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The Curse Of ‘Stop Itching!’


 

This message is for the patients with Atopic Dermatitis, people going through horrible symptoms during Topical Steroid Withdrawal, and to the patient’s friends and family.

 

Today, I would like to share my thoughts onitchiness.

 

 

Don’t scratch your skin.’

I am sure at some point, someone has said this to you.  It might happen frequently in your life and might be from your parents, friends, and your acquaintances.  Even the dermatologists will tell you this like,

‘Please try to refrain from scratching.’

‘Scratching will worsen your condition.’

‘Do not itch!’

etc…

 

When you itch, your skin breaks, oozes, and sometimes you may even bleed.  When you experience an intense itch and you rip through our skin, the aftermath is often very ugly.  (Actually, the itch ONLY subsides when the pain from the itching is greater than the itch. )
The wounds that you are left with take a long time for it to scab over, and heal.

 

If I didn’t itch, I wouldn’t have this pain.
If I didn’t itch, My skin wouldn’t have been so messed up.
If I didn’t scratch, it wouldn’t take so much time to heal.

 

I am sure many thoughts run through your mind, and you start to feel like you did something very wrong…

 

You may think that you areweak because you gave in to the itch.  You may even feel a sense of defeat.  After your scratch fest, you may dwell on the fact that you itched and worsened your skin, and become heavy with regret.
But please realize this…
You have anitchydisease!
The people around you may say ‘Don’t itch!’ but the itch you experience is an unbearable one.  No human being can tolerate this magnitude of itchiness.

 

The ‘itch’ makes you want to rip out your organs, scratch away your body parts, and is bone deepNo one can withstand this kind of uncontrollable itch.
There are even some Itchy Attacks when it almost feels impossible to breathe because of the intensity of the itch.

You are all enduring through this so well.
It may be worse to have a neverending painful disease, but having an unbearable itch is a horrible experience as well.
I deeply understand what you are going through!

 

And at times, our friends and family may be concerned and may say things like..
Don’t scratch your skin.’
You really shouldn’t itch.’
…You probably think to yourself,

(This is an unbearable itch that no one can endure!).

Our family and friends say things out of concern, but it most certainly can be annoying (and unhelpful).

 

When your loved ones say things like this, please pay no attention to their words.
They have not experienced the type of itch that you deal with.
They do not understand the intense magnitude of the itch.
Maybe their only experience with itchiness is a mosquito bite in the past.
But they are only saying things to you because they want to help you, and prevent your condition from worsening.
…Even if their advice isn’t helpful at all, please just say Thank you.’ and then forget what they said to you.

 

 

It’s impossible to resist the ‘itch’, and that’s okay.
Just because someone is sharing their views does not mean that you need to listen or obey to it.
Don’t feel bad that you can’t follow what they say.
You are experiencing something that they have not experienced, and because of this you can have compassion for their lack of not knowing any better.
Even if the ones telling you to stop itching may be your parents, or be your senior, in regards to itchiness, you have more experience, and have more say on the issue.

 

The biggest issue here is how YOU feel about YOUR injured body.

So many people feel self hatred during this process.
But as I have said many times before…It’s NOT your fault.
Please forgive yourself for scratching yourself.
It’s okay to itch.
It is anitchydisease.
As there are ‘painful’ diseases, and many uncomfortable diseases, the biggest problem with this disease is that it causes major itchiness, and there is no way in preventing this.

 

 

Place your hands on your heart, imagine your younger, little self (you can talk to “Little <Your name>”) and say outloud:

I forgive myself for itching myself.’

Or you can try this…place your hands on your heart and talk as if you are talking to your younger you..

‘<Your name>, I am so sorry for itching.  But I totally understand.  It really is a intense and uncontrollable itch.’

 

Please forgive yourself, and encourage yourself.
Do not blame yourself.
If you tend to blame yourself and feel self hatred towards yourself, please please try this little exercise, and help to heal your heart and body.
It is painful to not have forgiveness.  If no one can give this to you, YOU can forgive yourself, and surely it will make you feel better.

 

   ********************

 

Next, this is a message to those caregivers around the patient, those who have not experienced the itch on a first hand basis.

 

Even though you do not have the actual symptoms of this disease, it must still be very hard and painful to watch your loved one suffer so much.
I believe that everyone who is reading this blog truly cares for the patient and has a kind heart.

 

Because you have a kind heart, I want to ask you to not tell your loved one to ‘stop itching/scratching.’
Of course you only say this because you want to prevent his/her condition from getting even worse…An act of love.
Even though the patient may feel thankful that you care so deeply about him/her, the itch that he/she is experiencing is beyond any means of control.
I can say with confidence that the itch is so intense, that it is impossible for a human being to withstand it.

 

If you had the same exact symptoms, surely you would itch the same way.
You would probably itch so intensely, that you may forget to breathe.
Even if someone tried to stop you, you would think, ‘Don’t stop me!!’ and would writhe and itch until the pain surmounts the itch on your skin.

 

 

Because of all of this, trying to encourage the patients and telling them to ‘Stop Scratching’ is a meaningless exchange.
Please understand that they have a ITCHY disease.
One of the main symptoms of this disease is to have a uncontrollable itch.
When you tell someone to stop scratching, it is as if you are telling a patient with a painful disease to ‘stop feeling the pain, stop being in pain’.
It is the same as if telling a patient going through a tough time ‘stop struggling.’

(…No way…I can’t endure this itch.  If you had this disease you wouldn’t be able to control it either!!…)

I am 100% sure that the patient thinks this when you tell them to ‘Stop Scratching’….lol
Please understand that nothing can be done about the itching, and accept their condition as is.
If we try to keep changing them for something they have no control over, it will only cause stress for both parties.

 

There are times when the itch can be endured a little bit, and the patient is usually always enduring to a certain degreeNo one wants to scratch until it hurts, to the point where his/her skin is completely raw.

 

Many people try to resist scratching.  I believe that the young people especially must be so conscious not to scratch the day before going on a date.  Even during those ‘important times and moments’, there are times where you cannot stop the scratching…lol

 

Your advices are sincere, but it is impossible to stop.  Even for those patients who seem to scratch out of habit, they are scratching because there is an actual itchIt’s not a bad habit, they are itchyPlease don’t think that they have a bad habit of scratching.  They have a itchy disease that feels uncomfortable unless you scratch.

For the most part they are already enduring some level of itchiness all the time.  If you were to have a small mosquito bite and was told to ‘not scratch’ wouldn’t it bother you a bit?

 

 

When I hear about babies hands being tied so that they won’t scratch, it makes my heartbreak thinking how torturous this is.

(Please don’t do such a poor thing!!  It is way too painful!!)
Because I know how they feel and how intense the itch is, just imagining having their hands tied is horrendousOn behalf of the baby I want to cry and shout to you…Try being in my situation!!  It’s so hard, you wouldn’t be able to bear the itch either!!’

 

 

There is a medical hypothesis that claims, ‘The action to itch causes indescribable pleasure, and this is why people itch.’
But I want to clearly state that we are not that stupid…LOL!
It is abnormal to injure your whole body because you want to feel pleasure (unless you are in to that stuff…hehe!)

 

The fact that we feel better after we scratch is a very normal state for us, I mean, we just can be the same condition with ordinary people’s natural state.
We want to feel normal again, the body just wants to return to its natural state…and thus we itch.
We just want to be free from the irritation and pain that comes from the unending itch.
Even before itching, patients know fully well that their itching will cause pain.

 

So if whatever you say will not help them, you can just leave them as be.

 

If your loved one had an itch fest and looks like they are down and regretting what they didthis is when you can come into play!

Say something that will ease their pain…make them laugh a little bit.
When you can share your mutually favorite jokes or a comment that lightens the situation, their depressed feelings start to lift.
For these unavoidable symptoms, these are the only things that you CAN do.

 

 

If you are by the patients and if they tend to feel down after scratching, the most powerful thing that you can do is to continue feeling your own happiness.  You don’t need to try to make them happy.  YOU should keep being happy.
Unfortunately, you cannot switch places with them or can’t take all their pain away.  However, by shining our own lights close to them, they will surely feel the warmth of your presence.  Be the Sun of your loved one.

 

   ********************

Well, we have four seasons in Japan.

In winter, we have the dry, painful, and itchy seaon.  And when it comes to an end, spring comes with a different type of itchness….lol  Then rainy season brings flares due to the low pressure.  After that, a humid and uncomfortable summer begins.  The sweat tends to make us itchier.  The cycle contiues and the cold season comes again… (;^_^A

 

It can be difficult to deal with the seasonal changes with a sensitive system.  You may feel sick of it all and want to shout, WHEN WILL IT EVER END?!’

But I am certain that for some special reasons, this sickness is happening to us.
This experience has meaning for the patient, and also for the caregiver

 

You do not have to feel defeated from this trying experience.
Please learn and grow from this experience.  You can take away something that is entirely positive.

If we do not take advantage of the experience, our experience will have no meaning.
Even if initially is a negative experience, we can make into a positive experience.
When we do this, we start to see the meaning of why this has happened to us.

 

Do you ever say or feel this way?
(Why do I have to experience such horrible things!?)
If we just complain and do not find reason in this experience, our suffering will lose its meaning.


(I’m going to take advantage of this experience!!!)
When we start to think like this, the meaning of the experience starts to become visible little by little…You may even possibly find out one of the reasons you were born to this world.

 

For example, through your illness you may now be able to relate to those with chronic illnesses…
Your experience has become alive!

And now if you can start to encourage those on similar paths
You are making your experience come alive

You have enriched your life through this experience, and can make a difference in others lives as well!

When we turn the negative to a positive, in that instance, this whole experience will start to have a new meaning to you alltogether.

 

 

Even if you are struggling right now, you will surely heal with time.
Please overcome this challenge with a smile on your face.

 

 

Have a wonderful day!!

 

 

Translated by Hikari M.

Edited by Tokuko Abfab

 

 

   👇 オリジナルポストはこちら 👇The Original Post in Japanese

掻いてはいけない、の呪縛?

 

No Moisturizing Treatment (NMT) allows you to scratch.  If you are interested in it, please read and learn about it below.

 

How to get over Topical Steroid Withdrawal asap!

 

What can be Moisturizers? – For fellows launching ‘No Moisturizing Treatment (NMT)’

 

Is your symptom Atopic Dermatitis or Dermatopathy Induced by Topical Steroids?

 

Like an Actress…



And more….Go to [POSTS IN ENGLISH] in this blog!  Feel better!

 

 

 


What’s Wrong?


 

Dear Atopic Dermatitis sufferers, parents/caregivers,

and those who are going through devastating side effects after ceasing Topical Steroids,

 

I believe that your days are filled with stress and agony.
 
Even those who are very healthy make a big deal when they experience skin inflammation usually.  Even if it is a tiny mosquito bite, they tend to complain about the discomfort and itchiness.  However, the symptoms of Atopic Dermatitis (AD) and Topical Steroid Withdrawl (TSW) are incomparable to this, as it covers the whole body, is unbearably itchy, your whole body hurts, you are uncomfortable, its depressing, and you look unrecognizably bad…For those who are in the thick of this right now, its really a huge load to deal with…and I truly understand how hard it is.
 
 
When you go out with lots of skin inflammation and feeling ugly, I am sure you have experienced people asking you,
What’s wrong?’

 

Or you maybe a caregiver with a child going through symptoms, your heart has been aching for a long time as you see your child suffering, and you can’t even remember when was the last time you had a good nights sleep…and someone asks you,
 
What’s wrong?’
This seemingly innocent question can cut through the hearts of moms and dads.
 
(We are doing the best we can!  Leave us alone!)

 

…And while going through Topical Steroid Withdrawl, the initial withdrawl symptoms make it seem that your condition is getting worse..
and during this hard time a random person may criticize your treatment plan, or give you some kind ofadvice.

 

Even when this person hasn’t even read a SINGLE book about Atopic Dermatitis, they may give you advice such as..
 
‘Maybe you need to change your diet?’
 
Usually you need to make a lifestyle modification with a condition like yours.
 
When you (mom/dad) have searched through all the books and the internet about the condition, and are doing the best to take care of your child…How could they lecture about what to do, or what not to do…??

 

PLEASE STOP IT!!
I AM ALREADY DOING THE BEST THAT I CAN!!!!
 
 
I understand this anger you feel wholeheartedly….
I understand your deep sadness as well.
The vexing emotions are real.
I truly understand all of your feelings.

 

However…I will say this knowing that it may antagonize you…
 
For myself, even when I received thoughtless remarks, I do not get upset.
I don’t feel sad, or have vexing emotions.
I do not feel sorry for myself, either.
I truly DO understand all of your emotions while going on this rollercoaster ride, and the reason why you feel that way too.  But I have never felt that way.

 

This must seem so odd to you.
Usually people get upset when someone questions what they are doing or lectures them about what they should do.
It’s not that I don’t understand these emotions – I actually feel that I totally understand why you feel that way.
And when I receive many messages about how horrible you feel on this journey, I feel deeply sorry for you and it makes me want to cry.
However, with that said, I still do not feel the same emotions.

 

When someone asks me,
 
What’s wrong?’,
 
my first thought is…
This is my CHANCE!!!’
I automatically think this!

 

‘Are you serious?’ 
‘You must be insensitive!’
Some people may feel this way about me, but to be honest, I am a very sensitive person that feels very deeply and empathetically to others.
With that said, being ‘sensitive‘ and ‘how you process your thoughts‘ are two totally different things.
Being sensitive does not equal = You are weak.

 

Sometimes people say malicious things on purpose.
But for the most part, when someone asks What’s wrong?’, it is because they truly do not know, and have no information regarding the subject.
Because we are ‘different’ from what they know, they wonder why it is so, and speak without thinking.
And though it may annoy you, some maybe truly concerned about you and asking why you are having those symptoms.

 

You and I both know that we do not think 100% of the time about what we are going to say before speaking. 
And the What’s wrong???’ that we may encounter from time to time may be one of those moments where they are speaking without thinking.

 
Of course, this differs from the people who intently come lecturing at you, wanting to change your mind on the subject.
It takes a lot to come to a decision about which treatment works best for you.  You need to study a lot of material, think about it a lot, make a decision, and commit to it.  Even then, some people will say, ‘Why are you doing that?  The other treatment is better!’
These people are trying to change other people’s mind, and these are not the type of people I am talking about today.

 

These things happens often, but for an example, when someone develops cancer, the patient is bombarded with information from surrouding people:
This treatment is good, there is this treatment that works great, etc…
And sometimes when the patient chooses a different treatment, some people may get very upset:
‘Why didn’t you choose the treatment I found for you!  You might have gotten better if you listened to me!’
But usually, the patient with the condition has studied much more than any of their friends on the subject matter, weighed the pros and cons of each treatment, and have come to their own terms and decided on which treatment is best for them.
The people surrounding the patient can only offer information.
It is up to the patient to choose which treatment best fits their interests. That is their right.

 

So if you have people telling you which treatment to choose etc…, they lack the imagination to think about how much you have researched, and are pushing their own beliefs toward you.  These people are still learning the basics to have a respectful human relationship. 
It is not that I look down on such people who are giving advices.  We are all in the midst of learning many life lessons, and they are still in their learning as well.
Just because a fifth grader does not know sixth grade material, there is no reason to make fun of them.
For an example, an adult shouldn’t get upset at a toddler for not knowing everything they knowlol.

 

Many of whom ask What’s wrong???’ to you are not doing it with ill intentions.  They don’t know any better.  They just don’t understand your situation, and are asking without thinking.

This is why I do not get upset at the person asking me, or their reason for their asking.  Instead, I realize this person truly doesn’t know about this condition…and think,
This is my opportunity!!!
and start talking to them about Atopic Dermatitis, and the side effects of Topical Steroids (TSW: Topical Steroid Withdrawal).

 

I was given a chance to educate someone who doesn’t know about this condition!!

It is a waste to not appreciate this moment.

 

Tōnsūra

In my past, I have lost 80% of my hair twice due to the side effects of Topical Steroids.  I had the similar hair cut as Francisco de Xavier or one known as Tōnsūra, and bet anyone would think What the heck happened to you!? when they saw me….lol
Even then, it would be divided into people who asked, and those who thoughtfully did not ask me.
I actually WANTED people to ask me, and thought (ASK ME!!  ASK ME!!).

 

I didn’t want people to worry as if I had some other sickness, so I put on a hairband, and went to work with a big smile
No shame involved here!  I did not feel sad or sorry for myself (because, it’s not like I was doing something wrong!!) and I continued to enjoy my work.
 
And when someone would ask me, I was happy they did, and talked about the side effects of Topical Steroids.
By sharing my own experience, I could help and prevent one or more people to go through what I did.
This is a huge opportunity!!

 

To have Atopic Dermatitis or to experience horrible Topical Steroid Withdrawal (TSW), haven’t you felt that your life is difficult sometimes?

Even if you’d like to stay home from school,

Even if you can’t attend PE classes,

Even if it is impossible to work due to aggravation of your skin condition,

sometimes it must have been difficult to do it because other people don’t know how tough it is…and that’s why it can be an awkward request to take a sick leave for the symptoms or you have to be attentive to take such actions above for protecting yourself.
If they knew how hard the symptoms were, and if they knew it might happen to them too, the situation around you is going to be improved.

 

So, this is a huge opportunity!

 

Speaking naturally, and with courage (or maybe not with courage…it’s really not that big of a deal..! ), you can share the symptoms you are experiencing.  While talking about your condition, you do not have to become depressed but tell them with positive attitude and a big smile. – Let’s share to educate.

 

You don’t have to feel like you have to make them believe youYou can just share your own experience.  If they start to give you arguments, you can just accept that and say, ‘I see how some people can believe that.  That sounds good too.  However, this is what I think -.’  You do not have to convince the person that you are right, or even lecture to them.  You just SHARE.  That’s it!

 

By sharing and spreading this message, it will create a world where more people know about this condition, and it will also create a friendlier environment for the people with this condition

This condition is hard BECAUSE THE WORLD DOES NOT KNOW ABOUT IT

This condition is hard BECAUSE WE ARE NOT EDUCATING/SHARING INFORMATION.

 

There is no need to fight.
Just share.
You don’t have to hide…
Just share.
 
 
Rather than getting hurt by what others say to you, you can become a Quiet, Composed Revolutionary Warrior by sharing your own experience to take it as a great opportunity when you are asked.
Because no matter what others may say, whatever that is happening to you is very REAL.

 

For a brighter future, please take that one step.
When more and more The Peaceful, Revolutionary Warriors stand up, this world will begin to change.

 

I hope you really understand that you do not have to fight.
Just share.
If you are having a really hard time right now,
please share.
You can prevent somebody from experiencing what you are going through.  (It doesn’t mean that you whine or complain about it.  Again, just share what would happen having Atopic Dermatitis, or side effect of Topical Steroids.)

 

If we think only about ourselves, all of this is way too depressing and we do not want to do anything.
However, when we see the bigger picture and realize that we may be able to help others in preventing the condition, we realize that we can do so by sharing.
This is the difference between ego and seeing the bigger picture with others.
If we live in a bigger way, life becomes more exciting and rejuvenating.

 

What’s wrong?’
When someone asks this to you, it’s a cue to you!
Thank you so much for asking!!!’
and with a light heart, share the symptoms that you are experiencing.
With this one step, you have become one of The Peaceful, Revolutionary Warriors.
 
 
Have a wonderful day today!
 
 

 
Translated by Hikari M.
Edited by Tokuko Abfab
 
 
 
  👇オリジナルポストはこちら👇 The Original Post
 
 
 
 

Topical Steroids Do Not Cure Atopic Dermatitis


 

 <<< Viewer Discretion Advised >>>

How do we humans heal with our self-healing abilities, even without drugs?
 
***At the very last of this post, I have shared photos of my lower legs while I was hospitalized.
The pictures are very graphic and show severe dermatitis.  Please do not look at the pictures if you do not want to.
I will have a warning before showing the pictures below, so please feel free to read ahead.
 
ラジャEver since I was a baby, I had severe Atopic Dermatitis.

My worried parents took me to many different doctors and hospitals hoping that I would be cured.  And when I became an adult, I went to hospitals all over Japan, committed to heal my dermatitis.
During this time, I tried numerous alternative health modalities as well.

 

In total, I used Topical Steroids (TS) for 52 years.
And of those years, I used the most potent one for 30 years.

 

Because I truly wanted to heal,
I listened to my doctor, and intently followed their treatment plans.

The Topical Steroids temporarily suppressed many of my symptoms, but with time I would need stronger prescriptions.  And in the end, even the strongest steroid creams completely stopped working.

 

With this, I stopped using TS medication.
In the end, I was only left with the many uncomfortable side effects of the drug.

Note:  The side effects are not limited to the ones that the pharmaceutical companies list.
I know that many patients know this first handedly.  Many of the symptoms that we experience can

be found in this blog post below;

       👇 CLICK HERE !   👇

 
In my long journey with Atopic Dermatitis, I have seen over a hundred of doctors.
 
There were doctors that would amp up my prescription as my symptoms worsened,
Other doctors advised against using strong prescriptions,
Some doctors would say ‘This is happening because you itch your skin too much’,
There were Doctors with strict dietary regimens,
‘You should avoid this, and avoid that, etc…etc…’ the restrictions seemed to have no end,
And there were also Doctors that would use TCM (Traditional Chinese Medicine) to rebalance your body…
 
With ALL of the doctors, they told me to stop itching as possible, and tried to give me the best treatment plan from their vast knowledge and beliefs.
And of course, many of these treatments involved TOPICAL STEROIDS
 

However, although I have used these creams for more than 50 years, my Atopic Dermatitis was not cured by Topical Steroids.

 

I remember many conversations with many of my doctors.

Particularly, a conversation I had with Dr.Kenji Sato from Hannan Chuo Hospital in Osaka, Japan was very impressive.  His words were very unique and memorable to me.

 
Doctors must never say ‘Stop itching/ Do not itch’ to the patientsIf you say this, in that instant, the trust between the patient and the doctor will be completely broken.’
 
 
When I heard these words, I knew that he truly understands this awful condition, and about the patients experiencing these symptoms.  He is an exceptional doctor with extensive knowledge about Atopic Dermatitis!
 
 
The itch that we experience is bone deep,
it makes you want to rip out your fingers and limbs,
and is an itch that will keep you up all night long, even when you are dead tired… 

Because I have experienced it, I can truly say that it is IMPOSSIBLE to control this itch, and I believe that NO HUMAN BEINGS can control it.

However, many doctors believe that to some extent, this itch can be controlled.

 

As everyone knows, you must study a ton to become a doctor.
I respect all of the doctors who have given their all to learn from books and clinical setting seeing patients.

But when a doctor says (from his understanding and his studies) ‘To a certain extent, itchiness can be controlled.’, the patient knows that ‘This doctor has never experienced what I am going through…..’

Because Dr.Sato sees the patients condition every single day at the hospital, and understands the illness and our sense of pathos, he was able to come to the conclusion that the itch cannot be controlled.

 
And for the first time, I learned from Dr.Sato that what I believed as Atopic Dermatitis was actually an Intractable Dermatopathy induced by prolonged use of Topical Steroids.  The dermatitis I was experiencing was side effect from the drugs.
 
 
In actuality, when I was flaring, it looked like as if I was being poisoned, and it was truly a horrible experience.
 
Even if you were not a medical professional, wouldn’t you feel that it was odd that you would experience these CRAZY symptoms from a simple Atopic Dermatitis?
 
Your whole body becoming raw, looking like a burned victim
 
Your face becomes extremely swollen
 
You look unrecognizable and look like a monster
 
Your skin looks like it is rotting
 
Even the simple action of changing clothes, you shed handfuls of dead skin flakes
 
All of your hair falls out
 

These are my experiences.  I drew this cartoon for the last lecture meeting with Japanese leading doctors against Topical Steroids.  Do these symptoms Atopic Dermatitis??? No way!

Would these symptoms occur just with Atopic Dermatitis??

I believe that if I did not use Topical Steroids, even if it took time to heal, I wouldn’t have experienced these severe symptoms.

 
 
 
Currently, I am off every medication.
By strengthening my immune system and natural self healing abilities, I am repairing my skin that was damaged by Topical Steroids
 
The human body is a marvelous thing, and although it takes time and I experience flares that are either improved or worsened, I feel that my skin is doing the best it can to heal to its natural state by itself.
 
 

By completely stopping steroids usage, I can feel that my skin is regenerating, becoming stronger and starting to resemble what ‘normal’ skin looks like. I have never experienced this in my life and this is the indisputable fact.

 
 
In order to regain healthy skin without medicine, it requires endurance for pain, perseverance and resolution.

However, we must remember that all of our bodies have the ability to heal itself.

If we do not make use of this ability, the symptoms will continue to persist.
 
 
 

Dr.Kenji Sato has said this:

By itching, the skin improves.
We itch again, and the skin continues to improve.
We itch and itch again, and it will heal again.
Repeating like this, the skin starts to get stronger gradually.
Itch as much as you want, but try to keep the last scratch a little lighter than the rest.
Your skin WILL heal definitely.’

 
 
This treatment requires patience and endurance however, I felt so relieved to hear Dr.Sato’s words.
 
 
 
 
All patients always feel strong pain and then feel regret usually after their itch fest.
Even though knowing it, it is impossible to resist the intense itch.
I think many of us tell ourselves, ‘It is a bad thing to scratch! I shouldn’t itch!’.  We try to withhold ourselves, and have blamed ourselves when we give in to the itch.
 
However, a true doctor understands.
He understands that with this condition, it is IMPOSSIBLE to not scratch our skin.
Dr.Sato has seen thousands of patients experiencing side effects and symptoms from the use of Topical Steroids because he realized the existance of TSW very long time ago.
And he continues to warn doctors and patients to refrain from using TS without seeing the truth of its consequences.
 
 
 

A real doctors understand that Topical Steroids do not cure Atopic Dermatitis.

Even more, they know that even light Atopic Dermatitis can become ‘intractable’ with TS use.

 
Steroids are expensive pharmaceuticals, and is great for business for the hospitals and clinics.
Even then, seeing the horrible side effects that they cause, there ARE doctors that choose not to prescribe Topical Steroids.
 
 
 
 

And here, I want to affirm this strongly.

This is coming from a person who has used steroids for over fifty years, which is one of the longest, even in human history

‘TOPICAL STEROIDS’ DO NOT CURE ‘ATOPIC DERMATITIS’.

If they do, I should have been healed by now.
For over 50 years I listened to my doctors intently and followed instructions meticulously, and I did not heal with TS.

 
 
 
I want to remind you that I am no doctor, however I have first handedly experienced this illness for over 50 years, and have seen all of its conscientious progress and stages.
 
Topical Steroids may temporarily suppress symptoms, but it does not cure the condition, and will leave the patient with frightening side effects and symptoms.
 
This is the truth, and I am able to share this because I am a patient and this has been my experience.
I question the doctors that do not see this in the clinical setting.

‘These symptoms are occuring because you are not following my directions properly.  That is why you are flaring’.
 
…Usually, the doctors blame the patients for worsening condition.
Is this really true though? Are all of these patients really that lazy to not follow the directions?
 
 
 
There are many cases where babies with severe atopic dermatitis symptoms heal their skin beautifully by abstaining from Topical Steroids, and moisturizers.
 
     👇 CLICK HERE to look at the photos 👇
           (The first child stopped using TS and the rest of three got treatment without TS)
 
If these babies had used steroids, the condition would most likely have worsened, the skin would have easily become addicted to TS, and they probably wouldn’t have been able to quit steroids even in to their adulthood.
Every year a stronger prescription would be needed, and the condition would have progressed to a point where they are completely dependent on regular use of steroids to maintain the quality of their lives.

 

 
 
Please use Topical Steroids ONLY WHEN IT IS FOR a ‘Life Threatening Situation.
 
I truly wish that no one has to experience the severe and horrible symptoms that I have experienced.. I will continue to share this truth and experience, so that this message will spread to many people. 
 
 
 
Below I share photos of how my severe dermatitis (Dermatopathy Induced Topical Steroids) healed using NO Topical Steroids, I mean, no medication.
 
They are rather shocking photos, so only who truly with to see, please continue.
 
 
 

 閲覧注意(皮膚炎の写真があります) 

 

 

 

☟   Viewer discretion advised:  Severe Dermatitis Pictures below

 

 

☟   閲覧注意(皮膚炎の写真があります)

 

 

☟   Viewer discretion advised:  Severe Dermatitis Pictures below

 

 

☟   閲覧注意(皮膚炎の写真があります)

 
 
 

2015.10.29 Left Lower Leg (One month later of hospitalization)

 
 

2015.11.18 Left Lower Leg

 
 

2015.12.17 Left Lower Leg  (The symptom is about to disappear w/o TS))

 
 
These photos above show how my left lower leg progressed during my hospitalization.
As you can see, within two months my skin regenerated on its own, even without medication.
 

 

 
The process required vast amounts of perseverance and endurance to pain,
but we humans are definitely supplied with a power to heal ourselves.
 
 
Let us believe this power that we have and are born with, to heal ourselves.
 
 

I truly wish that more people will know about the dangers of Topical Steroids.

I would be so happy and honored, if you can share with your friends and family of this information.

 
 
 
*** If you are interested in the treatment, (No Moisturizing Treatment =NMT) for TSW, please go to my blog site below and read other topics too.  Thank you!
 
 
 
 
 
 
 
Translated by Hikari M.
Edited by Tokuko Abfab

 

   👇 オリジナルの記事はこちら 👇 The Original Posst in Japanese

ステロイドでアトピーは治りません


A Message for the Parents with Atopic Dermatitis Children, From a Used-to-be a Mummy Baby


 

When I was exactly 6 months old, I spent a day out under blazing sun, and that triggered my life with severe Atopic Dermatitis.  My whole body became bright red perceptively on the day.  

Because every patch of my skin was oozing, my parents put medicine on my skin, bandaged me up everyday, and I ended up looking like a Mummy.  Even though I was a baby, no one ever said to meWhat a cute baby!’

…Too baaaad, I couldn’t show them my natural cute-ness!…LOL!

 

 

My mother felt very sorry for my situation, and listened to the doctor when he told her to change her diet while breastfeeding, and even afterwards.
She took this task very seriously, and completely changed our family’s diet.

 

 

Back then, ‘Mochi’ (glutinous rice cake) was one of my favorite foods to eat.  However, because the doctor told her ‘Don’t eat Mochi either!’, no one could have Mochi for new years in my family, even though it is a must-have food for new years in Japan.

Nowadays we live in a culture with an abundance of foods, but maybe by the early 1900s, Mochi was a delicacy, and we all worked hard until the end of the year so that we could have some like rewards for ourselves.  I was told that when they would be eating Mochi I would say, ‘Please give me just one bite, please!’. 

After that my parents would only eat Mochi at night time, after I fell asleep.  It must have been thrilling for my parents to sneak out of my bed room craving for Mochi…LOL!…I bet they enjoyed this Mochi very much!….lol

 

 

As you can tell, we strictly and thoroughly committed to diet therapy, but we did not see any improvement whatsoever.  My condition did not improve, and all of my family members ended up losing weight….LOL!!

 

 

For many decades, I have had this condition, and some of my friends even call me The Pioneer Patient of Atopic Dermatitisjokingly….however, even though I have such a long experience of AD, have never experienced diet having an effect on my condition like,

‘Because I ate this, my condition has worsened’
‘I am flaring today because I ate too much sweets yesterday’

 

Medically, there may be a correlation with diet and skin, but many AD patients including myself do not see a direct correlation.
When I was hospitalized at Hannan Chuo Hospital in Osaka, Japan, many of my patient friends said the same thing.  This is just my opinion but a balanced diet is the most important for healthy skin but not unbalanced one.  (i.e.  Like too much chocolate and too much something…are not good for anyone!)

 

My mother, who after thoroughly committed to diet change also told me,
Eat anything you want, restricting your diet did nothing for you.’
However, I want to remind you that the dietary advice was from long time ago, and as contemporary medicine has advanced, many things may have changed as well.  I am just sharing what was true for myself.

 

Going back to my story…

 

As my mummy condition did not improve at all, my dermatologist prescribed me an expensive Medicinal Cream from the U.S.A., and told my parents to ‘Rub into the skin thoroughly.’  At that time, only the doctor would apply this special cream onto my skin, and I remember feeling like a V.I.P….hehe.

 

As you probably suspect already, the cream that they were applying on me was a TOPICAL STEROID‘(TS).

 

 

Back in the days, I had an impression that no one knew of Atopic Dermatitis or Topical Steroids and was feeling there weren’t so many patients with it.  Many times they called it Eczema, and even if children had it, many outgrew it overtime.

However, this Mummy baby with some blood showing through the bandages showed no signs of improvement.

My parents felt so badly for me, and took me to the hospital every single day to have my bandages changed.  They truly cared and did everything they could for me.

After applying the new special cream, Topical Steroids, I began to have some good days, and when they did not apply bandages on me, they said I looked confused.  The bandages must have felt like they were uniforms for me!…LOL!

 

 

(After this, because TS complicated my dermatitis, even if I would apply TS, the symptoms would subside for a little bit and come back with a vengenance.  I became heavily addicted to TS, and would not be able to function without using them every single day.  Eventually, they started not to work at all.  Finally, four years ago, I completely quit TS, and my body has recovered enough to have ‘Normal’ skin without TS.  I cannot be happier!)  Note: as of 30 Apr 17

 

What am I trying to say with all of this…?

 

I was a bandaged baby that looked like a Mummy.
No one told me that I was cute.

 

 

However

I do not remember any of this.

 

 

I have only heard about the above statements from my parents.

All that I remember is that the doctor was the one that would apply the ‘Special Medicine’ at the hospital, irradiated purple light on me, how they would be mixing the medicine with what looked like a cake spatula, the smell of medicine…etc….

 

 

Excluding my eyes, nose, and mouth, I was covered with bandages, but I could breathe, I could eat, and I was loved by my parentsBecause of this, I do not remember writhing in discomfort and pain.

 

 

I can only imagine that from the intense itch, lack of sleep, and overwhelming discomfort, the Mummy Baby must have cried a lot.
My parents were probably more distressed than I was, wanting to help me in any way possible.  It was impossible to imagine the heartache of theirs by the Mummy Baby.

 

However, after I would cry out my eyes from the itch and pain, my kind parents probably held me, and hugged me tightly.

 

 

For the parents who feel horrible for their children who are going through TSW (Topical Steroid Withdrawl)…..

For the parents who used TS on their children, and now their skin is flared and your heart is hurting…..

 

It’s ALL going to be ALRIGHT!

You just need patience for a while….

 

Even if your child is currently suffering immensely, and even if you feel completely helpless to see him/her, in the future, most of them forget about the pain.

 

They will heal !

 

Even in the history of human kind, I am one of the longest users of Topical Steroids but such a person like me is increasingly seeing the impact of natural healing power of human beings.

After stopping TS and moisturizers, my skin is becoming stronger obviously.

 

 

Baby Atopic Dermatitis heals naturally with time.

When we apply TS, the inflammation goes down quickly, but this is just suppression, and after that, the problem becomes even more complicated and intractable.

I am the perfect example for this, meaning, am the testimony of the effects of TS on the human body.

 

 

Maybe for some reasons, God or some force wanted you to become stronger, and he may be temporarily giving you this challenge.  By overcoming this, you will not only become stronger, but you will also become kinder.  You must grow from this experience, and use it for your advantage in the future.
Please don’t waste this opportunity = ‘painful experience, like regretting or lamenting, and make use of it.  That’s all you have to do.

 

There is no reason for you to regret using TS on your child.  You made a decision to quit it, so that’s good enough. 

You believed that it was the best thing to do in that moment, you did it out of love, and not because you wanted to hurt your child.

 

Because it was an act from love, you have no reason to regret your actions.

 

If it would help your child if you cry and regret, go ahead…..but you know that this does not help them.

 

Time passes equally for all of us, and we are the ones that decide which emotion to feel.  Please do not spend your precious time regretting something.  The time you spend regretting is a valuable minute of your precious life.

 

 

While you fight this condition, to make this time a valuable one, please just look into your child’s eyes with a BIG smile

Afterwards, you will be able to say, ‘That was one heck of a ride, but it was a good experience for all of us!’ 

If you can spend this time loving your child, it is more than enough.  You are already wonderful parents!

 

 

The used-to be mummy baby does not have a grudge against her parents.
My parents thought in the best interest for me, and bought an expensive medicine (at that time) for me.
I do not remember any suffering that I went through.
I can only remember the things that I am thankful for my parents.

 

It must have been very hard for my parents to raise me while I had such horrible symptoms.
Even then, my parents raised me wishing that I would of course outlive them.
Even if I looked very odd (…LOL!) they must have felt happy that my condition was not a life threatening illness.

 

 

In the future, your child will, for sure, thank you too.

Please look into their eyes with a warm smile while you care for them.

Please realize that just your child is being there with you is something to be very thankful for.

Please be grateful for your son/daughter’s life.

 

When your child goes to sleep, whisper to them…

‘You were born to make me stronger, weren’t you?  Thank you.  Mom (and Dad) is going to protect you with everything I haveThank you so much for being born.’

 

 

You are heading into the bright future…1 second, 1 minute, you are getting closer.

You will get there…Please know everything takes time.  Accept this time for healing.

 

 

When we look back, raising a child goes by so fast.  Please enjoy this precious time.

 

Please feel thankful that your child is close with you, and take pleasure in his/her being alive.  You have reasons to feel rejoiced.

 

Cheers for another day for being with your child!

 

Have a GREAT day!

 

Translated by Hikari M.
Edited by Tokuko Abfab

 

 

   👇 See this post below also!  👇 

You can see improved kids’ symptoms w/o TS.

You can manage Atopic Dermatits without Topical Corticosteroids!

 

   

  👇 オリジナルの日本語ポストはこちら 👇

                                The original post in Japanese

ミイラ赤ちゃんだった私から、アトピっ子のお母さんたちへのメッセージ

 

 

 


When Will I Heal??


 

***The subject sounds like as if this topic is only for people with sickness but this might make well-conditioned people’s life also a little easier. (^_^)b ***

 

I have been sharing some of my personal thoughts and inspirations that might be able to help other people on this blog, as well as introducing No Moisturize Treatment (NMT)’ for Topical Steroid Withdrawal (TSW) patients (Atopic Dermatitis/eczema patients who were on Topical Steroids, stopping steroids completely and experiencing horrible side effects) and trying to encourage them as an experiencer of VERY severe one.

 

 

For many sufferers going through severe withdrawal symptoms and their families, finding a doctor or hospital that understands TSW is very difficult

Many people are suffering from this condition, and every single day, I receive many questions and consultation requests from all over Japan, and all over the world.

Also, using SNS, many people contact me directly about their conditions.  The numbers of questions and consults are astounding though I’m not a dermatologist…..lol 

Tokuko is trying to answer questions from all over the world…day in, day out….without sleeping……  ZZZZzzz…. (?_?)……lol

Since I have experienced severe symptoms, I can really understand what all of you are going through.  It really is a hell-ish journey, and so many have no clue about what to do, so I try to answer all the questions to my best ability.

However, since I do this all on my own, there is a limit to how much I can do.  Although I read each and every comment and your questions, hope you can understand if I cannot write back to every single one of you. 

For this reason, if I receive many similar questions, I will write the answer as a blog post here.

 

Also, many of you read the comments section as well, and if there were some questions and answers that were very useful in it, I will edit it and make it a post as well.

 

 

                    *********************************************

 

Today’s question is from a very kind-hearted mother, who has a daughter with severe Topical Steroid Withdrawal symptoms.  We have already exchanged emails sometimes in the past in the comment column.

 

 

The daughter started NMT (No Moisturizing Treatment), and has been sleeping better, but now her oozing has increased.  With the ongoing symptoms, she is feeling afraid, and asks how long will it take for her daughter’s symptoms to subside.

 

 

I totally understand that you also want to know how long it will take to heal and how long did it take in Tokuko’s case because I receive similar questions every single day.  I can feel her genuine concern for her daughter’s well being as well.

My answer to her is…

 

                    **********************************************

 

Dear OOO

When there is an issue with lots of oozing, we learned that we must limit our liquid intake at the Hannan Chuo Hospital (in Osaka, Japan).  Even for non-oozing patients, liquid restriction is done there, and after being released from the hospital, we still continue to restrict liquids to stay course on the treatment.

 

 

When I was hospitalized, my legs were double their size with edema so my water restriction was very strict (I felt like I was in the desert, dying of thirst…lol), and I ended up losing 12kg just in water weight the first week!  Then the non stop oozing that I had finally stopped! 

***Please understand that it is in my ultra severe case.  Needed to exhaust excess water in urgent due to severe hypoalbuminemia.***

I am not in a position to offer a medical advice but please take ‘water restriction’ into account.  (***Please note that I did this under a doctor’s surveillance.)

 

 

Also, many people ask me,
When will I heal?’
How much longer will it take?’
With this symptom, how long will it take to heal?’
They send me their photos of affected parts, and ask me what their future holds.

 

 

Personally, since everyone’s symptoms, severeness, location of symptomsTS usage time and strength, body type, withdrawl start time, etc. all differs individually, I feel that there is no point in trying to predict the future or compare with each other.  (We must also remember that it is very hard to gather data for dermatitis conditions.  This in itself tells you that there may be no point in trying to figure it out.)

 

 

It sounds to me that your daughter’s condition is still benign compared to the symptoms I had.

When I was recuperating at home,

I was covered with dermatitis from my head to toes.  There were no normal parts.

My legs became double their size many times, I could not walk from the severe pain,

looked like a burn victim with no skin,

lost 80% of my hair twice,

looked like a completely different person with swollen face,

and if I were to take off my jacket, my dry skin would shed and I would have a handful of dead skin flakes

I continued this kind of flare cycle many times.  I guess there’s no need to compare with me.

(And even then I could not find a hospital that would accept hospitalization.)

 

 

Even with this kind of severe symptoms, after being hospitalized and implementing the NMT, my symptoms cleared after 3 months in my case.  I just learned how to accomplish the treatment and am just disseminating this great info to other sufferers with TSW.  You can search the whole world, but you will not find a magic cure for this condition.

During my hospital stay, I learned how to improve my Natural Self Healing Abilities.

I used Dr.Kenji Sato’s method (NMT) there and was encouraged by my hospital mates who left the hospital in a very good condition.  Also, I read Dr.Sato’s book (in Japanese only…), listened to what he told me to do, and believed with my whole heart that this treatment would work.  

Each day I just did what I could do best, in that moment.

 

***When I was hospitalized, I was unable to walk, and was even prohibited to try.  Even when I was finally able to walk, the pain was SO bad that I could barely walk 32 feet (10 m) away, panting with strong pain that still remained then.  Going to the bathroom was a huge deal, and I would have to give my all to go.  Exercising did not start until the very end of my hospitalization (though we had to do).  Even then, my rebound flare symptoms subsided within 3 months.***

Again, I am no doctor, and cannot give medical advice, but I can share what I have experienced.

I mean, this is all that I can do for fellow sufferers as a non-medical profession.

 

 

This may sound harsh to you, but if you are constantly searching for others to comfort you, you will not be able to cultivate your strength that is within you.  Without growing your strength, you will be unable to fight the next challenge when it comes.

 


Rather than waiting for someone to tell you ‘Don’t worry, everything will be okay!’, ‘You will heal soon!’, you can find something to be thankful in your life, RIGHT NOW and RIGHT HERE, and by doing so, your heart will begin to relax little by little, and day by day.  Unless we do this, when another problem, a symptom, will come up again, you will start to worry with no end in sight.

 

 

I talk a lot about Promoting your cheery mood by yourself to find your own joy.’ on this blog, and it is about finding something that you are truly grateful for where you are.  When you find something to be grateful for, your are improving your mood by yourself

If you become dependent on others to make you happy, you may feel relieved right after you talk to someone who encourages you, but when another problem arises, what will you do?  Most likely, you will again need to talk to someone, and the cycle goes on and on

 

 

The kind hearted people who listen to your story probably truly want to help you.  However, you must remember that they are expending their own energy to listen and accept whatever you must share, and will have to recover after listening to your stories.

 

 

We must be able to make ourselves happy.  Once you are able to do this, life becomes so much easier and that is why I am sharing this with you.  When we overcome our challenges is when we start to cultivate our strength.  (However, make sure you are not trying to make grouchy people happy either, this will create a lot of stress.  Make yourself happy ‘by yourself’.)

 

In this blog I wish to share these kind of tips on cultivating your own happiness too, as all of us will face challenges and adversity.

 

 

After trying many treatments available for Topical Steroid Withdrawal, what I can say is that following Dr. Kenji Sato’s advice that I lerned in the hospital, and committing to the treatment gave me the quickest results.  Again, as a non medical profession, that is all I can say.

 

 

If you choose this treatment, though it is up to you which treatment you will take, and if you have a doctor who you trust and who reassures you that you are in ‘good physical health’ while on the treatment…just keep on keeping on. 

Try not to worry about this symptom, or that new symptom, but even in tribulation, try to find something in your life that you are blessed in…and hold on as the time passes.

 

 

Everything takes time.  When you ride a train, you must pass many stations to get to your destination.  If you get off each train station and wonder, ‘I’m still not where I want to go!’, it will be kind of a waste of time and energy to worry about a thing.
If you asked, ‘How come it is not my destination here?’ to someone else in the middle of your way, he/she will be hard-pressed to know how to respond….lol

 

If you have decided which direction you want to go, and you have been taught HOW to get there..COMMIT, and then just keep on going!

 

It will take time, and there is nothing you can do about that.

I have already explained about approximate healing time in the hospital as a sample.  Remember.  It is the destination where you are heading for.

 

 

It seems that you truly care for your daughter.  So the fact that you have a good doctor by your side is a wonderful environment for you and your daughter and you can keep being a person who your daughter can express her feeling under adversity.  Don’t you think it is really great already?  So please try to see such very very GOOD things in your life and be happy!

The goal is not the perfect healingThe real goal is that you are not controlled by the sickness.

 

 

The best way to heal yourself is finding things to be grateful for.  Rather than finding every symptom to worry about, try to find things you are thankful about.  Even if you are filled with anxiousness, unfortunately, there is nothing you can do for your daughter’s current symptoms ‘right away’. so all you can do is shift your perspective.

 

 

Again, this is an advice from a non medical profession, and I am not sure how much of a help it is for you.  However, since your daughter is in a situation where you cannot control, I wish that your heart would be lightened even just a little bit.  I’ll be happy if I can be of any help. 

Please take care.

 

Tokuko Abfab

 

                    ********************************************

 


To everyone,


Our heart is always up to ourselves.
Only you can control your heart and outlook on life.
Once you truly realize this, I am sure you will have a very bright future.
As much as possible, please overcome this challenge with a light heart.

I am rooting for all of you!

 

Have a GREAT day!

 

 

 

Translated by Hikari M.

Edited by Tokuko Abfab

 

 

   オリジナルの記事はこちら 

いったい、いつ、治るのでしょう?

 

 


Will You Focus on the 1 ? Or the 99?


 

When I was suffering from Topical Steroids induced symptoms and was hospitalized (Hannan Chuo Hospital in Osaka, Japan), my legs swelled up double its size, and my feet hurt SO much that I could not walk.  I also had severe dermatitis all over my body due to the side effect of Topical Steroids and was constantly in pain, so either way, it was not the level to walk at all.

 

After some time, I was permitted to move around in a wheel chair in the hospital.  I still had severe pain in my legs, but I felt like my condition was improving so much and felt very happy to be in my wheelchair.

Feeling happy as if I got permission to enter the advanced class as an extremely good student in school….lol

 

Next, I was told that I could walk on my ownI still had severe pain, but was able to walk about 10 meters (32 feet) to the nurse station, and felt very proud of myself.

 

And once I was able to walk on my own, improving little by little, it became my morning routine to go up to the roof of the hospital to do my laundry.  Since I could not tolerate stairs yet, I decided to take the elevator to the roof.

 

Here, I encountered a HUGE problem!

 

 

 

 

Up until then, my legs were causing the most problems and my focus had been on that, but I had many other things going on in my body.

All of my ten fingers were severely dry, and if I were to push the elevator button, in that moment, my skin would split, and I would have a new crack in my skin.  The crack would happen suddenly, and very painfully.  

Tokuko is thinking about today’s finger that become victimized…lol

Every morning I would meditate and think… ’Which finger should I choose to push the elevator button…?’

Also, once I got off the elevator on the roof (with a new crack in my skin), another challenge awaits: a heavy door When I would pull on that very heavy door, I would experience at least the second or the third cracks on my fingers… Ouch Ouch!!

I felt like I was a nun doing austere training overcoming hardships one after another…..lol

 

One day, I realized that my right hand pinky finger had no cracks at all.  I was able to push the elevator button with my pinky (without getting a crack ! ).  I was so thrilled!

Right after the door was closed, inside the elevator alone, I said,

raising my clenched fist in victory!  It might be rare to meet a person who can be happy in triumph just pushing the elevator button but I felt like I have achieved something as if Bolt is doing the lightning Bolt pose….LOL!!!

 

 

 

 

 

 

Many may think that being hospitalized is a very negative, and bad experience.  However if you are able to walk, and have energy to talk, I feel that it is important to find joy in whatever circumstances.

 

I could focus on my ONE healed pinky, or I could focus on my nine other fingers with cracks all over them.

 

When you shift your perspective, even when what is going on is the same, you could have a totally different experience.
When we feel that our life is horrible, it may be that we are focusing on the nine remaining fingers.

 

For another example, let’s say you have one co-worker that you do not like.  Many of you tend to focus on that one person, and your mind become filled with the things you don’t like about him/her.  Everyday, you feel horrible being around the unpleasant co-worker.  

By the way, have you ever expressed gratitude towards the 99 other co-workers who are not mean to you? 

Most likely we do not, and dismiss it as being ‘normal’, meaning, we tend to not feel grateful but take it for grantedIf we see the big picture, we notice that 99 other co-workers are not awful to you.

 

If you are able to see that ‘Wow!  99 of my other co-workers are very nice people…’ , then you can even thank that 1 co-worker who is unpleasant, because he/she made you realize this reality.

When you start to focus on gratitude, you realize that ALL of your co-workers are great people after all, that means, you are surrounded by many people/things that you can feel grateful.  Gratitude is here and there around you!

 

It is always your choice to focus on the 1, or the 9, or the 99.  

Both choices are yours to make.

 

If you spend 1 minute thinking of something that depresses you, you must realize that that 1 minute is a minute of your whole life.

 

When we realize this, we must cherish this life and do the best so that we can enjoy it.

Make choices that are fun, deeply care for your life, and let’s use the time we have in a meaningful way!

 

Have a GREAT day!

 

Okinawa, Japan

 

 

  Translated by Hikari M.

  Edited by Tokuko Abfab

 

👇オリジナルのポストはこちらです。👇The original post in Japanese

1を見るか、99を見るか

 

 

 


Like an Actress…


 

I am sure many of you know by now that I am not an actress but..(/ω\) when people ask me, ‘What do you do for your skin care?’  I answer as if I am one by saying I do nothing special for my skincare ….lol

When you stop using Topical Steroids Creams completely, and your Topical Steroid Withdrawal and No Moisturizing Treatment (NMT) begins, you must have a strong determination to continue.  You must have the strong will that you will live your life without being dependent on medicine.

 

When patients are released from the Hannan Chuo Hospital, all the patients have a meeting with the doctors there, and the women are told ‘Try to withhold wearing makeup as long as you can (Or forever)’.

 

For those who are going through TSW, it is important to commit to NMT, take care of our extra sensitivity to environmental factors, and avoid flare ups as much as possible.

So for the ladies…if possible, please do not wear any make up.  It’s time to fall in love with the face that you were born with, and show it to the world!

 

Of course if you have a huge event coming up, such as your wedding, and etc., you may want to try some products, and I believe that is fine.  For those events, you can wear as little as possible, and when finished, make sure to take off the make up immediately and completely.

 

Dr. Kenji Sato is the Japan’s leader in Non-steroidal treatment at Hannan Chuo Hospital, and he has a book out called the New Edition:  What I have learned about adult Atopic Dermatitis from patients.  In this book he has a passage describing about testing cosmetics after moisture and steroid withdrawal:

For 2-3 days, observe if your skin becomes red or not.  If nothing happens, you can try putting on make up again a few months later.  Continue doing this, and see how your skin changes or notIf your skin seems to be okay, you may be able to wear more makeup regularly, but do this slowlyMake sure that you do not wear make up consecutively, especially in the beginning.’

I am sure many of you can relate to this passage above.  The key is to try a little at a time, and space out the time to really see how your skin is doing.

 

However, if not putting on make up is a real burden to you, please feel free to wear make up.  Stressing out about not being able to wear make up is not good for you either.  How you are feeling can affect your skins condition.

If your skin cannot tolerate the new make up or products, please give up and stay make up free for a while.  It is important to take responsibility – if you want to challenge yourself, feel free to do so, but there may be consequences.

 

Some people have adverse reactions to Vaseline and Vaseline products.  It can make the skin irritated and red.  If this happens to you, please don’t feel sad that your face or skin is red, rather feel happy, now that you know that Vaseline does not work for you!  From then on, you can just stop using it.  You may have irritated skin for a few weeks, but if you do not apply anything on your skin, it will eventually calm down and heal.

 

And when your skin is back to its normal condition, you may experiment with another product.  Everyone’s skin is different so trying products is like an Experimenting Project.  You will only know what product works for you, how to apply the product, etc. only if you experiment with yourself!

 

For myself, I do not wear any base make up.  Sun screen is a huge NO for my skin, so I wear a Big Hat, or a UV Sun Visor when I drive, to protect my skin from sun spots and wrinkles ,as if I’m an actress with stunning beauty…lol.  I apply no moisturizer at all, and await for my skin to be able to moisturize itself.  It’s okay if it will take a couple of years, but some day my skin will be able to moisturize itself.  TSW is a horrible condition, but I am grateful that it is a condition that has great hope of healing.

 

When I stopped using the topical steroids, my face had many wrinkles and I looked like I was almost 70 years old.  However with time my wrinkles have softened, and this itself is proof that my skin is healing.  So even if you start looking really old and not like yourself, have hope…and ‘wait’. Time is the best medicine.

 

Tokuko is nodding slowly being satisfied to see herself in the mirror these days…..Just kidding!

 

It has been 5 years since I stopped applying Topical Steroids (**as of Jan 27, 2018), but for the first time in my life, my palms have become soft on its own.  I believe that at this rate, my face will some day be like that too!  Ahem…..I won’t give up forever beauty…..maybe I’m the real actress…..lol

 

After many trial and errors, I put make up on my eyebrows, eyes, and lipsI believe I have been able to cheat people in the cosmetics….LOL!

 

For all of my cosmetics I check the ingredients list thoroughly.  For those who have stopped applying Topical Steroid creams, please make sure to avoid :LICORICE ROOT (Glycyrrhizin, Licorice, Amakusa, Amaki, Kanzo).
Licorice root is in many foods, bathing products, and etc.  Apparently when using these products our brains thinks that we are using steroids again!

 

When I recently mentioned about the licorice root on my blog, it seemed to have surprised many people all over the world.  I received comments as

‘No wonder when I stopped taking licorice root supplements, I would experience a flare!’

I used to use licorice before each flare..!’

‘I noticed improvement when I would drink licorice root tea, but would notice my skin would worsen when I stop..’

‘The herbs that my TCM doctor gave me contained licorice root, and whenever I would stop drinking his herbs I would flare

The cream that was prescribed to me had glycyrrhizin in it! Even though I stopped applying Steroids!’

I was surprised by the many voices that you all shared with me, and realized the potent effects of licorice root to us Topical steroid withdrawl warriors.

 

When I put on make up, I only do my eyebrows, eye make up, and put on some lipstick.  Although I do not use any foundation or base make up, by using vibrant colors, I noticed that it wakes my face up, and helps me look presentable.

 

When taking off the make up, I do not use a cleanser, and only use lukewarm water to rinse.  Sometimes I lather up solid soap and put it only on my point make (eyes, brows, and lips), gently wash off, and dry by pressing a soft towel onto my skin, and that is all. 

Sometimes I notice residual make up, but since I want to avoid rubbing my skin, I let it be. I have not experienced any adverse reactions from this, and believe that it is because I have tested many products, and have found something that works for me.

 

As for eyelash extensions, even though the extensions do not touch your skin, I have heard of people experience irritation from the glue, so I have not tried it myself.  (Please let me know if you know a good brand!) 

So..our natural beauty comes in to play!  Having a light heart, and shining our light is the best beauty secret ever!

 

I will continue to answerI don’t do anything for my skincare!’ with my hair streaming out in the breeze like an actress.  You might mistake me as if I were a famous actress….LOL!

 

All of you reading this blog will heal in time, too.
You made the smart choice to stop steroids.
It takes patience, but in time you will become more and more beautiful!

 

Have a wonderful day today!

 

 

                       Translated by Hikari M.

                                                                           Edited by Tokuko Abfab

 

 

***I advertised for people who can translate my posts of this blog in Japanese to foreign languages the other day.  This is the first issue translated by one of my blog readers, Hikari M., and edited by me.  I really appreciate it!!!!!

Readers are all over the world and they have been making efforts to read Japanese topics even using dictionaries and translators to get the info of NMT or to encourage themselves so I really wanted to help such people with TSW.  Hope this action will be helpful for you.

I’m still put out a call for translating other topics too.  Already got some from foreign countries and getting notification that they are working on it not only in English but other languages too.  To help people with TSW, if you are interested in doing it, please try and send your masterpiece to me from comment column saying ‘コメント’ at the bottom. 

Looking forward to receiving a lot of them!!!  Thank you in advance for your cooperation!

P.S.  Thank you SO much, Hikari san!  Your love is spreading to the world!

 

***こちらは、先日、このブログの日本語版を外国語訳にしてくれる方を募集したものに、

読者さんのHikari M.さんが応募して下さった秀作です。(一部私が加筆させていただいております。)

素晴らしい英訳と才能に感動しています。

 

わざわざ翻訳機能を使って、少しでも情報を得ようとがんばっていらっしゃる外国人の読者さんにとって

どれほど助けになるかわかりません。

Hikari M.さんのご尽力に感謝の気持ちでいっぱいです。

みなさんの外国のお友達にもシェアしてあげてくださいね。

この先も、何語であっても、どのトピックであっても、ご協力いただけるボランティアを募集し続けます

よろしくお願いいたします。

 

 

👇オリジナルのポストはこちらです。👇

女優ではありませんが・・・。

 

英語の勉強中の方にも使えるブログ!(笑)我ながら自己満足陶酔しています(?)

いえ、ホントは訳者のご協力・ご尽力の賜物です。感謝の気持ちでいっぱいです。

 

今日も素晴らしい一日を!

 

 


A message from a TSW sufferer who is on No Moisturizing Treatment (NMT)


 
Topical Steroid Withdrawal fellow sufferers,
 
Due to experiences of a lot of fellow sufferers’ and mine to get over Topical Steroid Withdrawal (TSW), I have been recommending No Moisturizing Treatment (NMT) by Dr. Kenji Sato in Osaka, Japan.  It was amazingly great for us and the fastest way to compare with another Moisture Withdrawal (MW) to get it over but I know that everybody has difficulty with choosing a good method since there are tons of information. 
 
 
Of course, it is difficult to come to Japan for this treatment for people who live in foreign countries so I share his method via my blog, Tokuko’s Room to feel uplifted, in English sometimes.  The treatment requires you to have ordinary and healthy ‘daily life’, looks like simple, so if you do it thoroughly at home, you also will see the good result in a short period though it might be unbelievable for you.
 
 
 
 
Dr. Sato noticed the danger of using Topical Corticosteroids (TS), Protopic and Neoral also, for Atopic Dermatitis/Eczema long time ago and has been taking care of the sufferers for ages.  His long term experience with patients created this wonderful method and so many of his inpatients/outpatients got over TSW with it. 
***However, as for TSW, no one knows how often or how many times or how bad or how long it would repeat.  There’s no data in the world.  Still, you can get over your current TSW symptom the fastest with NMT.  His patients are testimony.**
 
 
Well, today, let me introduce one of my readers detailed report for NMT.  We exchanged messages via comment column of my blog.  She has initiated NMT lately and will accomplish it soon!
I believe her message will give a hope to people who are struggling against the horrible symptoms of TSW and provides good information at the same time.
It will be tough way to make it through but healing will happen to you too with this method.
 
Here is her message below…
 
 
                    **************************************************
 
 
Dear Tokuko San,
 
I am very grateful for your very fast reply.
I have great confidence in the NMT method as I have experienced significant improvement (significant less redness and oozing) upon starting it.
 
Initially, I wanted to give you a thank you reply when I have healed.
I was confident I will heal within 1.5 months just like what most Dr Sato’s inpatients did.
I was complacent as I was making very good progress after 1 month of NMT and I have a strong desire to return to work with 1 more month of NMT.
I even bought Dr Sato’s book although my Japanese literacy is very elementary. I had to use google translate and dictionary to read the book.
 
Then I had a setback after slightly more than 1 month of NMT.
I started to feel my skin is wet, oozy and sticky again. Now I am at around 7.5 weeks of NMT.  I am slowly making progress again.
 
Looking back, I realized all the answers for my deterioration were in your blog.
 
1. I was having too much mental stress upon myself.
I have various sources of pressure (wanting to get back to work ASAP, family matter etc) . Now I realized nothing matter till I get my health back. In the last few days, I have started to read your Japanese posts with google translate. (=D) You are really encouraging and inspiring! I always have a good laugh and smile when I read your posts.
 
2. I was having too much water.
I was a bit slow on this as I thought I have not changed my diet and water intake too much since the start of the NMT. However I did not take into account the humid weather in the past few weeks (Sat over 95% most of the time). I was passing urine more and more often. I started restricting my water intake by frying all my food now instead of boiling/ steaming and only take food with high water content (e.g. Leafy green veg and fruits) during breakfast and lunch instead of dinner.
 
3. Viscious cycle of ooze and reducing physical activity
As my worse oozing areas are on my buttocks and the back of thighs, I felt very painful and my skin felt tight whenever I stand up and move and I felt I couldn’t do exercise. However, the more I sit around, the less air get ventilated to my buttocks and I felt the oozing part doesn’t dry. Now, I walk around more in the morning even if there is oozing after one night’s sleep in blanket. In the afternoon when the ooze is less, I try to do at least 1 hour of kpop dancing on youtube. Exercise helped my skin to feel less tight and made me feel happier.
 
4. I was near my menstrual period and I have read from Dr Sato’s book that most girls do get worse during their menses.
 
Pardon me for the long post. But I really wanted to give you an update and a big THANK YOU for promoting this method to the English world!
Sending you lots of love !
 
 
                    **************************************************
 
 
Hope this message above will encourage you and will be the criteria for choosing a good method among tons of treatments for TSW.  And I really want to say thank you for this report.  Her experience and what she learned will definitely help other sufferers.
 
 
However, please make sure that you have to accomplish this treatment ‘thoroughly’ but not adding your original arrangement like applying oil or moisturizers or taking so and so bath, etc…to get the fastest healing.
It is a little bit more difficult to make it perfectly at home but if you do it thoroughly, you’ll see the good result from 45 days to 90 days later like inpatients in Hannan Chuo Hospital at Osaka as long as your symptom is TSW. 
 
 
I have received some messages from sufferers who can’t get good results with it but such people always add their original way like applying something or go to bed late or not work out, etc….In that case, it is not NMT any more.  This reader above noticed it reviewing a lot about NMT.
 
 
People who made it within a short period trusted this method and made every efforts like her above.  She is the role model of we sufferers. 
For example, I hear many readers try to read even my Japanese topics using translators to get more information.  Such people tend to accomplish it successfully in a very short period
 
 
Also, in the drying process with NMT, you feel like as if it is getting worse to see ugly dried skin but skin needs to dry before healingYour new skin is generated under the crusts.  And healing happens at the very end of the period so you should complete your mental preparation with strong determination to achieve it.  If you might give up in the middle of it, I don’t recommend you to do it because you have to go through hard time before healing anyway.
 
 
                    **************************************************                      
 
 
For people who had never heard of No Moisturizing Treatment (NMT),
 
  👇 CLICK HERE!👇
 

 

 

For detailed information to accomplish NMT,

  👇 CLICK HERE!👇

What can be Moisturizers? – For fellows launching ‘No Moisturizing Treatment (NMT)’

 

                    **************************************************                      

 

For people who’d like to read our conversation in the past, please read below.

    👇READ BELOW MESSAGE TRAILS👇

 

<<From the reader to Tokuko>>

Dear Tokuko San,

Thank you for your very detailed explanation! I have been on TSW since December last year.  Currently I am in the midst of my second TSW flare-up.

Luckily I came across your blog and learned about Dr Sato’s NMT method.  I have been on strict NMT for 6 days and my worst continuously oozing parts on the inner thighs have crusted. Unfortunately I couldn’t stand the itch and scratched off the crust this morning after sweating a bit.  Now it is oozing again.

I am already restricting my water intake to 1.5Litre per day (at most 1L of water. The remaining water comes from food (difficult to estimate but I think it should be less than 500ml?)

I would be very grateful if you could answer the following questions.

1. How should I dry these oozing parts?  Do I use gauze or just leave it to air dry?  Would using a hair dryer or fan help? (I am seriously considering this method)

2. What is the longest period you or your fellow TSW friends avoid shower without problems? So far I still feel relatively comfortable despite not showering for a 6 days already but my scalp is starting to itch

3. How do you or your fellow TSW friends handle the itch during sleep which will disturb the sleep quality? I am taking anti- histamine which helps me to fall asleep but I will wake up immediately when the effect wears off after 4 hours.

Arigatou!

 

<<From Tokuko to the reader>>

Ms. XXXX,

Thanks for reading!  It is a sound choice that you take NMT because it is the best method to get over TSW the fastest.
When affected parts have crusted, you definitely feel itch so I know you can’t control to scratch it but it is ok because you can’t help it.  Just repeat the process, scratch and dry, scratch and dry, scratch and dry…over and over.  Your skin is getting stronger and you’ll see healing.

Well, let me answer your questions as much as possible.

1.  Wear cotton big T-shirts or something like that.  Air flow inside the clothes also is important.  If humidity is high, you feel itch so AC and the fan also are ok I think but don’t recommend hair dryer.  Air dry is the best.  Even if it is oozing, just dry and don’t wipe.  Ooze contains the important nutrition to be healed.  In case it oozes too much, like running one after another, I put cotton towerl to absorb it because it drops so fast but don’t touch the affected parts with it to wipe.  Then just air dry.  Or you can put a piece of gauze with the same size of the part as I explained above (Footnote: It is in the blog topic).  It can be instead of a crust/scab.
After the excersize, some inpatients were drying their body naked (of course, in the curtain) though it is not doctor’s direction.  We dry (=air dry) our body anyway.

2.  The shower is for avoiding infection and to diminish bacteria on your skin so if you can be patient, and if there’s no problem, not to take it for a while is ok. Your commonsense is good enough to make a decision for the interval.  If you think it is too itchy without taking a shower, it must be ok to take.  While the symptom is serious, you shouldn’t take it.  (Most of inpatients were taking it a few times a week for a VERY short time, like 10 sec, 1 min, 5 mins, etc…, meaning, as short as possible.)

3.  As for itch, it is not controlable for anyone.  After dried/crusted, you feel itch and will scratch definitely.  But, it is ok to scratch though this must be unbelievable direction for you.  (If you can control, of course, don’t scratch.)
Everybody has hard time for itch but sleeping time in the direction of other topic (10 pm – 2 am) is VERY important and makes big difference for healilng so if it is too tough, you can be prescribed sleep inducing agents.  Antipururitic drugs also are ok though they don’t work very well as you know.  Try to get up early and work out to pass out around 09:30 pm.
Again, sleeping time 10-2 makes BIG difference.  Sleeping tight is difficult for everyone due to itch but itch is uncontorolable so just try doing your best.

If you take NMT thoroughly, healing happens 45 to 90 days so try it as much as possible.  Don’t add your original way like putting so and so oil or XX bath foam or cream, etc….

Take good care of yourself!

P.S.  Please read other posts written in English.  To accomplish NMT, the correct knowledge is important.  Good luck!

 

                    **************************************************  

 

I have been disseminating the danger of Topical Steroid, Protopic and Neoral to use for dermatitis to all over the world. 

This is nonprofit action so I don’t need to exaggerate the effectiveness of NMT.  It was the best treatment to get over TSW for me and for my fellow sufferers who experienced it too so I just want to share the info to help you out because I fully know how tough TSW is.  I believe that spreading this information is urgent need.

If this topic was helpful for you, please clickLike on this page or Share the info for people who need it. 

Your such action will help future sufferers that might increase in the long run.

Thank you in advance for your cooperation!

 

Anyway, healing will happen to you too soon!  Hang in there!

Hugs!!!!!

 

 

 


What can be Moisturizers? – For fellows launching ‘No Moisturizing Treatment (NMT)’


 

I recommend Dr. Kenji Sato‘s No Moisturizing Treatment‘ (NMT) in my blog for Topical Steroid Withdrawal (TSW) sufferers due to my long experience of Atopic Dermatitis and healing from VERY severe TSW with it. 

***NMT is the method for TSW but not for the perfect healing of Atopic Dermatitis (AD).  Human beings still can’t find out the etiology of AD except filaggrin gene

 

Every time I update my Japanese blog in English, I receive hundreds of messages/comments/inquiries a day via comment columns of my blog and SNSs from all over the world.  That means so many TSW sufferers have been lost in their journey looking for good remedy.

 

A lot of people have already tried MW (Moisture Withdrawal) but NMT is different from it and very drastic method to avoid letting your skin moisturize.  It was developed by Dr. Sato based on his many experiences with TSW patients for a long time.  Some doctors might announce desk theory to let younger doctors see patients but Dr. Sato has been seeing TSW patients in everyday clinical practice and that is why his theory works for patients. 

He is the leader against Topical Steroids in Japan.  

 

 

It is noteworthy that he had noticed danger of Topical Steroids, Protopic and Neoral early on in his career.  This fact must make you realize his diagnostic ability.  If you were seen by him, you’d feel safe with his skilled accurate diagnosis and observations, however, since it is difficult to come to Japan to be seen by him for people in foreign countries, and his books haven’t been translated to other languages yet, I’ll keep sharing detailed information of his method for such sufferers and patients who can’t meet experienced dermatologists for TSW.

 

 

Well, in the hospital, Inpatients are discharged from hospital 45 to 90 days later usually.  Before leaving, they often visit other inpatients’ rooms to encourage so I had seen their conditions were VERY good then, in fact, it was hard to find out affected parts on them.  I realized that healing tended to happen at the very end of the process but it was much faster than I expected.  

Especially, the fact that no one applies ointments or cream or oil or any other moisturizers to be healed like that was amazing for me.

 

 

Today, I’ll try to explain about moisturizers subjected above to accomplish NMT but this is only for people who set themselves seriously toNo Moisturizing Treatment (NMT)’

It is VERY tough for the time being because you have to dry your dry skin and it looks like as if the symptom got worse from the first stage to the very end of one in NMT.  Dry skin covered with a lot of crusts looks like horrible aggravation sometimes for us, meaning for non-professionals, but the symptom is the process of healing

 

 

Skin needs to dry before healing

Remember when you got injured.  The part develops a scab first and under the scab, new skin is produced preventing invasion by bacteria/germs at the same time.  Then after the affected part dried to finish making healthy skin, the scab comes off naturally

Imagine this.  If you moisturize the injured part over and over with moisturizers, the skin can’t dry and it inhibits generating a scab to be healed.  If you peeled off the scab before drying in the middle of healing, it takes longer time because your body has to make a scab again.  Besides, if you moisturize the injured fresh part, it is as if you keep the part wetting.  I guess process of healing of NMT is the same thing with this.  Again, skin needs to dry before healing.

 

 

Before you read explanations of moisturizers, please check out one of my posts below to know NMT.

  Click below site   Tokuko’s Room to feel uplifted

How to get over Topical Steroid Withdrawal asap!

 

 

          *******************************

 

Well, let me explain what can be moisturizers to accomplish ‘No Moisturizing Treatment‘(NMT).

 

In the public mind, since dry skin induces itch, medical professions tend to advise you to moisturize skin.  Also, increasingly fevered Moisturizing boom due to commercial strategies reflects attitudes and values prevailing in society.

However, you don’t apply any ointment or cream or oil or any other moisturizers in NMT, I mean, you apply nothing on your skin during the process of NMT. 

 

If you are a sufferer of Atopic Dermatitis (AD) or TSW, it must be easy to imagine how tough it is.  I also was scared before I tried to do it and it was a fight against pain for a while after I started it.  Most of AD/TSW sufferers have dry skin so if you leave affected parts dry, you will get many cracks here and there….I know you also are the same.

However, eventually, this is going to function beautifully.  You’ll dry your dry skin without applying anything anyway and it is the major protocol of this treatment.

 

 

Besides, this method is not only drying your skin but avoiding to take a bath and a shower as much as possible.

Taking a bath and a shower let shed your moisturizing ingredients into the water and can be moisturizers at the same time.

So as long as you take this treatment, you need to try to diminish numbers of times.  When you do it, you have to finish in a VERY short time.

I guess, you imagined like, “5 mins or 10?”……Uh-oh…….Nope!

Dr. Sato sometimes says, “You are authorized 2 sec.”…………lol  He likes joking but it is serious in a sense.  This means, we have to finish it SO quickly.

 

While we are in the hospital, we take a shower once 3 days or 4 days and try to finish it in several tens of seconds. 

Also, no one washes their faces even in the morning.  We have to dry our skin and needs to generate moisturizing ingredients by ourselves at the same time. 

 

If your symptom is severe, of course you shouldn’t take a bath/a shower definitely because you will run protein from the surface of the skin into the water.  Crusts (flakes) and ooze are made of protein and that is important nutrition to produce new skin.  You shouldn’t lose it.

 

 

Per Dr. Sato, the main reason to take a shower is to avoid infectious diseases diminishing bacteria on your skin.  At the same time, if you take a bath/a shower very often, it washes away generated antibacterial substances but not only being lost moisture through the skin.

Also, when you take a shower, please don’t forget that the water pressure should be very low.

 

Before I know this method, while I was taking bed rest at home with VERY severe symptoms, was taking a bath everyday without knowing that it was very dangerous action.  The water turned to be white in a short time because flakes (crusts) covering all over my body peeled off in the bath tub or ooze ran into the water. 

 

When I entered the hospital to be seen by Dr. Sato, I knew that I had severe hypoalbuminemia.  Maybe it had been happening every time my TSW turned to be severe in the past because my fatigue was horrible at that time but I didn’t realize it and doctors who I was seen also hadn’t noticed it.
It turned to be the primary (major) sickness after all though my TSW was VERY severe when I entered the hospital.  This is one of the reasons that I keep advising you to be seen by a doctor sometimes as checkups even if you have to take home remedy.  There are medical profession’s portions when you get over sicknesses all the time including diagnosis of infection too.

I understand your feeling that it will be a relief to wash away crusts or ooze that smells bad in the bath tub, however, avoiding frequent bath/shower is very important for prompt healing.  If you do it often, it can be dangerous too.

 

 

Hot springs also can be moisuturizers.

Each country has different customs instead of hot springs (i.e. Sauna, Jjimjilbang, etc….) but we have a custom to enjoy hot springs in Japan.  Dr. Sato doesn’t recommend them.  Although there are doctors who recommend ‘hot spring treatment’ even among anti TS doctors, as an experiencer, I agree with the theory that hot springs can be moisturizers.  It might look as if you get well after taking it due to components in hot springs but until the day you feel healing happened, I also don’t recommend such activities.  Count them as moisturizers.

As for other customs in your country, I don’t know them very well but either way, if you get warm in the bath tub or anything, you usually feel itchy so until you get better, the restriction will be a sound choice.  Or don’t stay in it for a long time to avoid itch.

 

 

If possible, please try not to use Soap

When you have to use it, take soap bars but not liquid soap.  Also, don’t take soap bars that say they are good for your sensitive skin, or good for atopic dermatitis, or additive free, or moist feeling, or moisture-rich, etc…because such soap tends to have moisturizing effects.

When they make liquid soap, surface-activating agent (surfactantis used definitely.  Do you know what it is made from?  It is a petrochemical product.

Also, liquid soap remains ‘in’ your skin even if you believe you washed it away.

 

 

Using Shampoo also is not recommended

It can be a moisturizer.  

Wash your hair with good temperature shower water only.  We call it ‘Yu-Sham’ that means hot water shampoo, not using shampoo actually. 

When you really want to use shampoo, use soap bars making a lather with it instead of shampoo.

After you got well, shampoo also might be ok but don’t use ones that include surface-activating agent (surfactant) or rinse or conditioner or treatment.

 

We have been manipulated by commercial strategy of companies and everybody shampoos or takes a shower everyday lately, however, human beings haven’t done it so often originaly, I mean, we didn’t do it very often long time ago.  It is the custom companies made on purpose to sell products.

 

 

However, once you imagine about the restriction of taking a bath/a shower, you would worry about the smell from oozing skin.  Since it includes very important nutrition, meaning, protein, it smells so bad.  Unfortunatelly, there’s no way around.

However, protein works to produce your new skin and it is necessary for your healing definitely.

Please do not rinse ooze and just try to dry the affected parts

After ooze dried, I know youk feel intense itch so you will scratch the parts definitely but still, you should dry the parts again not to wipe it off.  It will happen over and over in the process.

Repeating the process, your skin is getting stronger eventually.  The process is so hard and I know that you will completely disappoint yourself every time you scratch all crusts off but nevertheless skin needs to be dried before healing.  If you added moisturizer, it will obstruct the healing.  Dr. Sato fully knows it is sickness to feel itchy so it is ok to scratch. 

And remember this.  To wipe off ooze can be a moisturizer.  It makes it more difficult to dry your skin.

 

 

After excercise, what should you do?  

Dr. Sato recommends to work out every day to boost metabolism.  It helps producing new skin.

In case you get sweaty, do you think you can take a shower every time?

…..Nope.  Still, take a shower/bath once 3 or 4 days.  Just dry your skin naturally.

For drenching sweat, wipe it just like touching your skin gently to absorb it with a dry cotton towel.  Please do not scrab with it. 

In the hospital, inpatients work out every day so eveybody gets sweat very often.  Even in summer, they dry sweat naturally or absorb dropping sweats with a dry cotton towel.  (Again, do not scrab.  Just touch it with a towel gently). 

I explain this saying ‘they’…..because I wasn’t able to walk first in the hospital due to severe symptom and after a while, was able to walk slowly.  So I couldn’t work out very well, but still, even such a person got it over within 90 days with NMT.

 

 

Everytime I explain about sweat and frequency of a shower/bath, some people send me questions like ‘I feel itchy after I got sweat so I can’t do this.  What should I do?’

….Ahem….I understand it.  Evrybody is the same with you.  Yep.  I agree……but…..

I don’t need reposrts what you CAN’T do from all over the world….LOL!  You should do only things you can do so you don’t need to show me reasons that you can’t do it…..

I’m telling you.  If you do Dr. Sato’s NMT thoroughly following the direction in other post above, TSW sufferers will see significant improvements within 45 to 90 days.  All of his patients who used to be in the hospital can be testimonies of prompt recovery.  In other words, since we followed his protocol strictly, we could get it over within that time frame.

If you can’t make it, healing takes longer than that.  No more and no less.  You have the freedom to choose treatments.  I just can explain the best method and can say if you follow the method strictly, you can get it over the fastest.  Everybody has situation so please don’t worry too much not to be able to do it.

Anyway, in case you feel itchy due to sweat, you can take a shower….but only 5 sec or so, I recommend.  I’m not joking.  We take such a strict way in the hospital and that’s why we get it over so fast. 

 

 

This also must be a surprise for you but to apply gauzes thick

or putting lots of bandages on can be moisturizers.

You understand the feeling that your skin contains moisture and humidity inside them, don’t you?  If you wrapped a part up in a bandage, you can’t evaporate humidity through the skin.

NMT’s protocol is dry the affected parts and encourage producing new skin, so you don’t apply anything including gauzes and bandages basically.

It is ok to put a piece of gauze on the afffected part only cutting it the same size with the part  in case your skin can’t make a scab easily due to a lot of oozeIt is applied instead of scabs so one piece only in any situation.

After it started to peel, cut off the dried part only and leave the rest of it as is.

You can take a shower with the gauze as is and it is ok to leave it on the skin up to one week.

**Gauze should be washed with water in advance to avoid the stimulation of gauze itself and antiseptic.

 

 

Even if your skin looks so bad, you don’t apply anything or don’t put bandages on.  Just dry it.

I had never tried such a treatment in my long experience of Atopic Dermatitis.  I used to apply Topical Steroids or something always when it got worse in the past and put on bandages for raw skin.  It was a common sense of treatment for skin problems for me.

However, this method defied conventional wisdom.  It was a big surprise for me because skin was generated the fastest than any other treatments.

 

 

During TSW, you sometimes feel shivering cold.

However, to stay in blankets or thick top covers or

comforters can be moisturizers.

When you sleep, it is unavoidable not to catch a cold but adjust the room temperature and try not to stay in bed all day long.  It definitely is a moisturizer.

Even if you are staying out of comforters, if you wear wind breakers or thick clothes, or etc….the outfit can be a moisturizer.

Are you sick and tired of hearing these strict restrictions already?….lol  I understand your feeling very much because I also have chattered my teeth due to feeling of shivery cold but if you accomplish them radically, healing happens faster.  I promise.

 

 

The Air Flow in the clothes also is important.

The moisture-containing air due to your body temperature can be a moisturizer.

In Hannan Chuo Hospital, I used to wear a thin cotton big T-shirt and a pair of big thin cotton short pants.  Inpatients are not recommended thick clothes.  Thin clothes that allow air to pass through easily are ideal. 

If you put your shirt into pants, that also can be a moisturizer.  You know what I mean?

Think about the air flow even inside clothes all the time and dry your skin.  See?  This treatment is such drastic.

 

 

Because of ooze, you might be wearing towels around your neck but it can be a moisturizer

Before I knew NMT, I used to put a thick gauze towel around my neck because ooze was dropping, however, if it is running, just absorb only drops with the gauze gentlly and dry the part wearing an open necked cotton shirt

Again, ooze is necessary for healingDon’t wipe it off.

 

 

High-necked collar shirt and Turtleneck shirt also can be moisturizers.

Face guards and masks also are moisturizers.

 

 

TSW sufferers prefer to peel crusts off…..lol  We tend to do it but to keep a skin pliable can be a moisturizer to be exact.  Healing takes longer if you do it.

 

 

Water restriction makes big difference for healing.

If you take too much water, excess fluid remains in subcutaneous tissue.  It can be the cause of edema/swollenness and can be a moisturizer.

Especially, don’t drink much water at night or before you go to bed.

 

I checked with Dr. Sato regarding water restriction before I post this because I receive so many inquiries about it.  Below is the translation of his explanation.  The quantity of water includes fruits, yogurt, jelly, pudding, etc…Not only water.

 

         ****************************** 

 

The water restriction for TSW is approximately from 1,000 to 1,500 ml per a day for people weighing 5060 kg.  Might be ok from 1,300 to 1,800 ml per a day for people weighing 8090 kg

However, if you have erythrodermia/exfoliative dermatitis showing wide range of redness on the entire body, 20 % more water will be allowed. 

If you got sweat a lot after exercise, you could drink additional water checking the change of your weight.  If you disregard the sweat absorbed in your clothes, you can take additional 500 ml water in case you lost 500 g.  However, if you got sweat a lot and it was absorbed in the clothes, you need to consider it too. 

In case you have a cold or something and have a fever more than 38 ℃, you should stop water restriction and drink water as you would like. 

 

          ****************************** 

(Thanks Dr. Sato!  This is the perfefct explanation for us!)

 

I really want to help many TSW fellow sufferers because I fully know how tough it is.  That’s why I share the information taking time though English is not my first language and if I could help as many people as possible, it would be my pleasure.  However, during the process, since you need to bear hardship going through this treatment for a while and it can be as if it is getting worse during the drying process, I have a concern. 

The thing is……If you don’t take exact way or if you added your original method though NMT should be done precisely, healing takes longer.  Or if you can’t be patient due to pain or your compelling situation and quit it in the middle of the procedure that looks like aggravation, you won’t learn how great it is.  And then, if you announced ‘This was not good…..It didn’t work for me!’, with the approaches above, so many TSW patients would miss this great method

Please understand that you have responsibility for that.  So if you have strong intention to accomplish it, I definitely recommend you take it reading my explanation carefully.  It is the fastest way to get over TSW and you also can be a testimony.

 

 

In addition, as I always mention, this should be done with proper monitoring by physicians as checkups.  if your symptom is diagnosed as ‘Not dangerous.’, just be patient and wait until healing happens.  Just wait.  You might repeat to scratch and dry, scratch and dry, scratch and dry…..but your skin is getting stronger little by little and then, healing happens to you

 

Dr. Sato fully knows that it is itchy sickness and itches are uncontrolable.  You can’t help it.  He says, ‘It is ok to scratch because this sickness has a certain symptom with itches.  It’s such sickness.  Scratch and dry, scratch and dry, scratch and dry…but last scratch should be done gentlly at least.  Your skin will be stronger gradually.’ 

You can scratch in NMT.  Again, everyone, you should know that you MAY scratch because no one can control it.  Don’t be disappointed after you scratched.

 

 

Please don’t concentrate on seeing affected parts only.  See the parts that got well.  Do not expect 100% in any situation.   No need to do the comparison with others.

Such mind also can help your healing. 

Do you notice that there are grateful things here and there all the time?  Even in your current situation, there should be many.  Remember this.  You are experiencing this journey to find them out in spite of suffering.

 

 

The day will be soon.  Trust your natural healing ability.

Hang in there!!  Good luck!

 

 

Baikal Lake

 

**Please don’t misunderstand this.  There’s no data in the world about frequency of TSW and no one can proove if it won’t happen any more for good.  It is the scary point of side-effect of medications.  You just can be healed from your current TSW shortly with his method.  Also, this doesn’t mean it can change your original body composition or your original sickness though most of us feel it gets much better than before.


The helpful information provided by Dr. Kenji Sato


 

Today, I’m very happy to be able to announce the great information for Topical Steroid Withdrawal provided by Dr. Kenji Sato.

A lot of patients who are suffering from TSW know Dr. Sato by name because of his theory and great method called No Moisturizing Treatment (NMT)’for TSW.

 

He is the leader against Topical Steroids and Protopic to use for Atopic Dermatitis in Japan.  He has been taking care of many inpatients/outpatients from all over Japan/foreign countries for a long time and achieves great results for TSW.  His eminent ability to diagnose patients’ symptoms and clear and appropriate advice make us surprise all the time because they can be the shortcut for healing. 

 

And I’m the testimony who got over TSW in a short period with his methodWithout applying any ointment or cream or oil or moisturizer, the very severe symptoms disappeared 90 days later.  It blew my mind.

 

He sometimes gives comments in the comment column on my blog and this time, mentions about reasons why TSW takes for a long time and can be severe.  So I am pretty sure that this information will help out a lot of patients suffered from TSW and must be helpfull for many people for understandings of TSW

I’m very proud of that he is one of readers of my blog. 

 

Dr. Kenji Sato’s message is as follows;

 

          ******************************

 

*snip*

[sic] 

I think it is worth informing to people.

From my experience, the causes which make TSW symptoms long and severe are the followings;


1. long term and/or stronger steroid use


2. use of tacrolimus


3. use of moisturisers after stopping topical steroids


4. frequent and long bath and/or shower


5. drinking of large amount of liquid, drinking liquid during night


6. wash out exudate and/or scrape off crust


7. insufficient intake of protein and lipid


8. bed rest during the day time


9. insufficient amount of exercise


10. be told not to scratch


11. poor management of psychological stress


12. Subjective accessment of signs (itch, pain etc) and no objective accessment of symptoms (erosion, red, brown, white, exudate, crust, etc )

 

Kenji Sato

 

          ******************************

 

No Moisturizing Treatment (NMT), that was developed by Dr. Sato based on his many experiences for a long time with TSW patients has been showing clearly defined outcome in Japan.

People who have tried NMT can make a definitive statement that it is the best method for your prompt recovery from TSW.  However, you need to understand one thing.

Once you started it, your symptom might look as if it got worse because your skin dries more but it is the process of healing.

As long as I know, healing tends to happen at the last minute of the entire process, meaning, I saw it was accelerated right before inpatients were discharged from hospital 45 to 90 days later.  So I recommend that you don’t give up at the early stage.  If your doctor diagnosed that your symptom is not dangerous, just keep drying your skin and follow the method precisely if you are trying NMT. 

Hang in there….for a while.  Things take time all the time.

 

Shrewed choice and insight are the point for your prompt recovery.

Healing will happen to you!  Take good care of yourself!

 

          ******************************

 

There are comments from fellow sufferers of TSW who had tried NMT to see my blog introducing Dr. Sato’s method in the below topic.  If you are interested in it,

👇 Click below site! 👇

It works! – No Moisturizing Treatment – For Topical Steroid Withdrawal Fellow Sufferers

 

If you haven’t heard NMT and would like to know it more or to see pictures of my symptoms,

👇 Click below site! 👇

How to get over Topical Steroid Withdrawal asap!

 

If you’d like to see the pictures of children’s cure, click the site below.  They are in the video.

👇 Click Here! 👇

https://www.dovepress.com/a-prospective-study-of-atopic-dermatitis-managed-without-topical-corti-peer-reviewed-fulltext-article-CCID