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Tokuko Got An Interview! – Part 2


 

👇  Here is Part 1 of the interview! 👇 Please read this first. 

Tokuko Got An Interview! – Part 1

Tokuko Got An Interview – Part 1  👈CLICK HERE!

 

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                                  – Tokuko Got An Intervew –  Part 2 – 

 

MARLENE: Your blog has 5 categories:  MY Tweets, Travels, TSW & Atopic DermatitisSpiritual Posts, and Posts in English.  Recently, you have felt deep concern over the high suicide rate in Japan.  Have you tried to address this in your blog?

 

TOKUKO:  Yes, I have done it and the article also was a big hit and was shared by many.  We have a culture like “Being modest and quiet is beauty.” so typical Japanese don’t voice so often and tend to have stress for that.  Stress causes various kinds of sickness so I try to encourage my blog readers to let them feel uplifted.

 

I have many more readers in Japan than foreign countries and I add various kinds of topics in Japanese since Japanese is my first language.  The majority of popular topics are my unique mindsets to live happily, encouragement like self-development and TSW & atopic dermatitis
I certainly try to get a positive message out on my English site, too.  I think the most healing takes place when the spirits are positive and people move on from isolation.

 

 

MARLENE:  You have developed a strong relationship with all the Japanese NMT doctors, but of course, you have the most contact with the extremely busy Dr. Sato.  What can you tell us about his work?

 

TOKUKO:   I think Dr. Sato chose to see both inpatients and outpatients but not being a clinic doctor to see outpatients only for a few minutes once a few months or so.  I believe his choice gave this doctor’s eyes more excellent diagnostic capability but not only his natural talent and effortsHis diagnosis and advice are always AMAZINGLY accurate

 

For example, when he says ‘4 days.’ to see a patient’s specific part, the flare disappears 4 days later

If he said ‘7 days.’ you’d see it clears up 7 days later definitely

When he gives a direction like, “Diminish water to 1100 ml.” the patient gets amazingly well so quickly

When he says, You have done XXXXX, haven’t you?” the patient is surprised and confesses, “Yes, as a matter of fact, I did.”…lol

 

His eyes are a miracle and patients always run across such scenes in the hospital.  There’s no doubt he realized the condition of TSW long time ago and found the great method more than 30 years ago.

 

He runs free big lecture meetings all over Japan, provides free classes in the hospital, gives training/lessons for other doctors who are interested in NMT, gives advice for questions from patients who he doesn’t know on the website (in Japanese) without a fee, etc. etc.  His dedication for patients is unbelievable.

 

 

MARLENE:  What does a day in the life of Dr. Sato look like.  Can you tell us in your own words?

Many of Dr. Sato’s healed patients all over Japan gave him a gift with collage pics of used-to-be inpatients. Everybody loves him! Look at his warm smile!

 

TOKUKO:  Dr. Sato shows up in the hospital early in the morning.  After inpatients have finished breakfast, he sees us one by one and gives us very appropriate advice.  Then, he sees outpatients.  The reception closes the day’s appointments in the morning but he sees so many outpatients from all over Japan until evening and sometimes until late at night.

 

Then after he finished to see all of them, he checks all of the clinical records including young doctors’ ones.  He has so many things to do taking care of MANY patients.  Late at night, we sometimes see him sitting in front of the computer to complete things.

 

After that, he sometimes responds to the Japanese Q & A site that I mentioned earlier and answers questions for patients he doesn’t even know.  He doesn’t charge for this.  Dr. Mitsuko Satou (NMT super pediatrician) gives advice there too.  The site has a lot of people’s access and we can get helpful information there.  Usually, next morning, inpatients find their work and say, “Guess what?  Dr. Sato answered some questions after midnight yesterday too…When does he sleep?”

 

And every two or three weeks, he provides NMT classes for inpatients after dinner, actually at night.  It is VERY helpful and we learn what we have to do or what we shouldn’t do.  I post it in my blog in Japanese.  He teaches us about skin too so we get much knowledge at the classes.  During the classes, he sometimes sees inpatients again per inpatients’ request though he already saw us in the morning.  He memorizes each inpatients’ symptom and gives very appropriate advice.  We patients merrily wait in line to be seen by him again because it is fun to talk to him. 

As you also wondered already, patients always wonder “When does Dr. Sato have his meals?…His days are such hectic.

On weekends, a lot of patients say, “Awww….weekend again….I don’t know if I can get through it without Dr. Sato!”  All the inpatients love him so much.

Dr. Sato’s favorite food, ‘Yakisoba Noodle’. He might eat up three plates as long as it is this size…??? (=standard size)…lol

 

One day, while I was in the hospital, finally, my horrible affected part dried up completely and I was very happy for that.  I showed off the part proudly to him at the night class. 

To see it at one glance, he said, “You will scratch it tonight definitely.😙” ….It was so funny for me. 🤣

I said, “Nooooo!!!  Dr. Sato!  It took a looong time to dry up and I finally reached this phase😬.  Definitely, I won’t scratch tonight!” (^o^)o

Then he goes,  “Nope.  You can’t control it.  You’ll scratch it definitely.😎”, then I go, “Noooo!  I won’t!….”, then he goes, “Yes, you will scratch🤪.”, then I go, “Nope!  I won’t.”….we exchanged such funny conversation.

 

Ahen…well….I DID scratch the part at the night and all the thick crusts came off…LOL!

It was uncontrollable though it is my body…He says things as if he can foresee everything and it is always right.

 

Also, since mental status affects to our symptoms very much, Dr. Sato cares about it for each inpatients and notices each one’s mental status exquisitely.  Yes, he notices everything…lol  I’ve heard he has spent his time even for one hour to listen to a patient who feels down at night though he is super busy!  He lavishes his time on helping patients.  Of course, the patient’s symptom increased rapidly after that.

 

 

Most of TSW inpatients are discharged around 45 days usually and 90 days at the longest from the hospital.  We cannot stay longer than 3 months in Japan.  I was the longest inpatient that stayed. (for about 3 months)

It was amazing to see inpatients who are leaving because all of them look like a normal people!

 

 

MARLENE: It seems like there is a lot of hero worship going on in his patient community.  Can you tell us details of Dr. Sato’s professional history regarding his teaching of NMT?

 

TOKUKO:  Please refer the followings.

 

 

📂Dr. Sato presented a paper that No Moisturizing Treatment was effective for TSW (Topical Steroid Withdrawal) in 1994.
 
【Atopic Dermatitis and Dermatopathy Induced by Topical Steroids; The Appropriate Treatment and the Information of the medication】 – By Dr. Kenji Sato
 
The Informed Prescriber 1994;9:31-34(in Japanese)
 
📂Then, he announced statistical data of NMT in 1996.
 
【Withdrawal of Topical Steroids for the treatment of severe “Adult-type” atopic dermatitis】; Skin Research 1996;38:440-447 (in Japanese, English summary) – By Dr. Kenji Sato, Dr. Hironori Minami and 3 other doctors.
 
In the summary, it states as follows;
 
—-The skin symptoms exacerbated, and reached to the peak on average seven days later, then gradually subsided in a month. At this time, the use of the nonsteroidal agents was stopped, and exacerbation restarted, reaching to the peak in about 5 days, followed by slow improvement for about one and a half month.—-
 
📂Also, as for the problem of the use of topical steroids for atopic dermatitis had been explained already in his medical paper in 1985.  Dr. Sato had already recognized the condition then.  He was providing non-steroidal treatment already at that time.
 
【Transition of Incidence of Steroid-induced Dermatitis from 1979 to 1984】; – By Dr. Kenji Sato and Dr. Naoko Mizukoshi
 
Skin Research, 1985; 27: 1166-71
 
 
 

 

📂 Published ‘Treatment Derived from Clinical Observation of Prolonged Adult Atopic Dermatitis Patients – No Steroidal and No Moisturizing Treatment‘ (in Japanese) – 2008

📂 Published ‘Say No to Steroids – Treatment of Atopic Dermatitis for Babies and Children‘ (in Japanese) – 2010 by Dr. Kenji Sato & Dr. Mitsuko Sato

📂 Published ‘New Edition: Treatment Derived from Clinical Observation of Prolonged Adult Atopic Dermatitis Patients – No Steroidal and No Moisturizing Treatment‘ (in Japanese) – 2015

 

by Dr. Kenji Sato

by Dr. Kenji Sato/Dr. Mitsuko Satou

 

 

 

 

 

 

 

 

 

MARLENE: Is Dr. Sato active in other Professional Groups?

 

TOKUKO: Dr. Sato has lecture meetings very often.  He travels all over Japan with other NMT doctors on weekends and Japanese national holidays to have very big meetings with them.  The meetings are usually free even though they are very expensive to organize, I guess.  Recently, I attended a conference along with other NMT doctors.  It was well attended by adult patients, parents and even some dermatologists.

 

 

MARLENE:  I understand that Dr. Kenji Sato and Dr. Mitsuko Satou are members of the Education group.  This shows great respect for your work disseminating NMT information.

 

TOKUKO:  Yes, they are VERY supportive to help group members and are always thinking about TSW sufferers who they even have never met.  When I have questions for group members, they help me a lot.  To avoid confusion, they have approved our group as the official site of NMT and are trying to monitor as much as possible so group members can trust the information that we provide.  Translating medical things is very difficult for me but when my translation is not applicable, Dr. Sato always gives me an advice how to express it.  It is blessing!

 


Also, I see all the NMT doctors at conferences, meetings and parties, and at the same time, hear from many of Dr. Sato’s patients and supporters.  It is always a learning experience for me. 

 

 

Well, I recently added Dr. Mitsuko Satou‘s work with babies and children to my blog.  To see her long experience where she healed tons of babies and children without TS, I feel like it is urgent to spread her theory to the world.  It is really amazing.  Hope as many as parents take her words. 

She refers severe pediatric cases to Hannan Chuo Hospital.  The children are treated in the children’s ward, but seen by Dr. Kenji Sato. 

 

Believe it or not, children and babies get well once parents accept Dr. Mitsuko Satou’s words.  Her theory comes from her approximate 50 years’ experience as a pediatrician and is amazing.

 

 

MARLENE:  How much time do you spend on NMT work?

 

TOKUKOMy laptop remains on my lap all day long on weekends.  On Friday night to Sunday, I usually work 10 hrs a day on NMT because it is not only the blog but Facebook groups, conferences, supporting lecture meetings, etc…etc… 

My older son does chores for my activity so he also is a great supporter.  From his experience to see his mother’s super severe TSW symptoms, he really hopes no one would have such experiences any more in the world.  My younger son also encourages me very much.

 

 

MARLENE:  As well, you run some Japanese sites.  It must be a pleasure for you to answer questions in your first language.  What are the cultural differences?

 

TOKUKO:  Japanese is very unique.  We are born and raised in islands country so our culture and customs are different from others.  Good part is, we esteem peaceful resolution.  Bad part is, we don’t voice so much….lol  To spread the word, I feel more difficulty with disseminating NMT protocol in Japan than foreign countries.   

Still, Dr. Sato’s supporters are glad to work for that and help other sufferers spontaneously.  They are amazing people.

 

Because of our group-oriented culture, once you request to not do it, Japanese members don’t do it and vice versa.  So Japanese sites that I run don’t get questions but I receive questions personally via SNS after all…lol  I’m trying to help them too as much as possible and it is way too easier for me because it is my language. 

Of course, our situation in Japan is the same with foreign countries, I mean, it’s REALLY hard to find out non-steroidal doctors here too.

 

 

 

MARLENE:  You have many readers in both Japanese and English.  Your post called ‘A Message for the Parents with Atopic Dermatitis Children From A Used to be Mummy BabyA message for the Parents with Atopic Dermatitis Children From A Used-To-Be Mummy Baby  really resonated with many readers.  Why do you think this made many people cry?

 

A Message for the Parents with Atopic Dermatitis Children, From A Used-To-Be Mummy Baby

 

TOKUKO:  People were intrigued by my personal journey.  Actually, they say many mothers were touched very deeply by this article and it continues to be very popular in Japan. 

 

One mother who works on supporting TSW kids and babies sent me a message that she cried loudly when she read my journey and admitted reading it many times.  She was encouraged by the thought that it was not the parents’ fault and so they should not feel guilty about using topical steroids on their children.  Hope many more people have an opportunity to read it.

 

 

MARLENE:  You have many warriors.  A couple of months ago, Ahmed Hamadi, published a French set of notes of your blog.  Then, they were published in English.  These notes were very valuable, and the NMT sites were swamped with questions about Dr. Sato’s Protocol – especially food.  Do you still get questions about food and allergies?

 

Thinking about nutritional balance, Tokuko is busy for eating?  Obviously too much….lol

TOKUKO:  Yes, I do.  But Dr. Sato and the other NMT doctors agree that a healthy diet is important and that lots of protein and lipids should be included.  The warning to avoid licorice in foods or drinks that contain one of licorice byproducts is important.  Also,  common sense about your allergies before TSW/NMT should be honored.  Nutritional balance is crucial to grow new skin and rebuild body strength.

 

 

 

MARLENE:  The other big question that is asked repeatedly is about water restriction.  You talk about how important it is in the hospital and how everyone is cooperative because they want to get out quickly.  What are your suggestions for water restriction when it is implemented in the home?

 

TOKUKO:  I believe that Dr. Sato’s guidelines should be followed as closely as possible for faster healing.  However, babies and small children (under 6),  breastfeeding mothers and persons with medical issues, etc…should all be cautious and everyone, when necessary, be under a doctor’s supervision.

 

 

 

MARLENE:  There are many lists of key parts of the protocol.  What would your suggestion to people starting NMT?

 

TOKUKO:  People trying NMT should read as much as they can: my blog, my Education site using the search bar, make personal notes, and establish a list for yourself to get started:

 

Dr. Kenji Sato’s List

From my experience, the causes which make TSW symptoms long and severe are the followings;

  1. long term and/or stronger steroid use
  2. use of tacrolimus -protopic steroids
  3. use of moisturizers after stopping topical steroids
  4. frequent and long bath and/or shower
  5. drinking of large amount of liquid, drinking liquid during night
  6. wash out exudate and/or scrape off crust
  7. insufficient intake of protein and lipid. (Need to look up)
  8. bed rest during the day time
  9. insufficient amount of exercise
  10. be told not to scratch
  11. poor management of psychological stress
  12. Subjective assessment of signs (itch, pain etc) and no objective assessment of symptoms (erosion, red, brown, white, exudate, crust, etc )

                                              – Kenji Sato

 

Dr. Sato says “NMT is unbelievable but it works.

 

MARLENE:  On behalf of the NMT community, I would like to thank you for all the work you do to help Topical Steroid Withdrawal (TSW) sufferers.  Dr. Kenji Sato and the other NMT doctors must be very grateful to you for supporting their work.  

Thank you also for your insights into the amazing Dr. Kenji Sato and his team of followers.  

 

 

<<Interviewer’s Note>>

IN APPRECIATION to International Topical Steroid Withdrawal Association (ITSAN) where Tom and Marlene Bell found Tokuko’s blog & Dr. Kenji Sato discoverer of NMT> It is because of their (No Moisturizing Treatment) NMT work that we are able to celebrate….our 60th anniversary August 1, 1959 – 21,915 days

(NMT) Dec. 3 2018-April 2019 
Tom has healed at 85 years old.

*WORDS CANNOT DESCRIBE HOW GRATEFUL WE FEEL.

                                                     – Marlene Diana Bell –

 

 

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<<Tokuko’s Note>>

 

It was a great experience to get an interview with this amazing lady, Marlene.

As a caregiver, she had been helping her husband, Tom, and then, after his healing with NMT, she started to pay it forward.  Her dedication to the community is outstanding and Tom’s cooperation also is blessing!  They keep encouraging sufferers.  She is like a mother in NMT family.  I don’t know how to thank her for her assistance and love to TSW sufferers in the world.

 

From the bottom of my heart, congratulations on your 60th Anniversary, Marlene and Tom!  I’m proud of you and feel very lucky to be able to celebrate the best couple’s special day resuming healthy life!


Tokuko

 

 

 

 

 

#Tokuko’s Room To Feel Uplifted  #tokukosroomtofeeluplifted  #NMT  #TSW  #No Moisturizing Treatment


Tokuko Got An Interview! – Part 1


 

I got an interview with Ms Marlene Diana Bell who works for disseminating NMT (No Moisturizing Treatment) protocol for TSW (Topical Steroid Withdrawal) sufferers from Canada to the world. 

 

Her husband, Tom, had a severe reaction to steroid creams last year.  Per her explanation, he spent 9 months as an invalid – with skin (the largest organ in the body) very compromised indeed – red skin, sores, ooze, crusts, flaketorturous itch, etc… 

 

Specialists could not help, so like all desperate souls, they were doing serious Facebook search that led them to a google doctor type of cure.

 

They madly searched, searched and searched…..and finally found my blog and Dr. Kenji Sato‘s protocol, NMT, via the ITSAN (International Topical Steroid Withdrawal Association) support group.

 

They learned NMT seriously reading my blog over and over and followed Dr. Sato’s protocol strictly.  When they felt anxiety or got scared of flares, etc…they just read my blog again to make sure if they are on a right course…then, finally…Tom was healed completely within 4 months!  Significant thing is, he is in the middle of his 80s!

Tom resumed his life with NMT!  12 miles ride on his bike.  (Day 105 on NMT)

 

The following Q & A interview will give you insight into my personal experience as a patient of Dr. Kenji Sato.  He is a leading NMT dermatologist and I am one of his many healed patients. 

 

Our dream is to help disseminate the information to as many professionals and sufferers as possible.

 

 

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◆ONLINE INTERVIEW WITH TOKUKO BY MARLENE DIANA BELL◆                                      

                                                

MARLENE:  The name Tokuko comes up frequently on many sites connected with TSW (Topical Steroid Withdrawal). You are definitely a “woman of mystery!” You went into the hospital on October 5, 2015 with a very severe case of TSW that had been misdiagnosed as aggravation of atopic dermatitis.  After starting NMT (No Moisturizing Treatment), I believe that you left on December 18, 2015 with a new lease on life and a determination to share your healing with the world. 

 

The blog article How to Get Over Topical Steroid Withdrawal ASAP   How to get over Topical Steroid Withdrawal asap!  has been shared hundreds-thousands of times in Japanese and English.
(Blog ” Tokuko’s Room To Feel Uplifted: MENU【POSTS IN ENGLISH】)

 

In a letter to you dated on the 25th of November 2017, Dr. Kenji Sato expressed his thanks to you for introducing his treatment protocol.  He hoped that people all over the world suffering from topical steroid withdrawal would be helped.  Well, Tokuko, now a year and a half later, Dr. Sato’s wish has definitely come true.  It is happening because of you!!!

 

Look at the facts:  Your blog has been seen more than 260,000 times, your Education Group has over 1500 members within months after inception, and your Healed Club has over 400 members within a few months, your NMT friends who started the Q & A Support Group for NMT-TSW now have 685 members.  More and more people are asking “What is NMT?  You are not alone now – and you have acquired many warriors!

 

TOKUKO:  Well, I began to prepare the Education site a few months prior to starting it in December 2018.  It may look easy to start a group in Facebook but to utilize it as a way of sharing Dr. Sato’s protocol so accurately, it took time for me to prepare.  I wanted sufferers to use ‘NMT Education Group’  NMT (No Moisturizing Treatment) Education Group instead of their NMT text book because there are no translated ones in the world

 

As you know, Facebook is a communication tool so it was a challenge trying to change members’ vision from Q & A format to a study forum.  I needed to think deeply on how to operate it to help out sufferers efficiently by imagining various situation that might happen.  

 

You can learn NMT accurately in this official NMT site. Dr. Kenji Sato and Dr. Mitsuko Satou are great supporters of this group.



To make the group like an intensive course of NMT, it should be full of helpful information to learn and shouldn’t have the distraction of personal symptom’s continuous complaints or its Q & A or open discussion or debate

 

 

Of course, such things also are necessary sometimes for sufferers so I’m not denying them but I thought if I do the same thing with other TSW support groups, there would be no place to learn NMT seriously and intensively.  Each group has its own role so the idea to comfort and vent are also necessary but I needed to make a place to learn NMT for sufferers in need.

 

Even in the hospital, no one could master NMT overnight just reading Dr. Sato’s book but inpatients get to know it little by little receiving advice from Dr. Sato every day.  Sufferers in our group need such circumstances, I mean, they also need to learn it one step at a time getting advice sometimesThe group can provide opportunities to review each one’s knowledge and it definitely helps sufferers for faster healing because NMT should be done correctly and thoroughly.  Sufferers who try to do NMT at home definitely have to study hard and our group should be their NMT book to find out answers by themselves.


At least one Education Group is necessary to get accurate advice.”…That is my concept of starting the group.

 

 

MARLENE:  The questions and comments in the letters on your 2017 blog are the same ones that sufferers are asking today.  You have addressed them many times.  Is this why you started the NMT (No Moisturizing Treatment) Education Group?

 

TOKUKO:  Well, right after I published How to Get Over Topical Steroid Withdrawal ASAP, the article was spread to the entire world VERY rapidly…so many people started to share it one after another and the entire white world map of my blog data page was filled in color

 

The distribution map of readers of ‘Tokuko’s Room to Feel Uplifted’. Readers are all over the world except some countries in Africa and Greenland where more than 80 % are covered with eternal snow.

 

Then, approximate 2 months later, I started to receive MANY messages with appreciation from all over the world and it increased day by day.  Do you know what I mean?  Yes, a lot of TSW sufferers began to be healed or improved with the protocol They accomplished it just reading the article and followed the direction thoroughly.  And the trend is continuing, I mean, readers all over the world have been sharing it even now every day

 

At the same time, I received many questions with the pictures of their personal symptoms though I’m not a doctor…lol  Of course, I can’t diagnose!…lol  I just can share things what I learned as an experiencer

 

And also, I received other questions too continuously.  I tried to respond to everyone, for 3 digit of messages every day staying up late because I really wanted to help them.  However, there is a limit to take care of everyone in the world by myself…lol  I was extremely busy and didn’t have enough time to sleep…even if it is 2 a.m. here in Japan, people who contact me don’t know it and when I’m about to go to bed, I hear the ring of messages.  Ping…ping….ping…lol 

 

Still, I wasn’t able to ignore them because I fully know how tough the symptoms are. 😰

Sometimes, I wasn’t able to cut the conversation for sufferers who needed urgent help even if it was midnight here.  And some needed encouragement too from me…This is the other reason that I started NMT Education GroupI needed to educate everyone at one time because more than 90 % of their questions and  answers are already in blog articles

As inpatients in Hannan Chuo Hospital, we needed to learn a lot from Dr. Sato every day even though all of us read his booksSufferers who get information from my blog need a place to learn it too.

 

Since Dr. Sato’s treatment could be practiced in the home setting, and many healed sufferers on NMT post their healing journey spontaneously at other TSW support groups one after another, the membership was growing so quickly that it became impossible for me to keep up.  The fact that my improved pictures from severe symptoms within 3 months also are sensational for many sufferers so such testimonies accelerated the membership too.  In April, 3 new efficient members who mastered NMT with my blog and the education group joined as moderators to help transition from individual symptom posts to teaching posts that would encompass common questions.

 

Because of their assistance, I could focus on my role, I mean, this provided an avenue to keep readers updated on Dr. Sato’s work as well as clarify commonly asked questions.  As the transition smoothed out, it allowed me more time to make specific posts as well as work on translations of sections of Dr. Sato’s bookNew Edition: Treatment Derived from Clinical Observation of Prolonged Adult Atopic Dermatitis Patients – No Steroidal and No Moisturizing Treatment” (Japanese edition).  I feel blessed so much!

 


I started The NMT Healed Club too https://www.facebook.com/groups/NMTHealedClub/ to show the reality of NMT during the process, and to encourage people visually showing that NMT works.  The group is full of positive energy and it is good for sufferers who lost self-confidence to feel uplifted.

 

You can see a lot of healed/improved members’ pictures and reports in this group.

 

 

MARLENE:  The deleting of posts led to misunderstandings with both positive and negative comments on other sites.  How did you and your moderators respond to this criticism?

 

TOKUKO:  To think about sufferers who are in the midst of serious symptoms or in emergency like life threatening cases and those who are not good at English, we have to focus on providing appropriate and accurate info only, I mean, we have to diminish their workload to read and have to save their time.  They definitely urgently need help and we have to help them out from this agony devoting all our energy so I wanted to avoid continuous same explanations from the beginning. 

 

 

Also, staying positive is a part of NMT so I didn’t want our group to be full of complaints about personal symptoms because it affects other sufferers’ symptoms too making them feel sad.  Venting is good for the person but not good at all for all other sufferers’ symptoms.  No one feels happy to read other people’s pain.  We tend to be tied to our own tough symptoms but everybody should consider about other sufferers too even while experiencing terrible symptoms, I mean, we have to think about other sufferers in various situations precisely because we totally understand the pain.

 

It is because of these reasons, I had to organize the group to let members utilize it as a text book

There are no translated books about NMT in the world and I had no other way to disseminate the protocol except my blog and Facebook groups.  To help out each other with NMT knowledge is my ideal so when I started the group, I required agreement with our policy (with 3 initial questions) to members who requested to join us and explained to members that our operation is different from other TSW support groups

 

I posted this for NMT Education Group members to have them understand our operation and our role to help TSW sufferers.

 

I know it is irritating for some members to not be able to get an answer right away but no one can learn it overnight.  I hope group members realize that it is really great opportunity to re-read my blog articles to find out answers….because, again, more than 90 % of members’ questions are already usually explained in articles.  We tend to think we have learned things very well after we scan the information but tend to miss something important sometimes.  Members might find some other helpful information while reviewing it.

 

 

As long as you chose to accomplish NMT without having NMT doctors there, I hope you understand that such effort by yourself is required.

 

Well, to organize the group, all moderators’ work is excellent. 

When we receive the duplicated questions, they try to contact the member directly via Facebook Messenger as much as possible and explain where the answer is written so that the member could find other missing information too to read it and other members don’t need to waste their time to re-read things that they have already mastered.   Of course, if the question is new and would be helpful for others, it is reflected on the site and we’ll try to answer doing our best.     

 

When we see members’ open discussion about other methods in our group, moderators try to contact them personally because other group members might misunderstand and think that it also was a part of NMT.  To mix other methods might be dangerous sometimes.  It wouldn’t be NMT anymore and healing would take longer or could cause further aggravation. 

 

When we see someone’s post that complains about her/his symptoms, moderators try to send a message to stay present to the pain but then to delete the posts as not to affect other members’ symptoms since it is not good for others.

 

When we get a request for approval to join but if they didn’t answer required 3 questions, moderators send a message to request it with welcome package to explain about NMT as a starter. 

 

They show their journeys making videos or chronological order pictures of NMT process, etc…etc…They are amazing.  Just wonderful.  I can’t tell them how much I appreciate their dedication.

 

It is REALLY huge workload for moderators but still, they work for group members and me SO hard spending their time because they fully know how tough TSW is.  I feel gratitude for their love to other sufferers and caregivers. 

**At that time, there was no function of pending post option in Facebook Groups to select members’ posts. This is a definite improvement!**

 

 

MARLENE:  Let’s go back to the beginning and let people know a few facts about Tokuko.  Can you tell us a few details about you?

 

TOKUKO:  I have two sons and work full time during the week for DoD. (Department of Defense, the United States Air Force.) 

My oldest son is an avid NMT supporter so he willingly helps with family chores.  I think all of my time except eating, cooking and taking a bath is taken by NMT.  To be honest, it has been all consuming and stretches after work on weekdays and at least 10 hours a day on the weekend.  I only allow 3-5 hours sleep every night on weekdays because I have various kinds of activities for NMT.  It’s not only blogs and Facebook groups.

 

Oh, I’d like to apologize here that I can’t respond all of messages that I receive from all over the world every day.  I feel so sorry for them to not be able to make it in a timely manner….still, please understand that it is difficult to respond 3 digit of messages every day.  Instead, I’ll keep adding messages and information in the groups and my blog thinking about you.😊

I could not do the NMT work without my wonderful sons’ support.

 

 

MARLENE:  What about your steroid usage?  How long and how frequently did you apply topical steroid creams?

 

TOKUKO:  My topical steroid usage was for 52 years.  For 30 years, I had been using the world’s strongest steroid cream since it came on the market.  Different creams were prescribed for different parts of the body.  The strongest one was used on my fingers.  At the time, my job took me to many cities and with my fingers looking so horrible, it was easy to get steroids at any hospital.  Once creams were applied, the symptoms disappeared but quickly came backWithout the creams, it was impossible to lead an ordinary life

 

Before NMT, during severe TSW, I was also prescribed a very strong immunosuppressant, ciclosporin (cyclosporine = neoral), which is usually given before undergoing internal organ transplant operations.  I was taking it daily for months twice and the side effects were horrible.

 

 

MARLENE:  How did you get an appointment to see Dr. Kenji Sato at Hannan Chou Hospital in Osaka, Japan?

 

TOKUKO:  I was referred by a famous Japanese NMT dermatologist, Dr. Shigeki Fujisawa in Tokyo Japan.  (Dr. Fujisawa also published books of NMT in Japanese.)

I was admitted after the third attempt with acute aggravation of the skin.  The name of my primary sickness was hypoalbuminemia – an extreme loss of protein though my TSW symptom was VERY severe.  It was here that Dr. Kenji Sato became my specialist in dermatology.

 

From the right, Dr. Kenji Sato, Dr. Mitsuko Satou, Dr. Satoko Minaguchi and Dr. Shigeki Fujisawa.  They are NMT leading doctors in Japan.  Dr. Takahiro Yamada, very left, learned NMT from Dr. Sato directly at Hannan Chuo Hospital.

 

 

MARLENE:  You mention that years later, at a convention, you met a young NMT doctor who remembered thinking that you would never survive this condition.  He also said that he was puzzled by your happy demeanor.  Why do you think you could feel so happy when faced with the horror of TSW?

 

TOKUKO:   I enjoyed the hospital stay so much.  When I entered, I made a big resolution to be a patient who has the sunniest and most upbeat disposition in the hospital…lol.  I wanted to erase the bad image of hospitalization though my symptom was the worst in the hospital

When you go in to the darkness, you should go with the light turning on.  And while your symptom is the worst, if you are seen by a famous, efficient and trustful doctor, how come you need to complain?  You should focus on blessings.

 

Patients often gathered in my hospital room and there was much laughter.  It became known as Tokuko’s Room to Feel Uplifted.  When they needed energy and laughter, they stopped by my room.  When they were depressed, they wanted to talk with me.  In the hospital, I had never felt down even for one second surrounded by nice friends, nurses and doctors.  My heart had been filled with gratitude.  In my blog, I mention “Try to feel positive in every situation.  Mental status is important for the fast recovery.” and I believe it’s true.

You go on to say if you see a tiny good part, bless it.  When you say, “This finger is really bad…” to someone else, you are missing something – Bless the other 9 fingers.

Smiling is not the thing you do only after you became happySmile first, then you can be happy.  It brings you happiness!  This order is important

At a lecture meeting with Dr. Sato

 

To be continued…..

  ”Tokuko Got An Interview – Part 2″  

 👇 CLICK HERE! 👇

Tokuko Got An Interview! – Part 2

 👇 CLICK HERE! 👇

Tokuko Got An Interview! – Part 2

 

 

 

 

 

#Tokuko’s Room To Feel Uplifted  #tokukosroomtofeeluplifted  #TSW  #NMT  #Dr. Sato  #nomoisturizingtreatment  #topicalsteroidwithdrawal


NMT Super Helpful Information From Dr. Kenji Sato’s Patient Meeting – No. 7


 

Dr. Kenji Sato who is the advocate of NMT (No Moisturizing Treatmentprovides detailed information during his classes for inpatients at Hannan Chuo Hospital department of dermatology, Osaka Japan and releases it on the website.

This time….Ta-da!!!  I can provide the information regardingOOZE‘ from the class

I know you really want to know about it because it is one of the worst symptoms of TSW and at the top of the discomfort index, isn’t it?

Ok, you can’t wait anymore……Here we go! 

 

                    *********************

 

About Ooze (Exudate)

 

A patient asked, When ooze comes out, I feel like the poison comes out from my body so I wipe it offIs that ok?”

 

      👉 ”No, that is the opposite of a fundamental rule of NMTDo not wipe the ooze off.”

                 👇 The purpose of ooze is to fix wounds 👇

  • A lot of protein is contained in ooze and it can act like a lid that both covers and protects the wounds at the same time.

 

 

There are 2 types of exudate.  

         ☆  THICK OOZE  👇

       High concentration of proteins.  The liquid solidifies in a dome shape  

          ☆  WATERY OOZE  👇

     Dangerous condition due to low protein content.  It flows more frequently.

 

 

It is not good to wipe with tissue papers!

   Various chemicals dissolve into the skin and they make the wound worse.

            (There are many chemicals in the tissue paper.)

 

Then what should we do?

           👇 👇 👇 👇 👇

  • Apply a piece of gauze on the oozing part.   (The purpose is to make an artificial scab.  For details, please read How to get over Topical Steroid Withdrawal asap! )
  • The scab should be left without doing anything.
  • Leave the gauze on as long as possible.  (Never more than one week! )

 

 ●When you remove the gauze or when the gauze is peeled off, some scabs might accidentally come off with the gauze. 

Your decision about re-applying gauze will be based on whether there is still ooze or rather if the wounds is moist with sweat.

If it is sweat, you don’t need to apply the gauze anymore.

You can tell if it is ooze or sweat with the color of the liquid.

 

 ●The gauze is more likely to come off when it is on joints or moving parts like groin, armpits, etc….

So when on such body parts, apply a piece of gauze on first, then put on a smaller size of underwear and under shirt. 

They will stabilize the gauze.  (If it is not necessary, NMT recommends loose outfits for air-drying the skin.)

 

 ●Before you apply new gauze, you should wash it with water and then dry because the gauze is sterilized with antiseptic solution

If the gauze is used as it is, the skin may react to the disinfectant.  Also, washed gauze with water may be a little hard (as you washed clothes without fabric softener) so squeeze or crumple to soften before use.

 

 

                    *********************

 

How do you like this advice?  Don’t you think Dr. Sato’s explanation is extremely helpful?

Yes, it also helped me SO much!

WELL, THE NEXT SECTION IS ON Q & A FROM INPATIENTS TO DR. SATO

‘Q & A’ is not only about NMT but other sickness, life style, etc…also usually.

With his extensive knowledge and vast experience of skin problems, he always answers any question immediately but his knowledge is not limited to skin problems!  So amazing always!

 

Well, EVERYBODY, COME ON TOGETHER! 

“Tell me about NMT, Dr. Satoooooooo!!!!”  \(^o^)/

 

 

                    *********************

 

 

Q & A FROM INPATIENTS WITH DR. SATO

 

 

Q.  If you are stopping the use of TS or NMT (if you don’t do them at the same time), which one do you prioritize?

A.  I start with No Moisturizing Treatment and then stop the use of Topical Steroids because while you are applying the steroids, you don’t get as much inflammation.

 

Q.  What is the difference between sufferers who get ooze and those who don’t get it?

A.  It depends on if the skin is scraped or not.

 

Q.  During infections, why doesn’t ooze stop?

A.  Because the bacteria is hurting lower, underneath layer of the skin.  (It has pus at the same time.)

 

Q.  While the scabs are tightly attached, can it be more difficult to get infections?

A.  Exactly.  Because if there is bacteria, ooze comes out and scabs come off.

 

Q.  Do you happen to know the representative example of external medicine that hides the presence of steroids?

A.  There are many in TCM (Traditional Chinese Medicine).  Not only TCM but ordinary therapy (medicine) often has the same issue.  If you get well immediately when using topical medicine, you should seriously question it.

 

Q.  I know the sauna can be a moisturizer but what about ‘Hot Yoga’? 

(**Hot Yoga is practiced in a room temperature around 39 degrees and 60 % humidity that makes your body the most flexible and encourages sweating.) 

A.  Of course, it can be a moisturizer.  However, some of patients with atopic dermatitis patients can not sweat adequately.

If you limited the sauna for the purpose of facilitating sweating and then evaluated it by your skin’s reaction, it is ok.

 

Q.  What is the cause of hives (urticaria) ?

A.  When histamine is released from mast cells, fluid leaks from blood vessels.

Most of the causes of chronic urticaria are unknown.

ACUTE URTICARIA  👇

  • For example, bluefish tends to develop a substance that can easily cause urticaria if time passes.  

CHRONIC URTICARIA  👇 

  • The cause is not well understood.
  • It is easy to get urticaria when you are in poor health. 
  • Environmental changes may have some impact.

     Caffeine can also cause urticaria.  Chocolates are not as bad as coffee.

 

                       Dr. SATO’S CLASS ON Apr. 26 2019 

 

 

     ****************

 

 

Everyone, did you learn a lot from this?

There are still many things we do not know, aren’t there?  Indeed, Dr. Sato’s information is amazing.

Anyway, I hope you feel thankful that we can get such helpful information at home by way of the patients’ meeting.

We tend to feel worried about our symptoms but we can get such GREAT information lying on the sofa by just opening cell phones or PCs….We have to realize that we live in such good time for learning.

 

Do you notice this?  Surely we have a better life than the Kings of old times.

They didn’t have an AC or TV or Computers and so on…and even worse, they needed to always protect their lives.

 

Let’s overcome this agony with full of appreciation.  Look around and see how many things that you can feel grateful for.

You are NOT alone…  Wishing your healing happens soon.

 

 

Have a GREAT day!

 

 

Written and translated by Tokuko Abfab

Edited by Marlene Diana Belle

 

 

Japanese Version  👇 CLICK HERE! 👇  日本語版はこちら。

脱ステ・超お役立ち情報 ー その7

 

 

 

 

#Tokuko’s Room To Feel Uplifted  #tokukosroomtofeeluplifted  #NMT  #No Moisturizing Treatment  #topicalsteroids  #steroids  #topicalsteroidwithdrawal  #atopicdermatitis


The Key Tips Of NMT For Babies And Children


 

Today, let me introduce about NMT (No Moisturizing Treatment) from the NMT doctors’ lecture meeting last month in Kobe Japan.   You can get valuable knowledge about ooze, protein, etc…especially for babies/children.

**Before I report information from the NMT “super doctors”, I get approval from them.  On this site, I am their spokesperson, so I have to be precise in sharing the treatment.  Otherwise, it will not be No Moisturizing Treatment.

 
Ooze contains valuable protein.  When the baby is oozing, so much protein is lost from their skin.
 

 

Dr. Kenji Sato, the super doctor who advocated NMT, believes there is a big difference in the amount of lost protein between children and adults.

He demonstrated this difference in a scientific chart using the comparison of the dice numbers with human bodies.

 
For example, see the below chart from the information provided by Dr. Sato. 
To help us understand, we can do the comparison with dice. 
 
 
 
To explain the chart:  
1 cm dice‘s Surface Area can be 6 and Cubic Volume is 1.  Its Surface Area/volume can be 6 : 1.
3 cm dice‘s Surface Area can be 54 and Cubic Volume is 27.  Its Surface Area/volume can be 2 : 1
 
 
This shows, in the case of children, oozing Surface Area can be MUCH bigger than adults.  That means, when babies ooze, they lose much more protein than adults.  It’s a VERY big difference and we have to take it seriously.
 
Therefore, to be healed and to avoid being severe, they need much more protein.  Breast milk is not enough to provide sufficient protein and nutrition in case they have severe symptoms.  It is actually dangerous when the albumin levels become low for a baby as this can result in hypoalbuminemia.
 
 
 
 
NMT super pediatrician Dr. Mitsuko Satou explains that when a baby is 6 months old, it is too late to start baby food for Atopic Dermatitis babies
(**Skin’s healing process is the same with TSW but I do literal translation from doctors’ provided information and she mentioned about AD this time.)

 

In terms of Nutrition: Formula milk and breast milk have a lot of water and less protein.  (Formula milk contains much more protein than breast milk.) To heal skin‘, they need more protein

In terms of Allergy: If babies start baby food earlier, there is higher possibility of avoiding the development of an allergy.

 

***NMT leading Dr. Mitsuko Satou is the Japanese pediatrician who specializes in working with babies and young children.  As a dedicated doctor of NMT, she works tirelessly to heal the children. 

 

At her lecture meeting, she says that severe Atopic Dermatitis children/babies lose A LOT OF protein and fat from the surface of skin.

Babies in such condition cry and scratch hard so mothers tend to breastfeed or co-sleep with them.  Due to the repetition of such actions, mothers cannot make enough breast milk.  At the same time, if these babies don’t eat baby food, their weight will stay flat or go down.

 

If babies lost weight…..

Due to anhydration, disturbance in electrolyte balance happens.  (Na: decrease / K: increase)

Due to insufficient protein, it may cause hypoalbuminemia.  If the protein level turned to be under 2 grams, it can be severe edema.

To avoid such a severe case, parents have to consider this VERY seriously
(**This is one of reasons that I highly recommend to get Doctors’ supervision all the time.)

 

 

Because of this corroborating evidence and her close to 50 years of experience as a pediatrician healing AD children/babies with both TSW and NMT, she highly recommends starting baby food earlier than usual as I mentioned above.  Her suggestion is supported by solid evidence.

 

This is important because I hear concerns about food allergy from parents when I explain about balanced diet.

Dr. Mitsuko Satou explains about it too.

 

  1. Food allergy is totally unrelated with Atopic Dermatitis
  2. Even if children got allergic reaction with the blood exam, it is different story if they get reaction when they actually eat the food.
  3. There is an evidence from the challenge test at the department of pediatrics in Kindai university hospital in Osaka Japan.  80 % of patients doesn’t show allergic reaction.
  4. Even if children have Percutaneous sensitization, if they can eat, there’s no problem.

 

Dr. Mitsuko Satou provides further evidence that it is better to start baby food earlier

 

  1. In Israel, 80 % children eat peanuts by 1 yr old.  In UK, 20%.  Peanuts allergy happens 0.1 % in Israel and 1.85 % in UK.
  2. Results of the test from 640 babies who have Atopic Dermatitis or egg allergy:    Peanuts allergy happened as follows:

 

 

Since there are readers who request evidence of NMT, I translated some of them above doing my best as one of TSW experiencers.

 

Although it is important for parents to understand evidence, I believe it would be wise to listen to NMT doctors’ voices and benefit from their vast experience of healing babies as quickly as possible.  In NMT, doctors provide the information at conferences to interested parents, dermatologists and other health workers without compensationThey have full love for their patients and want to help other sufferers.

It is important to understand that although the process looks easy, it is actually very difficult for both of parents and children.  Therefore, parents’ strong determination is required to accomplish NMT.

 

 

Below is the advice from Dr. Mitsuko Satou.  She highly recommends these Key Points for successful healing of AD children/babies

 

What Kind Of Moisturizers Should My Baby Use?◆

 

There are no moisturizers for healing.  First of all, you need to diminish/stop using soap as well as lessen the frequency of taking a bath/shower.
  If kids do not have infections, I (Dr. Mitsuko Satou) recommend taking a bath once or twice a week. (only a few minutes)


If it is not cold season, a shower for a short time is better than a bath because bath water washes away important generated oil.
  There are kids who do bath or shower only for 10 seconds.

 

 

The Key For Healing Of Babies And Little Children

 

  1. Leave kids alone at night.
  2. Let them scratch freely
  3. Take care to look into their eyes.  (Enjoy your child without being overly focused on their atopic dermatitis/skin problems.)
  4. Let them eat enough.
  5. Let them have as much active play as possible.  (It accelerates generating new skin.)

 

 

Leave Babies/Children Alone At Night

 

Leave babies/children alone while sleeping.  Parents should start this in an early stage.

(No need to nurse to sleep.  In the long run, they start to fall asleep within 3 seconds or 1 minute.)

For babies and children, continuous sleep accelerates skin recovery

Parents also need more restful sleep time so they can breathe more freely while they enjoy their children.  

That latitude let parents take care of children/babies happily and you can spend days feeling fresh.

 

 

Let Them Scratch Freely

 

If you allow the children scratch, they will scratch when they really feel itch.  Parents will see that they don’t scratch as much as they expected.

Most of the children’s itch happens because they would like their parents’ attention.

 

 

Deal With Babies/Children To Look At Their Eyes

 

Don’t look at the babies’ affected parts but, instead, look into their eyes.

Babies/children know what part their parents are looking at.

If you look in their eyes, their good parts come into your sight.

(**They see smiles rather than worry.)

 

 

Let Them Eat Enough Food

 

It is VERY important for AD babies/kids to eat well.  To generate new healthy skin, they need enough nutrition.

If your baby has severe symptoms, you should replace breast milk with formula milk making it 10 % richer to give higher protein.

It is highly recommended to start baby food as early as 4 months old.

 

(**All of NMT doctors fully know about the importance and benefits of breast milk….more than us.  This does not mean they are against breast feeding.  I also loved breast feeding.  However, scientifically, little children/babies are losing MUCH more protein than adults per the same surface area in order to heal their skin.  Thus, when compared to normal baby skin, injured skin needs much more nutrition.  Breast milk does not contain enough protein ‘in case skin needs to heal’.  This comes from all NMT doctors’ long experience and scientific background.)

 

 

You may think, “I can’t do this!” or “I don’t like that part!” or “I can’t agree with this line…”
  However, please understand that it is your personal choice.   If you don’t agree, you shouldn’t choose NMT.  NMT doctors just provide helpful information for your children’s healing.

To accomplish this treatment, you need to trust the research and vast experience of the specialists.  Without your strong determination, you won’t be able to achieve success.

 

If you have found only 1 line that helps you, you should bless the part and should recognize that you have accurate information to succeed at NMT. 

In other words, you can do NMT based on this information.  Since it is not possible to have NMT doctors, you have to follow their protocols as closely as possible

 

 

Well, I just want to say this.  My way of honouring the NMT specialists is to devote my life to helping the NMT community with accurate information.

 

CAREGIVING & GRATITUDE

 

Your baby may have severe symptom

You may be sad to see the rashes and sores and you may be very tired of taking care of your child.

 

Being a caregiver is very tough.  Your baby may cry a lot.  You may be irritated cleaning up the floor over and over.  Or you may have scolded your son/daughter for scratching….

 

However, try to imagine if this were not happening to you, and you were spending time without him/her?

Please realize this.  If your child is not there with you….do you often wonder if you could have a more normal morning today?

If you feel gratitude for the small things in your life, you will feel happier and be able to enjoy your baby more.

 

Your child is close to you.  You should take pleasure in his/her being alive. 

Close your eyes.  Take a deep breath….and remember your child’s smiling facial expression looking at you….That is happiness

You are already surrounded by happiness.

 

 

Focus on your happiness that you already have.

Enjoy childcare!

 

 

  ***I recommend you try the therapy with a doctor who you can rely on because sometimes you might get infections that spread, hypernatremia due to extreme water restriction, hypoproteinemia and hypoalbuminemia due to losing too much protein and some other sicknesses that  might happen secondary.  Even after stopping usage of TS, I used to see steroidal dermatologists often for checkups while I was taking bed rest at home.  (Non-steroidal doctors are VERY difficult to find even in Japan.)  It doesn’t matter if the dermatologist can take care of TSW or not.  Only medical professions can diagnose dangerous symptoms.  ***

 

Written by Tokuko Abfab

Edited by Marlene D.

 
 
#Tokuko’s Room To Feel Uplifted  #TSW  #NMT  #tokukosroomtofeeluplifted  #topicalsteroid  #nomoisturizingtreatment

‘The NMT Healed Club’ is launched!


***一番下に日本語の説明がありますので、是非読んで、仲間入りして下さいね。

TSW (Topical Steroid Withdrawalsufferers,

I have established The NMT Healed Club on Facebook with NMT (No Moisturizing Treatment) masters who have learned NMT very seriously by themselves and accomplished it reading this blog.

Even if you don’t take NMT, to see healed members’ reports must make you feel uplifted and give you a hope.

Please read below Announcement and join us! 

 

  👇 CLICK HERE to join ! 👇

The NMT Healed Club (No Moisturizing Treatment) – Official –

 

The Announcement of The NMT Healed Club

 

 

◆The NMT Healed Club◆

  👇 CLICK HERE to join ! 👇

The NMT Healed Club (No Moisturizing Treatment) – Official –

***You need to be a member of Facebook to join the group.

 

If you’d like to learn NMT, go to Education site! 

◆NMT Education Group◆

 👇 CLICK HERE to LERN ! 👇

NMT Education Group (No Moisturizing Treatment) – Official – 

 

 

Healing happens to you too!  Hang in there!

 

 

ステロイドのリバウンドで苦しんでいる日本の皆様へ

 

私は、このブログの他に、Facebookでも脱ステ脱保湿治療の素晴らしさを日本中に、そして世界中に広めています。

 

日本語版は 脱ステ・脱保湿サポートグループ

英語版は NMT (No Moisturizing Treatment) Education Group

 

どちらも、批判などによるストレスのないグループとして、患者さんを守らせて戴くために、

メンバー以外は見ることのできないクローズドグループとして運営させていただいております。

発足間もないにもかかわらず、よくなった皆さんが自発的に広めて下さっている為、

メンバーがうなぎ上りに増えています。

 

****************

 

さて、さらに今回、新しく発足しました、The NMT Healed Club では、

The NMT Healed Club (No Moisturizing Treatment)

英語が苦手な方でも、映像(写真)で、必ずよくなることを確信できます

日本の皆さんも、是非、参加なさって、辛くなった時など、のぞいてみてくださいね。


皮膚炎については、ストレスは大敵ですので、

入会には厳しい規則があります。・・・・ウソです。(笑)

 

入会希望のボタンを押すと、英語の質問が3つ出てきて、

同意していただけるかお聞きします

そちらの日本語訳した内容は以下の通りです。

 

Q1. (私たちの運営理解の為、3つの質問に全て答えて下さい。)

このグループでは、あなたが『脱ステ脱保湿』でよくなった、あるいは治ったという報告のみを発信することができます。同意しますか?

 

Q2. こちらのグループではあなたの症状に関しての愚痴はお受けできません。また、あなたの症状に関してのQ&Aのグループでもありません。よくなったことの報告で、お互いに励まし合い、元気づけ合うためのグループです。同意しますか?

 

Q3. このグループでは、『脱ステ・脱保湿』療法の一環として、心を前向きにしていくために、ポジティブなエネルギーで溢れるページ作りを目指しています。否定的な内容は受け付けられませんので、何かを発信する前に、私共のポリシーに沿っているか必ず確認してからポストしてください。また、他者の写真を勝手に使用することはおやめください。同意しますか?

・・・・と、これだけです。

どうです?この狭き門?(笑)

 

参加なさりたい方、もう、なんと答えればいいかおわかりですね(笑)?

出てきた横文字にビビらないでください!(笑)

どんなに英語の苦手な方でも、

あの3文字の単語を使って3つの質問に同意して戴ければ入会できます。

Yes.

Yes.

Yes.

これだけです!ピリオドを忘れた、とかくらいで不承認にはいたしません!(笑)

 

英語が得意でなくても、脱ステ・脱保湿でよくなった方は、

『治療前治療後』の写真をポストしてくださるだけでも大歓迎です。

3 months later.(3カ月後)などのセリフをつけてくださるのもさらに歓迎です。

 

患者の皆さんの声が大事です。

日本人のみなさんも、是非、この日本発の治療で世界を救うお手伝いをしてください。

恥ずかしがらずに、あなたにも社会を変える力があることに気付いてください

よろしくお願い致します!

 

  👇 クリックしてね 👇

The NMT Healed Club

 

 

#Tokuko’s Room to Feel Uplifted       #tokukosroomtofeeluplifted


Healing Happens to Kids and Babies with NMT


*英語版ですが、脱保湿でよくなったお子さん達の ’経過写真’ のある日本のブログを紹介させて戴いています。


Today, let me introduce a blog written in Japanese for parents with AD (Atopic Dermatitis) children/babies or TSW (Topical Steroid Withdrawal) ones.

It has children’s improved/healed pictures with NMT(No Moisturizing Treatment) 💝.

The blog is from NMT super pediatrician, Dr. Mitsuko Satou‘s one of parents’ groups called ‘Kyoto Kirakira Boshi’. 💕

All of them are written in Japanese but once you opened it, you can tell what I’d like to say. 😌

 

Just see the pics

 

Imagine how parents were feeling/worrying until they see their babys’ healing.

Still, they kept being patient trusting this method and crossed the finish line successfully!!!😊

 

**************************************

 

The baby in the first report was using prescribed Topical Steroids frist to be seen by a doctor.  And then stopped using them with our NMT super pediatrician, Dr. Mitsuko Satou.

(The explanation of the first report is under the post.)

Healed Children’s Report with NMT #2

体験記 No.2

*This report starts a pic with her 1 mo, 2 mo and 3 mo with TS.

*Then she stopped using TS and started NMT at 4 mo.

Started to be seen by Dr. Mitsuko Satou.  The symptom is not regarded as severe one.

*Then 5 mo.  Intense itch.  Not dried yet.  Started eating food for nutrition.

*6 mo.  Read Dr. Kenji Sato and Dr. Mitsuko Sato’s group’s posts and knew that healing would happen to let them scratch freely from a lot of experiencers’ comments.  Became to be not so concerned about her scratching.

*7 mo.  It started to dry sometimes.  Got cellulite (foot).  And then herpes (forehead)-Been prescribed antibiotic.

*8 mo.  Sleeps 3-4 hrs continuously. Skin started to improve.

*9 mo.  Not scratch so often. Eat well. Crusts are getting smaller.

*10 mo.  Scratchs only when she cried or is hungry.

*11 mo.  Not scratch so often but sometimes refrains to get red rush and get well again

* 1 yr.  Skin is getting clearer. Still repeating to get a little rush and get well.

*1 yr 1 mo.  Even if she scratched strongly, skin doesn’t get scars. It is getting stronger. In winter, a little dry skin. (dry season in Japan.)

*1 yr 2 mo. – 4 mo.  Cheeks are red but her condition is very good.

*1 yr 7 mo.  (Last pic)

 

 

See another pics of baby’s improvement below.  Then, 4 more reports are following.

Healed Children’s Report with NMT #4

体験記 No.4

 

Healed Children’s Report with NMT #6

体験記 No.6

 

Healed Children’s Report with NMT #5

体験記 No.5

 

Healed Children’s Report with NMT #1

体験記 No.1

 

Healed Children’s Report with NMT #3

体験記 No.3

 

*************************************

 

The choice which treatment you take is always up to you.  You don’t need to explain to others or me that you can’t do this or that to not initiate NMT.  No one needs such info…lol

If you think you can’t accomplish it, you don’t need to choose NMT.  I don’t force anyone.  You should take what you believe.

However, if you’d like to do NMT, please learn it ‘SERIOUSLY’☝️reading the information over and over because it requires accurate knowledge.  You need to know what you have to do or shouldn’t do.

At the same time, to accomplish NMT, you have to forget about their symptoms, meaning, raise children without seeing affected parts and give them your biggest smile looking into their eyes ☺️.   I’m not a doctor but still know the importance of the good indifference as an AD patient so I keep telling you the same thing with our super pediatrician, Dr. Mitsuko Satou.  Forget about it.  Ok?  It is the key for your kids’/baby’s healing.  Believe it or not, it is true. 

 

 

Since it is more difficult to do NMT thoroughly for kids and babies,  just do as much as possible but don’t mix other methods like applying moisturizers, adding bath additives, etc…

 

Per Dr. Kenji Sato’s book, only for kids and babies, doctors have to think about the exception to cope with their ‘strong pain’, especially in cases they got cracks in areas such as inside elbows or back of knees.  Sometimes these are cases to apply Vaseline or some other ointments (not Topical Steroids or Protopic) and a piece of gauze/bandages.  These areas are difficult to do NMT especially for kids due to pain so practice or remember the standard of this method in mind and do exception.  (The healing is faster without moisturizers but sometimes it is difficult for children.)

 

Also, as for splits in fingers, even adults get approval to fill a tiny bit of Vaseline or Propeto or some ointments only ‘in‘ the cracks to diminish the strong pain.  Transmission system above the palms (=fingers) is different from others.  Again, to fill it only in the cracks on fingers is fine if you can’t stand the pain but don’t apply on entire area.  I didn’t do it since I prefer faster healing. (^_^)

 

 

Of course, doctor’s supervision and advice are needed always and crucial to get checkups or to prevent other/further illness.  For babies, especially increasing in body weight is so important for faster healing.  Having a well balanced diet is the key rule on NMT.  Enough protein is needed to generate new healthy skin.

 

Immediately go to the doctor if you think your child has infectionsDon’t ask non-medical professions to diagnose!  Doctors are responsible to offer proper diagnosis, not caregivers.

 

I know it is VERY difficult to find out non-steroidal doctors but it is similar all over the world including Japan.  As a caregiver, you need to learn how to address to medical professions to get appropriate (necessary) support only. 

 

Try to seek understanding doctors.  It doesn’t need to be dermatologists.  Pediatricians, physicians, etc….Your child/baby needs medical support. 

 

Call receptioninsts first to ask if they can assit patients without TS to avoid stressful confrontation.  There is no need to persuade steroidal doctors because it is almost impossible even in Japan too. 

 

Imagine this.  If you are asked to change your belief that you received from your hard work/learning, do you change your mind right away The answer is obvious…lol  Don’t waste your time.  Try to find out other solutions doing your best. 

(I sometimes receive messages regarding this.  However, please think….Even if you asked me, I can’t change your country’s rules….LOL!  Do what you can do now as much as possible.  Just do your best.) 

 

I also have many horrible experiences with steroidal doctors in Japan.  I just didn’t complain or give up my research until I finally found NMT….for years.

 

 

If you are interested in NMT, please join Facebook group NMT Education Group answering 3 questions.  To protect group members, we definitely need your answers with agreement.

👇 CLICK HERE 👇

NMT (No Moisturizing Treatment) Education Group

 

 

The group was established to disseminate NMT and to help out TSW sufferers from Atopic Dermatits/eczema all over the world not only to support anti-steroidal doctors but also educate all people and professionals about TSW

 

Due to limited staff, and the high volume of those in need of assistance, we are not providing personal support answering each individual’s questions.  However, you can learn a lot from the site to read admin’s comments and NMT doctors’ advice.

 

 

Again, learn it seriously.  Master the Do’s and Dont’s of NMT.  Read everything again and again making a notebook because NMT doctors are not there with you.  (That is why I shared the info to the world in English.)  Caregivers’ such effort works for the fastest healing.

 

 

Well, as you know, parents don’t want to show kids’ pictures on the internet but this time, I got approval to share the blog for TSW sufferers.  This means, they are thinking about you

You are not alone!

 

Please don’t complain about your situation even if NMT doctors are not there.  They also thinking about you.  That’s why you are reading this info here.  Focus on blessings!

 

After healling happened, hope you don’t stop this jorney and can be brave like these children’s parents showing improved pics to help future children and to change the world.  (You can cover kids’ face, of course.)

 

 

Be positive.  Enjoy childcare. 💖💖💖

Healing happens to your baby/child too.

 

Have a GREAT day!

 

 

 

#Tokuko’s Room to Feel Uplifted      #tokukosroomtofeeluplifted


To Fellow Sufferers in the Hospital


 

Hospitalization……

This word has very negative image and dark connotation for anyone.

I used to be confident in myself about my health and actually, appeared extremely healthy by others except for having Atopic Dermatitis.

 

However, after stopping use of Topical Steroids for AD, I got severe symptoms all over my body and wasn’t able to even walk.

 

I looked like a burn victim and it was impossible to have ordinary daily life.

So there was no choice except admitting myself to the hospital.

 

The name of my primary sickness was hypoalbuminemia but not dermatitis induced by Topical Steroids due to my unique case.

Since so much protein was spent to repair my skin because of a huge amount of shedding skin every day and ooze that contains important nutrition, protein, ran all over the surface of skin, the protein in the blood diminished until the limit of human-beings.

 

 

My symptoms of Topical Steroid Withdrawal (TSW) was the worst in the hospital.  However, the secondary medical condition turned out to be the very serious problem.

Still, my hospitalization for TSW was not life threatening disease and I didn’t believe I could die due to dermatitis.

 

 

So, I made a big resolution before I enter the hospital.

Ok, I’ll be the patient who has the sunniest and most upbeat disposition in the hospital!”

It may seem like a very out of place decision to you….lol

However, yes, that’s me.  Although I enter the hospital due to VERY severe dermatitis, I still thought about such a lighthearted detail…LOL!

 

As a challenge, I made a decision thinking, YepI’ll erase the bad image of HOSPITALIZATION!”

….My entire body was like a tattered T shirt and I barely tottered to the bathroom panting with breath-stopping pain.

Still I entered the hospital with passion like a leader of a motorcycle gang who is about to head for the enemy’s territory….LOL!

 

Even if the symptom is the worst in the hospital,

even if I can’t sleep at all with the discomfort of intense itch,

even if I am struck down with unimaginable pain when I step forward 1 cm,

I knew I would not die with it.

(While doctors/nurses were bothering themselves with my severe symptoms monitoring me due to serious deficiency of protein, I was thinking of such a funny/trivia thing.  I guess I was a real gang…lol)

 

 

Because of the word of hospitalization, the fact that you have an illness and your image that you are in the battlefield against it, anyone tends to be a real patient beyond necessity after we entered the hospital normally.

Yes, in our minds, we may want to give in to our situation/symptoms.

 

 

However, we should remind ourselves this. 

There is hope if it is not a life threatening disease or is not the one you thrash about with pain though it takes a while to get well from the symptoms of illness.

We should feel grateful about that and try to make our days enjoyable.

 

 

When you go in to the darkness, you should go with the light turning on

Fortunately, I entered a 4 beds room in the hospital that became vacant right before my doctor in Tokyo called.

Since I’m a such peculiar person, I guess it was too much for other 3 room mates….LOL!

However, light and dark can’t exist together.

If you turned on the light, the darkness would be light, so the darkness disappears.

 

 

I believe my room mates were irritated by my cheerfullness for a while……Ahem….I’d like to say sorry for them…lol

However, we made best friends so quickly after all.  We laughed the whole time during the hospital stay.

All of us were having Topical Steroids Addicted symptoms.  So we knew it was not life threatening case and wouldn’t be forever,

We enjoyed life in the hospital.  As long as we remain positive, it would accelerate our healing and could be a kill-two-birds-with-one-stone solution.

 

Ahem….I thought ‘considerately’….however, sometimes nurses stopped by our room to see us laughing out loud and said,

“Excuse me……, let me close the door.”…….smiling.

I have to apologize about our childish behavior….and I still feel sorry for that……..Anyway, it was fun!

 

After the nurses left, I always said,

“See?  It was your fault!  You guys are SO funny so I can never stop laughing!”

We struggled not to laugh, but laughed out loud again even more…..LOL!

 

 

In the meantime, my room mates left one by one, since their symptoms were less severe than me.  Then, new room mates entered to my room one by one.

Still I heard the nurses said,

“Excuse me, let me close the door. (^o~)b”

with a nice smile…..LOL!

Nurses were really kind all the time and I finally realized,

The source of evil was ME, after all.”………LOL!

Yes, I reflect deeply on my behavior, I guess, maybe since it is the hospital!

 

 

I believe it is better to enjoy your life this much!

Again, there is hope even if your body is tattered condition, if it is not life threatening disease, and if it can’t be healed today or tomorrow you should focus on hope but not getting depressed through dark times.

 

 

Although the strongest Topical Steroid Usage of mine was incommensurable long period, and my symptoms were extremely severe compared to other sufferers, I was able to enjoy my hospitalization.

My experiences with room mates one after another for 3 months kept me laughing and in high spirits.

I feel as if their warm hearts are still with me to this day.

The continuous encounters of such wonderful friends made my heart fill with thankfulness and I was able to keep my state of mind very positive.

 

 

It seems as though my positive outlook helped in my healing process.

My extreme and severe symptoms were miraculously improved in a very short time frame.    

Amazingly, the abject flare all over my body became completely smooth and cleared up even though I haven’t applied anything on my skin for 3 months.

I believe it was due to the logical and proven method, No Moisturizing Treatment (NMT), and power of laughter.

 

 

               *** If you are interested in seeing pictures to see the improvement

                    without applying topical products, click below.

                     (I don’t attach pictures of my symptoms often in this blog

                      because this place should be uplifting one for you.)

                       Pictures are very bottom of the article.

               👇 CLICK HERE!  👇

                             Topical Steroids Do Not Cure Atopic Dermatitis

 

 

As most of you can see, our state of mind has a clear cause-and-effect relationship with healing of skin problems.

It is supported scientifically that if you laugh or have fun, your body heals itself from sickness

If I made all sorts of complaints every day during the hospitalization, I don’t think healing (and the miracle) happened to me so quickly because my symptoms were extremely severe.  And even worse, such action would have negatively affected my dear room mates if I did. 

Well, aren’t you despairing over your symptoms with loss of hope every day?  If you are, do you think you can get well fast with such state of mind?

Also, if you keep complaining about it to other sufferers, it affects not only your symptoms but other sufferers’ also.  If you don’t cry over, it will make a win-win result and you’ll be surrounded by happy people after all.

 

 

To fellow sufferers in the hospital,

You may cry or be depressed at times, but please try to set out to be the patient who has the sunniest and most upbeat disposition in the hospital.

I know you can make it! 

 

It’s your turn.  Healing happens to you too.  You knew how to make it happen.

I wish you get well soon.

 

Have a GREAT day!

 

 

 

 

The Original Post in Japanese

    👇CLICK HERE👇 日本語版はこちら

現在入院中のあなたへ - ステロイド副作用を乗り越えるために

 

 

 

#Tokuko’s Room to Feel Uplifted


Are you on sick leave? – For sufferers enduring the agony of TSW


 

During severe TSW (Topical Steroid Withdrawalsymptoms, you are pushed into the situation that you can’t go to school/work and there’s no choice usually.  TSW is such a horrible condition.

You might think like,

I guess I need to quit my job soon….” 😭
I can’t have even ordinaly school life!  I would be better off dead!” 😭
I can’t keep being on sick leave anymore.  My boss and co-workers are sick and tired of me….” 😭
 
 
….I hear such voices very often from sufferes.  However, your symptom won’t change tomorrow obviously.  Skin problems always take time to heal.
Well then, how about thinking as follows?

 
Thank goodness,
I can concentrate on treatment!”
 
 
Even if your boss made a sarcastic remark,
as of this moment, you have been concentrating
on treatment actuallyIt’s the actual happening fact.
 
 
Without having gratutude for the present fact,
do you repeat what your boss said again and again in your head?
If so, it just gives you a stress and would affect to your symptoms.
And even worse, healing takes longer after all.
The late healing will be worse result for your co-workers too.
I mean, it is waste of your time to lament over things uncontrolable.
 
 
 
Anyway, the fact is, you are on sick leave or are absent from school currently.
In other words, you are able to be on sick leave and can be absent from school.
If that was the case, you should appreciate it.  In any situation, try to find out gratitude.  It’s here and there!
 
 
Again, it is waste of time if you think like,
I can’t extend sick leave anymoreI can’t deteriorate it anymoreWhat should I doWhat I can do?”😭
Ahem….what are you thinking about?  What do you have to do now?  You are on sick leave anyway, right?…….It shouldn’t be the time to think like that now.
 

You got a time to concentrate on treatment fortunatelly!

 
Please focus on your treatment.   Feel grateful about such a precious time and circumstances.  Utilize this opportunity being on sick leave.
Your anxiety should come next, maybe after healing happened, because current situation is uncontrolable right away.  If symptoms are incurable ‘right now’, it’s better to try to get well faster thinking about positive things but not sitting there with discontent.

 
As you have already realized, your mental state affects to your skin condition
Sometimes we run across agonies that nothing can be done about it in our life.  However, nothing good happens even if you had grief and sorrow about it.
You should notice this.  It is not the time having anxiety about your futureFocus on getting well first.  That is what you have to do now!
 
 
Be happy with your given intermission/interval while being on sick leave.  Keep being positve.  It’s for yourself.
 
Healing happens definitely to anyone.  
 
 
Have a GREAT day!
 
 
 
 
P.S.  For the fastest healing of TSW (Topical Steroid Withdrawal), I recommend ‘NMT (No Moisurizing Treatment)’ as one of experiencers.
If you are interested in it, please read other articles going to the menu below.
 
 
 
 
👆This article above is a partially translated one of below original in Japanese.
 
 
 
👇Below is the original post.    

For sufferers enduring the agony of TSW 
– To get over rebound symptoms of Topical Steroids even a little easier👇
 
 
 
 
# Tokuko’s Room to Feel Uplifted

The Curse Of ‘Stop Itching!’


 

This message is for the patients with Atopic Dermatitis, people going through horrible symptoms during Topical Steroid Withdrawal, and to the patient’s friends and family.

 

Today, I would like to share my thoughts onitchiness.

 

 

Don’t scratch your skin.’

I am sure at some point, someone has said this to you.  It might happen frequently in your life and might be from your parents, friends, and your acquaintances.  Even the dermatologists will tell you this like,

‘Please try to refrain from scratching.’

‘Scratching will worsen your condition.’

‘Do not itch!’

etc…

 

When you itch, your skin breaks, oozes, and sometimes you may even bleed.  When you experience an intense itch and you rip through our skin, the aftermath is often very ugly.  (Actually, the itch ONLY subsides when the pain from the itching is greater than the itch. )
The wounds that you are left with take a long time for it to scab over, and heal.

 

If I didn’t itch, I wouldn’t have this pain.
If I didn’t itch, My skin wouldn’t have been so messed up.
If I didn’t scratch, it wouldn’t take so much time to heal.

 

I am sure many thoughts run through your mind, and you start to feel like you did something very wrong…

 

You may think that you areweak because you gave in to the itch.  You may even feel a sense of defeat.  After your scratch fest, you may dwell on the fact that you itched and worsened your skin, and become heavy with regret.
But please realize this…
You have anitchydisease!
The people around you may say ‘Don’t itch!’ but the itch you experience is an unbearable one.  No human being can tolerate this magnitude of itchiness.

 

The ‘itch’ makes you want to rip out your organs, scratch away your body parts, and is bone deepNo one can withstand this kind of uncontrollable itch.
There are even some Itchy Attacks when it almost feels impossible to breathe because of the intensity of the itch.

You are all enduring through this so well.
It may be worse to have a neverending painful disease, but having an unbearable itch is a horrible experience as well.
I deeply understand what you are going through!

 

And at times, our friends and family may be concerned and may say things like..
Don’t scratch your skin.’
You really shouldn’t itch.’
…You probably think to yourself,

(This is an unbearable itch that no one can endure!).

Our family and friends say things out of concern, but it most certainly can be annoying (and unhelpful).

 

When your loved ones say things like this, please pay no attention to their words.
They have not experienced the type of itch that you deal with.
They do not understand the intense magnitude of the itch.
Maybe their only experience with itchiness is a mosquito bite in the past.
But they are only saying things to you because they want to help you, and prevent your condition from worsening.
…Even if their advice isn’t helpful at all, please just say Thank you.’ and then forget what they said to you.

 

 

It’s impossible to resist the ‘itch’, and that’s okay.
Just because someone is sharing their views does not mean that you need to listen or obey to it.
Don’t feel bad that you can’t follow what they say.
You are experiencing something that they have not experienced, and because of this you can have compassion for their lack of not knowing any better.
Even if the ones telling you to stop itching may be your parents, or be your senior, in regards to itchiness, you have more experience, and have more say on the issue.

 

The biggest issue here is how YOU feel about YOUR injured body.

So many people feel self hatred during this process.
But as I have said many times before…It’s NOT your fault.
Please forgive yourself for scratching yourself.
It’s okay to itch.
It is anitchydisease.
As there are ‘painful’ diseases, and many uncomfortable diseases, the biggest problem with this disease is that it causes major itchiness, and there is no way in preventing this.

 

 

Place your hands on your heart, imagine your younger, little self (you can talk to “Little <Your name>”) and say outloud:

I forgive myself for itching myself.’

Or you can try this…place your hands on your heart and talk as if you are talking to your younger you..

‘<Your name>, I am so sorry for itching.  But I totally understand.  It really is a intense and uncontrollable itch.’

 

Please forgive yourself, and encourage yourself.
Do not blame yourself.
If you tend to blame yourself and feel self hatred towards yourself, please please try this little exercise, and help to heal your heart and body.
It is painful to not have forgiveness.  If no one can give this to you, YOU can forgive yourself, and surely it will make you feel better.

 

   ********************

 

Next, this is a message to those caregivers around the patient, those who have not experienced the itch on a first hand basis.

 

Even though you do not have the actual symptoms of this disease, it must still be very hard and painful to watch your loved one suffer so much.
I believe that everyone who is reading this blog truly cares for the patient and has a kind heart.

 

Because you have a kind heart, I want to ask you to not tell your loved one to ‘stop itching/scratching.’
Of course you only say this because you want to prevent his/her condition from getting even worse…An act of love.
Even though the patient may feel thankful that you care so deeply about him/her, the itch that he/she is experiencing is beyond any means of control.
I can say with confidence that the itch is so intense, that it is impossible for a human being to withstand it.

 

If you had the same exact symptoms, surely you would itch the same way.
You would probably itch so intensely, that you may forget to breathe.
Even if someone tried to stop you, you would think, ‘Don’t stop me!!’ and would writhe and itch until the pain surmounts the itch on your skin.

 

 

Because of all of this, trying to encourage the patients and telling them to ‘Stop Scratching’ is a meaningless exchange.
Please understand that they have a ITCHY disease.
One of the main symptoms of this disease is to have a uncontrollable itch.
When you tell someone to stop scratching, it is as if you are telling a patient with a painful disease to ‘stop feeling the pain, stop being in pain’.
It is the same as if telling a patient going through a tough time ‘stop struggling.’

(…No way…I can’t endure this itch.  If you had this disease you wouldn’t be able to control it either!!…)

I am 100% sure that the patient thinks this when you tell them to ‘Stop Scratching’….lol
Please understand that nothing can be done about the itching, and accept their condition as is.
If we try to keep changing them for something they have no control over, it will only cause stress for both parties.

 

There are times when the itch can be endured a little bit, and the patient is usually always enduring to a certain degreeNo one wants to scratch until it hurts, to the point where his/her skin is completely raw.

 

Many people try to resist scratching.  I believe that the young people especially must be so conscious not to scratch the day before going on a date.  Even during those ‘important times and moments’, there are times where you cannot stop the scratching…lol

 

Your advices are sincere, but it is impossible to stop.  Even for those patients who seem to scratch out of habit, they are scratching because there is an actual itchIt’s not a bad habit, they are itchyPlease don’t think that they have a bad habit of scratching.  They have a itchy disease that feels uncomfortable unless you scratch.

For the most part they are already enduring some level of itchiness all the time.  If you were to have a small mosquito bite and was told to ‘not scratch’ wouldn’t it bother you a bit?

 

 

When I hear about babies hands being tied so that they won’t scratch, it makes my heartbreak thinking how torturous this is.

(Please don’t do such a poor thing!!  It is way too painful!!)
Because I know how they feel and how intense the itch is, just imagining having their hands tied is horrendousOn behalf of the baby I want to cry and shout to you…Try being in my situation!!  It’s so hard, you wouldn’t be able to bear the itch either!!’

 

 

There is a medical hypothesis that claims, ‘The action to itch causes indescribable pleasure, and this is why people itch.’
But I want to clearly state that we are not that stupid…LOL!
It is abnormal to injure your whole body because you want to feel pleasure (unless you are in to that stuff…hehe!)

 

The fact that we feel better after we scratch is a very normal state for us, I mean, we just can be the same condition with ordinary people’s natural state.
We want to feel normal again, the body just wants to return to its natural state…and thus we itch.
We just want to be free from the irritation and pain that comes from the unending itch.
Even before itching, patients know fully well that their itching will cause pain.

 

So if whatever you say will not help them, you can just leave them as be.

 

If your loved one had an itch fest and looks like they are down and regretting what they didthis is when you can come into play!

Say something that will ease their pain…make them laugh a little bit.
When you can share your mutually favorite jokes or a comment that lightens the situation, their depressed feelings start to lift.
For these unavoidable symptoms, these are the only things that you CAN do.

 

 

If you are by the patients and if they tend to feel down after scratching, the most powerful thing that you can do is to continue feeling your own happiness.  You don’t need to try to make them happy.  YOU should keep being happy.
Unfortunately, you cannot switch places with them or can’t take all their pain away.  However, by shining our own lights close to them, they will surely feel the warmth of your presence.  Be the Sun of your loved one.

 

   ********************

Well, we have four seasons in Japan.

In winter, we have the dry, painful, and itchy seaon.  And when it comes to an end, spring comes with a different type of itchness….lol  Then rainy season brings flares due to the low pressure.  After that, a humid and uncomfortable summer begins.  The sweat tends to make us itchier.  The cycle contiues and the cold season comes again… (;^_^A

 

It can be difficult to deal with the seasonal changes with a sensitive system.  You may feel sick of it all and want to shout, WHEN WILL IT EVER END?!’

But I am certain that for some special reasons, this sickness is happening to us.
This experience has meaning for the patient, and also for the caregiver

 

You do not have to feel defeated from this trying experience.
Please learn and grow from this experience.  You can take away something that is entirely positive.

If we do not take advantage of the experience, our experience will have no meaning.
Even if initially is a negative experience, we can make into a positive experience.
When we do this, we start to see the meaning of why this has happened to us.

 

Do you ever say or feel this way?
(Why do I have to experience such horrible things!?)
If we just complain and do not find reason in this experience, our suffering will lose its meaning.


(I’m going to take advantage of this experience!!!)
When we start to think like this, the meaning of the experience starts to become visible little by little…You may even possibly find out one of the reasons you were born to this world.

 

For example, through your illness you may now be able to relate to those with chronic illnesses…
Your experience has become alive!

And now if you can start to encourage those on similar paths
You are making your experience come alive

You have enriched your life through this experience, and can make a difference in others lives as well!

When we turn the negative to a positive, in that instance, this whole experience will start to have a new meaning to you alltogether.

 

 

Even if you are struggling right now, you will surely heal with time.
Please overcome this challenge with a smile on your face.

 

 

Have a wonderful day!!

 

 

Translated by Hikari M.

Edited by Tokuko Abfab

 

 

   👇 オリジナルポストはこちら 👇The Original Post in Japanese

掻いてはいけない、の呪縛?

 

No Moisturizing Treatment (NMT) allows you to scratch.  If you are interested in it, please read and learn about it below.

 

How to get over Topical Steroid Withdrawal asap!

 

What can be Moisturizers? – For fellows launching ‘No Moisturizing Treatment (NMT)’

 

Is your symptom Atopic Dermatitis or Dermatopathy Induced by Topical Steroids?

 

Like an Actress…



And more….Go to [POSTS IN ENGLISH] in this blog!  Feel better!

 

 

#Tokuko’s Room to Feel Uplifted    #tokuko’sroomtofeeluplifted


What’s Wrong?


 

Dear Atopic Dermatitis sufferers, parents/caregivers,

and those who are going through devastating side effects after ceasing Topical Steroids,

 

I believe that your days are filled with stress and agony.
 
Even those who are very healthy make a big deal when they experience skin inflammation usually.  Even if it is a tiny mosquito bite, they tend to complain about the discomfort and itchiness.  However, the symptoms of Atopic Dermatitis (AD) and Topical Steroid Withdrawl (TSW) are incomparable to this, as it covers the whole body, is unbearably itchy, your whole body hurts, you are uncomfortable, its depressing, and you look unrecognizably bad…For those who are in the thick of this right now, its really a huge load to deal with…and I truly understand how hard it is.
 
 
When you go out with lots of skin inflammation and feeling ugly, I am sure you have experienced people asking you,
What’s wrong?’

 

Or you maybe a caregiver with a child going through symptoms, your heart has been aching for a long time as you see your child suffering, and you can’t even remember when was the last time you had a good nights sleep…and someone asks you,
 
What’s wrong?’
This seemingly innocent question can cut through the hearts of moms and dads.
 
(We are doing the best we can!  Leave us alone!)

 

…And while going through Topical Steroid Withdrawl, the initial withdrawl symptoms make it seem that your condition is getting worse..
and during this hard time a random person may criticize your treatment plan, or give you some kind ofadvice.

 

Even when this person hasn’t even read a SINGLE book about Atopic Dermatitis, they may give you advice such as..
 
‘Maybe you need to change your diet?’
 
Usually you need to make a lifestyle modification with a condition like yours.
 
When you (mom/dad) have searched through all the books and the internet about the condition, and are doing the best to take care of your child…How could they lecture about what to do, or what not to do…??

 

PLEASE STOP IT!!
I AM ALREADY DOING THE BEST THAT I CAN!!!!
 
 
I understand this anger you feel wholeheartedly….
I understand your deep sadness as well.
The vexing emotions are real.
I truly understand all of your feelings.

 

However…I will say this knowing that it may antagonize you…
 
For myself, even when I received thoughtless remarks, I do not get upset.
I don’t feel sad, or have vexing emotions.
I do not feel sorry for myself, either.
I truly DO understand all of your emotions while going on this rollercoaster ride, and the reason why you feel that way too.  But I have never felt that way.

 

This must seem so odd to you.
Usually people get upset when someone questions what they are doing or lectures them about what they should do.
It’s not that I don’t understand these emotions – I actually feel that I totally understand why you feel that way.
And when I receive many messages about how horrible you feel on this journey, I feel deeply sorry for you and it makes me want to cry.
However, with that said, I still do not feel the same emotions.

 

When someone asks me,
 
What’s wrong?’,
 
my first thought is…
This is my CHANCE!!!’
I automatically think this!

 

‘Are you serious?’ 
‘You must be insensitive!’
Some people may feel this way about me, but to be honest, I am a very sensitive person that feels very deeply and empathetically to others.
With that said, being ‘sensitive‘ and ‘how you process your thoughts‘ are two totally different things.
Being sensitive does not equal = You are weak.

 

Sometimes people say malicious things on purpose.
But for the most part, when someone asks What’s wrong?’, it is because they truly do not know, and have no information regarding the subject.
Because we are ‘different’ from what they know, they wonder why it is so, and speak without thinking.
And though it may annoy you, some maybe truly concerned about you and asking why you are having those symptoms.

 

You and I both know that we do not think 100% of the time about what we are going to say before speaking. 
And the What’s wrong???’ that we may encounter from time to time may be one of those moments where they are speaking without thinking.

 
Of course, this differs from the people who intently come lecturing at you, wanting to change your mind on the subject.
It takes a lot to come to a decision about which treatment works best for you.  You need to study a lot of material, think about it a lot, make a decision, and commit to it.  Even then, some people will say, ‘Why are you doing that?  The other treatment is better!’
These people are trying to change other people’s mind, and these are not the type of people I am talking about today.

 

These things happens often, but for an example, when someone develops cancer, the patient is bombarded with information from surrouding people:
This treatment is good, there is this treatment that works great, etc…
And sometimes when the patient chooses a different treatment, some people may get very upset:
‘Why didn’t you choose the treatment I found for you!  You might have gotten better if you listened to me!’
But usually, the patient with the condition has studied much more than any of their friends on the subject matter, weighed the pros and cons of each treatment, and have come to their own terms and decided on which treatment is best for them.
The people surrounding the patient can only offer information.
It is up to the patient to choose which treatment best fits their interests. That is their right.

 

So if you have people telling you which treatment to choose etc…, they lack the imagination to think about how much you have researched, and are pushing their own beliefs toward you.  These people are still learning the basics to have a respectful human relationship. 
It is not that I look down on such people who are giving advices.  We are all in the midst of learning many life lessons, and they are still in their learning as well.
Just because a fifth grader does not know sixth grade material, there is no reason to make fun of them.
For an example, an adult shouldn’t get upset at a toddler for not knowing everything they knowlol.

 

Many of whom ask What’s wrong???’ to you are not doing it with ill intentions.  They don’t know any better.  They just don’t understand your situation, and are asking without thinking.

This is why I do not get upset at the person asking me, or their reason for their asking.  Instead, I realize this person truly doesn’t know about this condition…and think,
This is my opportunity!!!
and start talking to them about Atopic Dermatitis, and the side effects of Topical Steroids (TSW: Topical Steroid Withdrawal).

 

I was given a chance to educate someone who doesn’t know about this condition!!

It is a waste to not appreciate this moment.

 

Tōnsūra

In my past, I have lost 80% of my hair twice due to the side effects of Topical Steroids.  I had the similar hair cut as Francisco de Xavier or one known as Tōnsūra, and bet anyone would think What the heck happened to you!? when they saw me….lol
Even then, it would be divided into people who asked, and those who thoughtfully did not ask me.
I actually WANTED people to ask me, and thought (ASK ME!!  ASK ME!!).

 

I didn’t want people to worry as if I had some other sickness, so I put on a hairband, and went to work with a big smile
No shame involved here!  I did not feel sad or sorry for myself (because, it’s not like I was doing something wrong!!) and I continued to enjoy my work.
 
And when someone would ask me, I was happy they did, and talked about the side effects of Topical Steroids.
By sharing my own experience, I could help and prevent one or more people to go through what I did.
This is a huge opportunity!!

 

To have Atopic Dermatitis or to experience horrible Topical Steroid Withdrawal (TSW), haven’t you felt that your life is difficult sometimes?

Even if you’d like to stay home from school,

Even if you can’t attend PE classes,

Even if it is impossible to work due to aggravation of your skin condition,

sometimes it must have been difficult to do it because other people don’t know how tough it is…and that’s why it can be an awkward request to take a sick leave for the symptoms or you have to be attentive to take such actions above for protecting yourself.
If they knew how hard the symptoms were, and if they knew it might happen to them too, the situation around you is going to be improved.

 

So, this is a huge opportunity!

 

Speaking naturally, and with courage (or maybe not with courage…it’s really not that big of a deal..! ), you can share the symptoms you are experiencing.  While talking about your condition, you do not have to become depressed but tell them with positive attitude and a big smile. – Let’s share to educate.

 

You don’t have to feel like you have to make them believe youYou can just share your own experience.  If they start to give you arguments, you can just accept that and say, ‘I see how some people can believe that.  That sounds good too.  However, this is what I think -.’  You do not have to convince the person that you are right, or even lecture to them.  You just SHARE.  That’s it!

 

By sharing and spreading this message, it will create a world where more people know about this condition, and it will also create a friendlier environment for the people with this condition

This condition is hard BECAUSE THE WORLD DOES NOT KNOW ABOUT IT

This condition is hard BECAUSE WE ARE NOT EDUCATING/SHARING INFORMATION.

 

There is no need to fight.
Just share.
You don’t have to hide…
Just share.
 
 
Rather than getting hurt by what others say to you, you can become a Quiet, Composed Revolutionary Warrior by sharing your own experience to take it as a great opportunity when you are asked.
Because no matter what others may say, whatever that is happening to you is very REAL.

 

For a brighter future, please take that one step.
When more and more The Peaceful, Revolutionary Warriors stand up, this world will begin to change.

 

I hope you really understand that you do not have to fight.
Just share.
If you are having a really hard time right now,
please share.
You can prevent somebody from experiencing what you are going through.  (It doesn’t mean that you whine or complain about it.  Again, just share what would happen having Atopic Dermatitis, or side effect of Topical Steroids.)

 

If we think only about ourselves, all of this is way too depressing and we do not want to do anything.
However, when we see the bigger picture and realize that we may be able to help others in preventing the condition, we realize that we can do so by sharing.
This is the difference between ego and seeing the bigger picture with others.
If we live in a bigger way, life becomes more exciting and rejuvenating.

 

What’s wrong?’
When someone asks this to you, it’s a cue to you!
Thank you so much for asking!!!’
and with a light heart, share the symptoms that you are experiencing.
With this one step, you have become one of The Peaceful, Revolutionary Warriors.
 
 
Have a wonderful day today!
 
 

 
Translated by Hikari M.
Edited by Tokuko Abfab
 
 
 
  👇オリジナルポストはこちら👇 The Original Post
 
 
 
 
 
#Tokuko’s Room to Feel Upliftted       #tokuko’sroomtofeeluplifted