down prey, their bodies needed to be cured from wounds caused by scrapes and falls and being bitten by animals, so generating granulocytes is an instinctive capability.

 

However, if your body generated too many granulocytes, it would cause destruction of tissues and you would get a cancer or a gastric ulcer or a duodenal ulcer or diabetes and so on.

Because when granulocytes finish their duties, they splatter active oxygen on mucous membrane and this destroys tissues with strong oxidation power.  

The purulent inflammation as acute pneumonia, acute appendicitis, mouth inflammation and pimples set up with the same basis.

 

On the other hand, the action of parasympathetic function is opposite of the sympathetic system, like slowing down of heart beat and diverting blood to digestive system.

When it’s getting dark or while you are sleeping or taking a break or eating, meaning, while you are in relax mode, parasympathetic nerve become predominant in autonomic nerve.  

It’s like when a man takes a break seeing a fire in fireplace after his fight against a prey animal in ancient time.

In this situation, your body generates lymphocyte cells instead of granulocyte in white blood cell.

Lymphocyte cells kill germs of a cold and various kinds of viruses and sometimes they even kill cancer cells in your body.

Human beings have instinctive ability to heal that has been cultivated since ancient time.

Autonomous nerve controls discharge and secretion of organs.

If tense of sympathetic nerve continues and parasympathetic nerve was restricted for a long time, your body couldn’t function for elimination.

It causes constipation, disorder of urination, gall stone, kidney stone and so on.

And even worse, since such condition weakens NK cells that attack cancer cells, your body would allow growth of cancer cells.

However, lymphocyte cells kill the invaders like virus and even cancer cells, vice versa

 

Autonomous nerve adjusts circulation too.

Sympathetic nerve’s tense makes your circulation worse.

Blood is supposed to send oxygen and nutrition to the cells to your entire body and at the same time, it collects and exhausts all of waste material and toxic substance.

If this cycle was disturbed, necessary nutrition doesn’t disseminate and waste material and toxic substance accumulate in your body.

It would cause stiff shoulder, headache and noise in the ear.  

Sometimes it brings on a fatal sickness like a stroke and a heart attack.

 

Bad circulation also causes numbness, joint pain, neuralgic, paralytic face, rheumatism, hemorrhoid, varicose vein, gum disease, hair loss, dizzy, high-blood-pressure, angina, atopic dermatitis, menstrual cramps, fibroid, endometriosis and so on.

    

 

Nowadays, it leads to clear findings that even backaches develop due to anger and big stress, I mean, when the autonomic nerve leans toward sympathetic nerve side, it sometimes causes the pain of entire body.

Therefore, once lymphocyte cell was diminished, the ability of white blood cells to fight against virus is weakened and you can easily catch a cold.

The cells in your body would have low energy in that case so you would feel fatigue, lose concentration and get insomnia.

 

And even worse, you can’t stop growing proliferously of cancer cells.

Diminished lymphocyte cell brings down a tendency to get sick easily and challenging disease.

The balance between these two nervous systems is controlled by the central nervous system and what you think and what you do affect automatic nerves.

 

Develop a Healthy Immune System

Human beings body generates approximately 10,000 cancer cells every day.

You have them in your body now definitely.

However, why you don’t get a cancer?

Because lymphocyte cells are killing them every day while parasympathetic nerve is holding a prominent position in autonomous nerve.

Nevertheless, if you spend days with too much stress….It would harm the immune system and you would get a cancer definitely.

We can’t ignore this fact that approximately 50% of the time, Japanese develops cancers.

 

As I explained, tense of sympathetic nerve brings on a lot of sickness, therefore, if you take actions or way of thinking to dominate parasympathetic nerve of autonomous nerve, you won’t get sickness or can recover from it very quickly.

 

Please don’t get angry or blow up or get irritated.

Live without criticism, complain and moan.

Stop whining.

 

In such mental situation, autonomous nerve swings to sympathetic nerve side and diminish lymphocyte cells that fight against sickness.

 

Your negative thinking, bad temper and gloomy character bring on sickness and disease.

For example, most of patients who recovered from their cancer always say, “It was great experience for me to get a cancer. I learned how I had been blessed but I didn’t realize until I get sickness. I appreciate the cancer.”

When you are seized with gratitude from the bottom of your heart, your body generates lymphocyte cells.

 

Now you realized how thinking way affected your body.

It gives considerable influence for your health.

 

Take a look at your food intake.

Eat good food (Not too much!).

Sugar, especially refined sugar, is one of the biggest villains.

One spoon of refined sugar can halt the immune system responses for six hours.

Sleep well, relax, think enjoyable things, feel grateful, keep being peaceful.

Laugh out loud, smile all the time.

 

These are small ways but continuance of these very positive ways boosts the immune system.

The body’s ability to fight disease is greatly affected by our daily habits.

 

If you think you are a hotheaded person or touchy or irritable or short temper or having a warped disposition or apt to complain, think twice about yourself.

Put on your considering cap like what you do and what you say.

See bright side all the time.

Build your body’s ability to protect itself from becoming sick.

 

Remember this.

In many cases, it’s your fault when you get sick.

Keep on smiling!

 

 

 

 

 

#Tokuko’s Room to Feel Uplifted    #tokuko’sroomtofeeluplifted

You can manage Atopic Dermatits without Topical Corticosteroids!

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Have you seen this video below?

 

Japanese dermatologists announced a prospective study for Atopic Dermatitis/Eczema.

You can manage them without Topical Steroids!

You’ll see amazing improvements in 6 months with kids’ pictures in it.

TS has a strong potential for addiction and its side effects are horrible.

Everybody in the world needs to know the fact.

Hope many people disseminate this information.

Your action will help future children all over the world!

 

Thank you in advance for your cooperation!

 

 

 

 

 

#Tokuko’s Room to Feel Upliftted       #tokuko’sroomtofeeluplifted

脱ステ4年記念日に - ステロイドをやめて変わったこと

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The pictures of my TSW (Topical Steroid Withdrawal) symptoms are at the very bottom of this article.  Thanks.

何十年も強いステロイドを使い、最強のものが効かなくなり、

徐々に、徐々に相当な時間をかけてステロイドを減らして行き、

完全に「今日からはもうゼロ!」と、決めた日からまる4年が過ぎました

今日は私の脱ステロイド4年の記念日です♪

 

壮絶なステロイドの副作用を乗り越えて、

現在では症状も落ち着き、

旅行にまで出かけられるようになりました。

ステロイドをやめて

ほんっとうぅぅぅぅぅ~~~によかった

と心から思う日々です。

 

生まれてちょうど半年の日、親戚の運動会に連れられて、まる一日炎天下で過ごしたらしく、

全身真っ赤になった私は、その日からアトピーを発症したそうです。

アトピーなんて名前を誰も知らなかった時代です

当時、高価だったステロイドは、皮膚科の先生が直々に、

「徳子(とくこ)ちゃん。これはアメリカから来た、ものすご~く高い薬なんだよ。これを塗ってたらよくなるからね。」

と、よく言いながら小さなチューブから塗ってくれていたのを、3才くらいからはしっかり記憶しています。

もちろん両親も、よかれと思って、高価な薬でも処方されるままに私に塗ってくれていました。

当初の私は、目と鼻と口以外は全身包帯というミイラ赤ちゃん。

たまに包帯をしない日があると、私は病院でキョトンとしていたそうです。(笑)

 

長いアトピー人生の中で、だんだん、だんだん強い薬が処方されていきましたが、

例えば強い薬を指に塗ることで、全身の症状が抑えられるほど、ステロイドは強力でした。

ですから、体に出た炎症は弱いステロイドでなんとかなっていました。

 

社会人になってからは、キャビン・アテンダントという職業柄、海外などを飛び回る為、

引き続き強い薬で抑えるしかありませんでしたが、実際、薬なしでは炎症が相当ひどくなります

特に、よく使う指が相当ぐちゃぐちゃになるので、やはりそのひどい症状を診ると

どこの病院でも一番強いステロイドを処方されました

何しろ、紙1枚すら持てなくなるほど悪化して痛みましたから。

 

 

今思うと、この時点ですでにアトピーではなく、ステロイドの副作用だったと思われます。

ただれ、とかいうレベルでは語れないひどさになったりしていました。

しかし、強いステロイドを塗ると、炎症は体内に閉じ込められ

翌日には夢のように炎症が引いていました。それほどすごい力がある薬ではあるのです。

 

ステロイドはよくないと当時も騒がれていましたが、

ないと生活できませんでしたから、まあ、やむなし・・・と思って使い続けていました。

他は健康に自信があったので、(私に限って、副作用なんて大丈夫でしょう。)と前向きに信じ込んで、

ステロイドの(治すのではなく)炎症を抑え込む力に頼っていました。

 

しかし、強い薬、さらに強い薬・・・と処方され、行きついた最強の薬を、

発売から30年間使った辺りで、効果が全くなくなってきました

塗っても、塗っても、何の変化もないどころか、悪化します。

そのため、時間をかけながらではありましたが、最終的に完全にやめたのが4年前

 

トータル52年間のステロイド使用でした。

 

このステロイドの副作用というのは壮絶なものがあって、

過去4年間、化け物化が4回 (゚Д゚;)。入院が1回。

 

 

あちこち探してみましたが、ステロイドを使わない入院施設が東京にはなく

大阪の阪南中央病院を紹介されて緊急に入院させて戴きました。

そこで、主治医の佐藤健二先生と担当医の山田貴博先生(現・天下茶屋あみ皮フ科クリニック)とから、

皮膚炎の対処の仕方、改善方法を徹底的に教わりながら乗り越えました。

本当に私の長い皮膚炎人生の中で最高の素晴らしい治療方法を教わりました。

 

入院時の症状は、すでに3度目の悪化でしたので、1回目ほどのひどい症状ではありませんでしたが、

それでも、どう見ても、同じ副作用による入院患者の中では一番症状が重かったと思います。

 

この入院で、ここまでひどい皮膚の症状は、アトピーではなくステロイドの副作用だったのだ

ということをつくづく思い知り、

薬を一切塗らない治療をし、その症状の対処法を一から丁寧に教わり、

私の目も当てられないような症状 は、

入院中の3か月の間に奇跡的劇的に改善されました

私は、これを自分に起きた奇跡だと思っています。

 

あれほどステロイドを長く塗っても治らなかったのに、

何も塗らないでひどい炎症が消えたのですから。

退院時は、入院当初のひどい症状の写真と、キレイに治った実際の私を見た何人もの他の患者さん達が、

「ここまでよくなれるんですね!」と、感動して泣いてらっしゃったほどの改善でした。

 

地球規模でも最長クラスのステロイド使用暦最強のステロイドをも使ってきたものですから(/o\)

その副作用の壮絶さと言ったら、他の方と比になりませんでした。

 

脱ステ重症自慢(?)は、アトピー患者の “あるある” ではありますが(笑)、

少なくとも、これを読んでくださっているほとんどの方より長く、

しかも最強のステロイドを使い続けましたので、

私の脱ステ重症自慢(?)は納得して聞いて頂けるかもしれません。(゜∀゜)・・・??

 

今、脱ステのリバウンドの真っ最中の方もおいででしょうし、

ステロイドの恐ろしさを患者視線で広めるためにも

まず、私の最悪の副作用の症状がどんなだったのかをお話しさせてください。

 

患者の皆さんが一番気にする顔の炎症ですが、私の場合、

(顔の皮膚って、ここまで伸びるんだ~~~~。ほう~~~っ。)(”◇”) と、

感心するところまで腫れました(笑)。

 

まぶたの上下がパンパンに腫れますので、目は指で開かないと開きませんでした

腫れすぎると押さえつけられて、目が閉じたままなるんです。

頬も腫れ、鼻が両頬に埋もれているような見た目です。

 

口も腫れ、乾燥、亀裂やらも相まって、ひどい時は1cmくらいしか開かず

食べ物はケンタッキーのフライドポテトサイズに細くしないと食べられませんでした。

(マックのポテトではなくケンタのポテトです。少しまし?)(^◇^)

この姿は、(自分自身では鏡を見ないと顔が見えませんから)本人以上に、見ていた家族が切なかったようです。

本人は、たまに鏡を見ると、全く別人の不細工顔になっていたので、(ぷっ。)( *´艸`)と毎回噴き出して笑っていたのですが・・・。

 

体調が少しいい時に外に用足しに出たりしましたが、

10年来の友人も、職場の同僚も、

声をかけても私を私と判別できませんでした

私だとわかった後には

「どどど・・・どうしたの!!!なんで、そんなになっちゃってるの!!!!」と、

ひっくり返るほど驚いていました(笑)。

(本当に驚いた時に、人ってどもるものなのですね。笑えましたが・・・。)

まあ、これだけでもハロウィンの怖めのお化けの仮装状態。「一体、誰?」くらいの変貌を遂げるんです。(笑)

 

見た目だけでなく、皮膚も真っ赤になったり、どす黒い色になったり、

時には顔中大きなうろこ状の皮(痂皮)で、顔面総‘白無精ひげ’(?)みたくもなります。

そうなると、もう、人間の顔ではありません。魚か?私は?(笑)みたいな状態 ( ̄▽ ̄)。

 

それだけならまだしも、髪も抜けます

見事に、毒を盛られた人(?)のように、

毛根のない髪がパラパラ力なく落ちます。

私の場合、ハゲはこの4年で2回やりました。

あえて脱毛と呼びません(笑)。

まあ、その時は悲観してもしょうがないので、その面白い髪型を楽しみましたが。

だって、ハゲは痛くはありませんから。笑うしかありません。(笑)

 

   ( 👇 脱毛で辛い方はこちらも読んで下さいね。👇 )

 

                ハゲはすぐには生えてこない

 

髪が生えている時も、頭頂から足指まで全身浸出液が出ました。

掻くから出る・・・と、かつてよく言われましたが、私の経験上、こういう時は掻かなくても、出ます

髪はいつもビショビショ頭皮もフケのように皮膚が落ちますので、

それはもう、不潔感満載の髪型になります。

ギトギトに濡れた髪がフケだらけ・・・これはちょっとザンネンな姿です。(◞‸◟)

 

全身ずる剝け火傷のようにもなります。(;゚Д゚)

詳しくはありませんが、放射能火傷と同じような見た目かもしれません。

顔も、体も、あらゆる関節も、耳の外から中まで、どこもここも皮膚がまるで溶けたかのようにドロドロ

頭のてっぺんから、つま先まで。全て、です。

そういう時は、痛い、痒い、不快・・・で、睡眠もままなりません

 

あり得ない大量の皮膚が吹雪のように落ちる症状も経験します。

全身ウロコのように皮がめくれたりするからです

正確には、ズル剥けになった皮膚が乾く時に出来たかさぶた(痂疲)なのですが。

 

私は一回の着替えで、その皮膚の皮が両手のひらにてんこ盛りになるくらい落ちていた時もあります。

大げさに言っていません。

頭を含め、全身から皮膚が落ちるのですから、その量たるや驚愕の量です。

そこまで行くと、体は皮膚を新しく作り出すために、次々とたんぱく質を皮膚再生に使いますから、

失われたタンパク質で、全身の疲労感はハンパありません。

 

昔、スピーシーズ(サンドラ・ブロック主演)という鱗っぽい体になる映画がありましたが、

「そのサンドラブロックに似てない~?」と家族に言ったら、

「いや、ファンタスティック4の岩石男 ↓ に似てる。」と言われ、検索。爆笑しました。

Fantasitc 4 _movie  似ていると言われたのはもちろん、左から2人目の方~。(笑) はい、そっくりさんな時がありました~。(笑) 本人はサンドラ・ブロック気分だったのにぃ~。( *´艸`)

 

余談ですが、私の人生でのたった一つの後悔は、初めての脱ステによるリバウンドの時に、

あり得ないほど腫れて炎症を起こしている自分の顔の写真を撮れなかったことです。(笑)

記念のためにも(?)、症状に苦しんでいる皆さんへの励ましのためにも、撮るべきでした(涙)!

しかし、当時、たんぱく質欠乏によるあまりの疲労感の為に、自撮りのシャッターを押す一瞬の力すらなかったのです

 

相当良くなってからの顔の腫れた写真はありますので、この記事の一番下でお見せします。

 

さて、全身の皮膚がうろこ状の時は、(どうすればいいかもわからず、当時はその症状でお風呂も入っていたのですが)

浴槽があっという間に白く濁ります

白い薄皮状態の皮膚表面に浮き上がっているかさぶた(痂疲)が全て剥がれるからです。

そしてお風呂上りは、またずる向け火傷状態に戻ります

(この痂疲は、症状が軽くなるにつれて、大きいウロコから、粉のようになっていきます。)

 

浸出液は、速い時は血がにじむ速さで出ますので、

私が東京から大阪へ入院するための1時間のフライトをする時、

間違いなくずぶ濡れになるのがわかっていた為、

服の中は、3重に厚いタオルを首から足首まで巻いて、ネットや安全ピンで留めて行きました。

大阪伊丹空港に降り立った私は既に全身ずぶ濡れ。ひえ~~~~。

しかも、そんなですから外は暖かいのに、寒い~~~~。( v ̄▽ ̄)

 

特に、膝から下は完全に、川の中を歩き回って遊んだ人のような状態で、

外までずぶ濡れなのが誰の目にも明らか・・・(笑)。

いや、笑えませんかね。<(_ _*)>

大腿もあちこちから浸出液が厚巻き3重タオルを通り越して、服の外まで染み出ていました。

 

もう、人の目も気にならない状態でしたが、一緒の乗客は、ボーディングブリッジをヨロヨロ歩いて出口に向かう私を見て、

(こ・・・この人はどうやって機内でこんな下半身ずぶ濡れになっているんだ?)

と思ったことでしょう。(≧▽≦)

ある意味、機内でずぶ濡れになるって、すごい技(?)ですからね。(笑)

 

しかし、とにかく私のズボンの膝から下は完全にびしょ濡れで、布の色が変わり、

分厚い合皮のスニーカーは外までずぶ濡れ、

靴の中が浸出液でぐっちゃん、ぐっちゃん鳴るほどでした。つまり、

川の中に靴をジャボン!と入れて、1分浸しておいて、そのまま履いた感じ(笑)。

両脚は激痛でろくに歩けないほどなのに、そういう状態では死ぬほど喉もかわくので、

目は自販機を必死で探しましたが、そんな時に限って街に溢れているはずの自販機は近くになく、”(-“”-)”

売店までやっとの思いで歩いてたどり着き、かけつけ3杯ならぬペットボトル2本の水分をとりました。

砂漠で遭難しそうな人のようでした。

 

そんな状態で入院しましたが、両脚は普段のちょうど2倍に腫れていて、紫。

ベッドから1cmでも脚を下げるだけで激痛。それは声も出せない、息もつけないほどの痛みです。

脚の全ての血管が、地面から引きちぎられるほど引っ張られているような痛みなんです。

蜂窩織炎(ほうかしきえん)のひどい状態だったようです。

足の裏まで、行き場のない溜まった水分でパンパンに腫れ、身長を計ったのなら数センチ高くなっていたことでしょう。

(相撲の新弟子検査で、身長制限ギリギリの人はこの手だな・・・。)と、くだらないことを考えていましたが(笑)。

 

さらに、浸出液が大量に流れ出続けていた為に、体内の大事なたんぱく質も流れ出、

人間の体に必要なたんぱく質が、限界近く(いや、限界以上?)まで減少していた為、

その時の主病名は、皮膚炎以前に、低アルブミン血症 ・ 低タンパク血症でした。

たんぱく質が不足する病気です。

 

その浸出液が溢れ続ける危険な状態を脱するための点滴などの処置が取られ、

 

同時に、浸出液は、普通のガーゼでは用をなさない状態だったので、特別に取り寄せてくださったようで

2cm以上くらいもの厚さだったでしょうか、ガーゼと呼べないような分厚いパッド状のガーゼを巻かれました。

 

全身から外したタオルは浸出液で全てずっしり重くなっていました

 

体が濡れている事と全身のバランスを崩している事による寒さで歯がガチガチ鳴るほど震えながら

発泡スチロール製の工作のロボットのようになり(。-_-。)、

ベッドが濡れるので、お産用の産褥パッドを敷いてもらい

ただただベッドに横たわっていたのを覚えています。

 

思い出すと笑える姿ですが、先生たちや看護士さんたちにとってはとても大変だったとお察し致します。

 

そうこうしているうちに、浸出液はみるみる減り、私は入院後、11.9kg、つまり

一週間でほぼ12kg、やせることが出来ました!

パンパカパ~~~ン!これ、病院の新記録ではないでしょうか(*^^)v?

ダイエット界の神ってるオンナ( ̄▽ ̄)(?)。

・・・なんて、ふざけてる場合ではなかったのですがね。

本当に、先生たち、看護士さんたち、よくやってくださいました。感謝のみです。

脚はみるみる元のサイズ(ちょうど2分の1)に戻りました。

冗談好きな佐藤先生に、脚が細くなったと何度も絶賛されては爆笑したのを覚えています。(笑)

あそこまでひどくなってから入院する患者はまれでしょうから、笑えるのも当然です。( *´艸`)

 

そんなこんなの悪化を繰り返した私の脱ステロイドの経過でしたが、

つくづく知ったのは、ステロイドを使うことで、最終的には

まるで毒を盛られたかのようなひどい症状の副作用が出る

ということです。身を持って知りました。

 

もちろん、そうならない方もおいででしょう。

しかし、ステロイドの説明書に書いてある「毛細血管の拡張」とか、

赤ら顔、色素沈着」とか、「皮膚が薄くなる」とか、

そんな甘いものだけでは全然ありません。

説明に全くない、上記のような副作用や、他にもいろいろな症状がたくさんあるのです。

患者が言っているのですから真実なのです

 

医師の指示通り使用しても、

相当な時間をかけて徐々にやめたとしても、

恐ろしい副作用は起こり得るのです。

ステロイドをやめた患者たちは皆、そのことに気付いています

 

大阪の阪南中央病院では、この副作用から脱するために、

ステロイドプロトピックネオーラルを一切使わないだけではなく

一切の保湿をやめ、自分の体の力でうるおい成分を出せるように、

徹底した脱保湿治療のやり方を学んできました。

 

***プロトピックとは、ステロイドでアトピーが治ると

宣伝し続けても治らない人がたくさんいたため

免疫抑制剤であるこのプロトピック(腎臓移植などに使う薬を塗り薬にしたもの)

を使用するようになったものです。

さらに、このプロトピックも期待した効果は得られなかった為、

臓器移植手術に使われる免疫抑制剤ネオーラル

(=シクロスポリンも使われるようになったのです。

私も入院前は近所の医院でシクロスポリンを処方され、一日2回も飲んでいました。***

 

 

閑話休題。脱ステ、脱保湿の治療方法の続きです。

 

どんなに浸出液が出ても、ひたすらそのまま乾かす

自分でやってみて確信しましたが、症状が安定するには、

この方法が一番早いのは間違いありません。

 

どうしようもなく浸出液が溢れる時は、ガーゼをかさぶた代わりに一枚だけ貼る

(ガーゼは刺激を減らす為に、一度洗って干したものを使います)

ガーゼは一週間まではそのまま貼っておきます。シャワーもそのまま浴びて、そのまま乾かします。

 

清潔は心がけても、シャワーやお風呂は控えめに、短めに

佐藤先生は半分本気、半分冗談で、症状のよくない患者に「シャワーは30秒。」などとおっしゃいます。(≧▽≦)

つまり、それくらい、控えめにしろ、ということです。真面目な患者さん、本気で悩まないでくださいね。(笑)

 

実際、アトピー体質の患者は皆、ウルトラ乾燥肌ですから、脂性の人達と違って、本当に体が汚れにくくなっています。

私たちは、やたら朝シャンだ、除菌だ・・・と、洗って、洗って、洗いまくる時代の流れに踊らされていたようです

洗うものも、液体石鹸ではなく、固形石鹸

なぜなら、石鹸を液体にするには、必ず界面活性剤(石油化学製品です!)を使うからです。

 

脱保湿は、アトピー患者なら誰が聞いても恐ろしい(?)くらい ( ;∀;)、勇気のいる治療です。

極限の乾燥肌で、放っておけば乾燥しまくって自然に亀裂すら入ってくるほどの皮膚に、

一切の保湿成分を外から与えない・・・。

想像しただけでも、相当な痛みの伴う忍耐の治療です。

 

しかし、思い切って取り組むと、今までステロイドで補っていたために、

働くことを忘れていた退化寸前の副腎皮質が、

働くことを思い出すのでしょうか。\(◎o◎)/!

時間こそかかりますが、忍耐強く続けることで

徐々に、徐々に副腎皮質は機能し始め、

自分で副腎皮質ホルモン(ステロイドホルモン)を作り始めるのかもしれません。

いずれにせよ、自力でうるおい成分を作り出します

****追記:この部分に関しては、私たち一般的な患者は大きな誤解をしているようで、理解の訂正をさせてください。
阪南中央病院・佐藤健二先生によると、副腎は実は機能しているとのこと。皮膚の方にその機能の秘密があるようです。皮膚だけの副腎不全が起こっている、そして、そこに、ステロイド副作用の明確な理由があるようです。

詳しくは、素人の私の説明より、コメント欄の佐藤先生の見解を是非ご覧ください!私たち患者のことを思ってくださる佐藤先生の補足説明・・・ありがたいことです。

 

そして、運動して代謝を上げることで皮膚の再生を助ける。

 

規則正しく生活する

 

よく寝る。(寝ている間に出る成長ホルモンが、皮膚の再生を助けます)

 

食べ物はなんでも食べてよい。(←これは、個人的に大賛成です。)\(^o^)/

 

食べ物に関しては、昔からあれはダメ、これもダメ、という多くの皮膚科の医師の指導があり、

私も赤ん坊の頃から、母が私の為に徹底的に食事制限をやってくれていたそうですが、

結果、どれほど真面目にやっても炎症は全くよくならず

家族全員がげっそり痩せた・・・(。-_-。) というおまけだけを戴いたとのことでした。(笑)

亡き母はその経験から、

「アトピーの食事制限だけは、ウソよ。どんなにやっても治らないわよ。」

と、よく言っていたものです。

 

それでも、水分は摂り過ぎると浸出液が出ますから、

かなり厳しい水分制限はありました。

私の場合、入院当初に許されたのは一日1000ml

これは果物やヨーグルト、プリンなども水分に換算して含んでの1000mlですが、(病院では)食事を除いた水分です。

かなりきついのですが、浸出液減少にかなりの効果がありました。

これも、阪南中央病院の佐藤先生が、患者の観察に長けた看護師さんのふとした一言から、この素晴らしい発見をされたようです。

 

退院する時は、ほとんどの患者がこれらの方法で劇的に改善し、

多くの仲間は、「あれ?もう、どこも悪いところはないのでは?」というキレイな見た目になって退院していきました。

 

ただ、退院後に、(繊細な私たちは?)環境の変化で一時悪化はしがちで、

私の場合、いきなり退院したその日の夜から信じられないひどい悪化がありましたが、

徐々にまた退院時の状態に戻り、

退院後9ヶ月くらいから趣味である旅行を再開することが出来るまでになりました。

 

そして、今日、ステロイドをやめてまる4年の記念日

ハッピー・アニバーサリー~~~~♫ \(^o^)/です。

入院して脱保湿を初めて体験し、退院してから1年3ヶ月。

本当に私の皮膚は強くなってきているのを実感します。

つまり、人間らしい皮膚になってきているのです。

 

かつてステロイドを使っていた頃の私は、炎症は抑えられていても、

例えば10本の指はまるで生肉の上にセロファンを貼ったような

ちょっと何かに引っかかっただけで裂けたり穴の開くような薄い皮膚でした。

それが、今、普通の厚さの皮膚になっているのです。

夢のようです。

たまにただれても、以前のような薄い皮膚ではないのです。

 

また、予想外の大きな変化として、

体温調節が出来るようになりました

 

私は、かつて、夏は冷房ギンギン冬は暖房ガンガン、というわがまま体質。

冬など、寝る時は電気毛布または電気シーツなしでは体が冷たすぎて眠れませんでした。

その私が、今は、例え冷たいベッドに潜り込んでも、辛くないだけでなく、

数分で体がふわ~~~~っと温まってくるのです

自分の体温だけで、です。

 

これって、普通の人の本来あるべき姿ですよね?

 

寒がりおよび暑がりというわがままな体質だと信じ込んでいたのですが、

ステロイドをやめて、こんな変化も訪れたのです。

 

冬にヒーターに灯油を入れる間の寒さや、

お風呂場にヒーターを入れないで服を脱ぐことなど、

普通の人では考えられないほど苦痛でした

歯がガチガチいう寸前の、限界的な寒さを感じていました。

温泉では、冬場の内風呂から露天風呂への移動などは死ぬ気でやっていました(笑)。

すごい一大決心での移動だったんです。(≧▽≦)(行かなきゃいいんじゃないの?と、心の声。)

 

今はどれもこれも全然平気です。

 

時には冬でもヒーターを切ったりすることも出来るようになりました。

現職場の自分のオフィスで足元を温めるヒーターも、退院後は一度も使っていません。

 

自宅のキッチンのホットカーペットもいらなくなりました。

 

こむら返りも得意技(◞‸◟)でしたが、かなり減少しました。

これも代謝がよくなってきたひとつの証拠の気がします。

 

子供の頃からこむら返りがひどすぎて、頻度が増えすぎた近年では、

芍薬甘草湯を処方されたことが何度もありましたが、

自分の記録を見ると、これを止めた後に、必ず皮膚炎が相当悪化していました。

これは、甘草がステロイドと同じような働きをしているという証明だと思っています。

 

全て偶然だと言われればそれまでかもしれませんが、

これらの変化は、明らかにステロイドを止めてから起きた変化です。

 

恐ろしいステロイドをやめて、脱保湿をし、

自分が普通の健常な人達に日々近づいているのを実感しています。

脱ステロイド、脱保湿は本当に素晴らしい治療法です

52年もの間ステロイドを使い続けてきた、生きた証人である私の心からの実感です。

 

今、大好きな旅を再開出来るほど改善し、

35年来の趣味の温泉も、バンバン行っています。

ナトリウム塩化物泉に限定してはいますが、私は大丈夫のようです。)

 

この治療に出会ったこと、

阪南中央病院の佐藤健二先生始め、担当医の山田貴博先生、

阪南中央病院のスタッフ、佐藤先生に導いてくださった藤澤重樹先生(藤澤皮膚科・東京都練馬区)、

そして、一緒に闘病をがんばった素敵な患者仲間達・・・・

皆さんに心より感謝の言葉を贈りたいです。

 

ステロイドは、命に関わる時以外、使ってはいけない薬です

 

私に起きたこの真実が、一人でも多くの人に広まり、

未来の私のようなステロイド副作用患者

一人でも減ることを願ってやみません

 

愛の拡散運動に協力していただける方、是非ともこの情報を広めていただければ幸甚です。

よろしくお願いいたします!

 

<<< 閲覧注意 >>>

***以下は衝撃的な皮膚の写真ですので、苦手な方はご覧にならないでください。

ステロイドなど薬なしでここまでよくなる、というのを知りたい方は、是非、ご覧くださいね。

 

 

 

 閲覧注意(皮膚炎の写真があります)

 

 

 

☟   Viewer discretion advised:  Severe Dermatitis Pictures below

 

 

☟   閲覧注意(皮膚炎の写真があります)

 

 

☟   Viewer discretion advised:  Severe Dermatitis Pictures below

 

 

☟ 閲覧注意(皮膚炎の写真があります)

 

 

境界線のはっきりわかる、赤くなった腕 

Red Skin Syndrome with clear boundary.  Started to ooze.

 

 

乾いて白い皮で覆われた顔、首 

Face and neck covered with crusts.

        

 

うろこの様に毛羽立った痂疲に覆われた腕 

Arms covered with crusts all over.

     

 

頭皮の剥がれる皮膚 

Peeled skin off the scalp.

 

腫れた上に、象のように皺だらけの大腿・首 

Elephant skin on both thighs and around neck.

       

 

一度の上着の着替えで床に落ちる皮膚(落屑)

Desquamated skin on the floor after taking off a jacket only.  

  

 

一枚の上衣を脱いだだけで大量に膝上に落ちる皮膚 

Desquamated skin on the lap.  This amount of crusts falls off when taking off a shirt.           

 

ただれる手・指 

Right hand and a finger

 

 

ただれる顔と首の痂疲、皺 

A cheek and neck with elephant skin and crusts.

 

腫れ始めた下腿・裏までパンパンに腫れて紫になった足 

Lower leg started to swell and swollen feets.  The skin on the soles also swell up to the limit.  The skin color turned to be purple.

     

 

2015年10月・11月

ただのアトピーとは表現しがたい、グロテスクに悪化した脚

Lower legs – From Oct. to Nov. in 2015.

         

 

2015年11月

出来た痂疲を掻き壊して、落ちる大量の皮膚

Everytime getting thick crusts, scratched them until all of them fall off.  It happened over and over. – Nov. 2015

 

腫れ(浮腫)の引いた脚

Both legs after reducing edema.  Both upper and lower legs turned to be 1/2 diameter, meaning, original size.

 

2015年12月

一切ステロイド等塗り薬なしでの入院2か月後

2 months later in the hospital without any topical products. – Dec. 2015

 

 

ここからは顔の症状の変遷です。

Symptoms on Face

2013年4月 ステロイド使用完全中止  2013年7月 腫れて別人化のピークを過ぎて目が開くようになった頃

(ピーク時は皮膚の伸びる限界くらいまで顔が腫れて、目は手でこじ開けてやっとものを見る事ができる状態でした。しかし、具合が悪すぎたために、写真がありません・・・)(涙)

    

Stopped using Topical Steroids completely in Apr. 2013.  Face was swollen until the limit first and I wasn’t able to open my eyes or mouth without fingers at that time but don’t have pictures becuase having no energy to press the shutter due to losing too much protein.  The pictures above are taken in Jul 2013 when swelling started to reduce.  I barely could open my eyes then.

 

2015年9月 3度目の悪化。眉も抜けて怖い顔ですが、この程度は私にとっては軽症でした。(笑) ⇒ 2017年2月 4度目の悪化を乗り越え、趣味の旅行を楽しむ

The picture below was taken in Sep 2015 and it was the third accute aggravation.  The 3rd experience was much better than the first one.  Entered Hannan Chuo Hospital (Dr. Kenji Sato/ Dr. Takahiro Yamada) in Oct 2015 and the last pic was the result!  Enjoying travels to foreign countries.  Anything goes now!
Good luck guys and feel better.  You’ll be ok soon!!!!!

  

    

                        (中東・ドバイにて: 世界一高いビルの

                         555m 展望台  “バージカリファ”です。

                         もう、何でも楽しみますよ!)

大丈夫!!! みなさんも、必ずよくなりますよ!o(^o^)o

素敵な明日が訪れますように、心より応援しています。

 

 

<<< 後記 >>> 

阪南中央病院皮膚科部長であり、非ステロイドの日本のリーダーである佐藤健二先生より、コメント欄に、ためになる見解が入っています。是非、併せてご覧ください。

 

 

#脱ステロイド  #脱保湿  #ステロイド副作用  #阪南中央病院  #ステロイド副作用画像